Tracie Lawlor Trust

Great story about why set up featured in @MailOnline check it out goo.gl/pjCQTb #cysticfibrosis #tlt4cf #3peaks4CF

From 12 pm tomorrow Free Entry! #cysticfibrosis hope to see you there! (Also we are full up not taking bookings woops!)

Final construction date for new National Children’s Hospital may be delayed again buff.ly/Z2Llgtd

Please Read & Share - My Analysis of #Disability & #Caring in #GE24 - Especially In Light Of Taoiseach’s Interaction With #CharlotteFallon - Opinion: This election exposed disability services for what they are — the scandal of our age (via @thejournal_ie) jrnl.ie/6560940

#cysticfibrosis #tlt4cf see you there!!

Letter 2015 signed by leading clinicians in neonatal care. “Co location with a physically linked maternity hospital is in our expert opinion, non negotiable.” Children’s lives will be put at risk transporting them around the city. @DonnellyStephen @SimonHarrisTD @CHI_Ireland @CeoHardiman @BernardGloster

The contentious €2.3 billion National Children’s Hospital is in the wrong location, a leading paediatrician said yesterday. Dr Suzanne Crowe said the facility, being built at the St. James’s Hospital campus, should have been co-located on a greenfield site with the national maternity hospital. #NCH #HowIrelandWorks irishmirror.ie/news/irish-new…

My Response to #Budget2025 - Whilst I Acknowledge The Small Meagre Increases to #Carers & #Disability Allowances & Tax Reliefs - They Do NOT Reflect Crisis of Poverty & Unmet Need in Ireland - #Disability Allowance & #Carers Allowance Should Be Non-Means Tested Universal Payments

As We Approach #Budget2025 & Final Countdown to General Election - I’m Appealing Directly to Taoiseach ⁦@SimonHarrisTD⁩ to Please Name The Date for Full Ratification of #UNCRPD - You Can Do It Taoiseach - Is Féidir Leat -A Fundamental Human Rights Approach for #Disability✊

The ECFS has published 4 papers, updating standards for the care of people with CF. Covering everything related to living with and caring for people CF they are a great source of information for all CF teams. More information on: ecfs.eu/ecfs-standards…

Golden Farewell! 🥇🥇 Kellie Harrington takes gold in Paris after her Tokyo 2020 triumph. As the only Irish woman athlete to win two golds, she retires at the pinnacle of Olympia. You’re a true inspiration, Kellie. Enjoy your well-deserved moment! #Paris2024 🎨 @muvergraphics

For anyone who missed my interview this evening, please listen and share.💔 It's not an easy listen, but it's vital tax payers know the contempt the HSE & government officials have for chronically ill patients. rte.ie/radio/radio1/c…

Very upsetting watching the documentary #FightToFly on @Channel4 Here we see one story where the presenter has to drag himself along the floor of a brand new aircraft because their is no transport seat onboard to allow him the dignity of the bathroom. #discrimination

Well done Clare great game

Anyone get the invite to this event held today?

👇There Are Tens of Thousands of #Disabled Irish Children & Young Adults Suffering Life Limiting Outcomes on Chronic Waiting Lists - Now Is The Time For Accountability - Exactly Who - What Managers in ⁦@HSELive⁩ & ⁦@CHI_Ireland⁩ ⁦@roinnslainte⁩ Are Responsible?

Tess Finch-Lees: We’re drowning in a wave of Covid, but hospitals aren’t even insisting on masks buff.ly/4clXc9B

The headline doesn’t do the story justice! What are the design flaws you say? Consultant discovers that in the worlds most expensive hospital some of the consultant rooms have no wheelchair accessibility. That’s right no access for children wheelchair users in a €2.2bn national children’s hospital. Seriously!!!!!!! 😩 @DonnellyStephen @IrishWheelchair @HSELive