Rare disease community, it's time to make your voice heard! 📢Take and share the new Rare Barometer survey: lnkd.in/gQdnWXVD Available in 25 languages. Open to anyone with a rare disease or rare cancer, and their close family members, worldwide. #RareDisease #SocialRights

We want to hear about your experiences with: 📌 Education, employment and leisure. 📌 Daily barriers and discrimination. 📌 Access daily support, including personal assistance. 📌 Disability (visible or invisible!), and disability recognition processes.

Use our communications toolkit to spread the word! 👉 lnkd.in/gNdtqYZp