Raymond A. Wood Foundation

Join us for our Survivor Support group tonight at 7pm EST, hosted by brain tumor survivor Jason Burris! Email outreach@rawoodfoundation.org to join.

Join Rhythm Pharmaceuticals for a webinar on Understanding Acquired Hypothalamic Obesity: Disease Education and Treatment Options. This program is designed for patients and families in the U.S. July 23rd at 7pm EST To register, please visit: zurl.co/YNq2T

Grief can be experienced in many different ways, at many different points in your journey. That's why we offer free individual grief support sessions, with grief support specialist Holly Gainsboro. Get the support you need when you need it most zurl.co/RvqFe

It's not too late to join us for the Philadelphia Marathon Series! Whether you are ready to take on the full, half, or 8K, this is an opportunity to make every mile count in support of brain tumor survivors and their families. Email meghan@rawoodfoundation.org to join the team!

July 10 is Chronic Disease Awareness Day. Survivors of hypothalamic-pituitary brain tumors often live with lifelong chronic conditions that many people don’t see, making daily life challenging and exhausting. Today we invite you to raise awareness and support someone in need!

We're excited to share that the results from Rhythm Pharmaceuticals' Phase 3 TRANSCEND trial in acquired HO have been published in The New England Journal of Medicine. Learn more in the full press release! zurl.co/Z63Ke

Submissions for Rare Artist 2026 are open until July 20th! Through creative expression, the community translates lived rare disease experience into advocacy, storytelling, and public impact. Each year, 10 Rare Artist awardees are selected. Apply here - zurl.co/VEMVn

Hello July! Here's what is happening with Team RAWF this month!

Run the Philadelphia Marathon with us! Whether you take on the full marathon, half, or 8K, this is an opportunity to make every mile count in support of hypothalamic-pituitary brain tumor survivors and their families. Email meghan@rawoodfoundation.org to join the team!

It’s here! The RAWF Patient Registry is now available in French and Spanish—making it easier for more patients and caregivers to share their experiences and drive research forward. Log in and choose your native language, or the language you speak most fluently today!

Last week clinicians, researchers, industry leaders, patients, and caregivers gathered for the first-ever MOMENTUM: the MC4R Pathway Summit, hosted by Rhythm Pharmaceuticals. Check out our latest blog post to learn more about the summit and it's impact zurl.co/MtqdH

Join us for our Survivor Support group tonight at 7pm EST, hosted by brain tumor survivor Jason Burris! Email outreach@rawoodfoundation.org to join.

On July 1, the landscape of obesity care will change with the launch of the @CMSGov Bridge program. @ObesityAdvocacy @AmDiabetesAssn @ObesityAction @thebrandOma @ASMBS @ObesitySociety are hosting webinar on how to navigate this new model! RSVP: zurl.co/aXtmA

Barbecues and food-centered gatherings can be challenging for people living with hypothalamic obesity — and for caregivers supporting children with aHO. Check out the latest post on our blog for a few gentle, practical tips to help you navigate the day zurl.co/XT0we

The EveryLife Foundation for Rare Diseases @EveryLifeOrg is excited to invite families to apply for travel stipends to attend Rare Family Day 2026 on October 3. Apply for a travel stiped before June 26th! zurl.co/1OEfc

“Effective treatments are tremendously enabled when you’ve got a strong partnership between a patient organization and a company trying to develop a therapy.” — Dr. David Meeker, CEO of Rhythm Pharmaceuticals The full conversation on Uscreen zurl.co/E9JJW

We're here for you! RAWF offers individual grief support sessions led by Grief Support Specialist Holly Gainsboro, now available on request. Get the support you need when it works for your schedule. Request an appointment here: zurl.co/AbCCk

Thank you to all who joined and supported our Brain Tumor Awareness Month campaign! Together, we raised over $37,000 to support survivors of benign brain tumors. We are grateful to everyone who donated, shared their experience, and spread awareness that benign is not fine!

We’re almost 90% of the way to our goal. RAWF has raised $35,363 toward $40,000, and we’ve extended the Benign Is Not Fine campaign and today is the last day to maximize our impact for survivors and families. Help us finish strong! zurl.co/qucVg

We're celebrating the 2-year anniversary of the Hypothalamic-Pituitary Brain Tumors Patient Registry! Your contributions are helping move research forward and improve the quality of life for craniopharyngioma survivors & their families. Learn more: zurl.co/B9XRE