Raymond A. Wood Foundation
1.2K posts

Raymond A. Wood Foundation
@rawoodfound
Providing quality of life support for hypothalamic-pituitary brain tumor survivors 🧠 #braintumor #craniopharyngioma
انضم Şubat 2017
550 يتبع272 المتابعون

Brain Tumor Awareness Month is almost over, but we are not finished.
Benign is NOT fine.
Support our Rally for Research to help make benign truly better
zurl.co/AgPaY

English

It's the last week of Brain Tumor Awareness Month, and thanks to you, we have raised almost $25,000! These critical funds will help us support brain tumor survivors with research, advocacy, and support.
Donate today to turn awareness into action zurl.co/h0lbf

English

Even a “successful” treatment for a craniopharyngioma can lead to a lifetime of medical conditions. Research has helped us better understand these conditions & the impact on survivors. This Brain Tumor Awareness Month, help us make benign truly better zurl.co/a52Ms

English

Brain Tumor Awareness month is almost over, but you can wear your strength year-round! Our Benign Is Not Fine sweatshirts and t-shirts are available with the logo printed front or back. Get yours today to show your strength! zurl.co/eltqW

English

May is Brain Tumor Awareness Month, and we are on a mission to spread awareness that benign is not fine. By donating today, you can help us make a difference in research and advocacy for hypothalamic-pituitary brain tumor survivors.
zurl.co/Lkg2d

English

Congratulations to @rawoodfound on two recent publications using data from the #IAMRARE® Hypothalamic-Pituitary Brain Tumors Patient Registry!
Published in @Biomed_MDPI and @SciReports, the studies highlight how patient-powered data can help researchers better understand #craniopharyngioma treatment priorities.
Learn about IAMRARE at iamrare.org

English

Hypothalamic obesity is a rare & serious condition that can develop after treatment for craniopharyngioma. Support our Benign Is Not Fine Rally for Research to help us make continued research and support for survivors of this condition possible.
zurl.co/XM0EX

English

Join us for our Survivor Support group tonight at 7pm EST, hosted by brain tumor survivor Jason Burris! Email outreach@rawoodfoundation.org to join.

English

This brain tumor awareness month, we are spreading awareness that benign is not fine! Thanks to your generous support, we have raised over $20K for research & advocacy for hypothalamic-pituitary brain tumor survivors. Help us take it to the next level! zurl.co/DNlby
English

The info you need is now available on demand! Join us on U Screen, our new on demand video streaming platform.
Stream all the content from our 2023 and 2025 Pituitary Brain Tumor Family Conference, and more content will be loaded seasonally.
zurl.co/tvRTH

English

We’re halfway through the month and thanks to you, we have raised over $19,000! These critical funds will help us support brain tumor survivors with research, advocacy, and support.
Help us rally to the next level and make an even bigger impact zurl.co/zoFA2

English

Craniopharyngioma is considered benign, but it’s associated with severe, lifelong medical conditions, like hypothalamic obesity, AVP-D, and more.
Support survivors and caregivers by joining our rally for research! zurl.co/cQGYP

English

Why do we say benign is not fine? Hear one craniopharyngioma survivor's perspective and support our rally for research this brain tumor awareness month! zurl.co/lKZLh
English

Join us for our Caregiver Support group tonight at 8pm EST, hosted by caregiver and RAWF board member Eugenie Hsu! Email outreach@rawoodfoundation.org to join

English

The Benign Is Not Fine campaign is underway & we are so grateful for your participation as we raise awareness & funds during Brain Tumor Awareness Month. We've raised over $15K in just one week, and we're excited for what's ahead!
Support the campaign zurl.co/U5gb0

English

Benign is NOT fine.
A "benign" brain tumor can still cause permanent damage, disrupting critical hormone function, affecting memory, mood, and cognition. Many survivors of require ongoing care, advocacy, and support
Support our Rally for Research zurl.co/A040O

English

Check out some of our May events!
And since May is Brain Tumor Awareness Month, be sure to join a team to rally for research and spread awareness that benign is not fine zurl.co/adKIF




English

Got a Rare Story to Share? Join @EveryLifeOrg Virtual Youth & Teen Advocacy Day!
You'll learn effective communication strategies with lawmakers and learn essential policies that affect the rare disease community. zurl.co/7NdOQ

English

