April

339 posts

April

April

@AprilWW911LC

Beigetreten Kasım 2025
102 Folgt160 Follower
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April
April@AprilWW911LC·
April Theisen, a former firefighter and current physician assistant from Oregon(Mandated Vx), is now facing a tough battle with Vx injury & Long COVID symptoms that have taken away her independence and ability to work. After 5 years of exhausting treatments in the U.S., she’s hopeful for a new chance at recovery through the McCairn-Edogawa clinical trial in Japan. These therapies show very good results thus fare and are not available in the US. Your support will help cover her treatment and AirBnB. She has already secured flight. She is traveling with other medical professionals. Their goal is to raise awareness about other treatment options for long covid and bring this back to the US to help others. Please consider sharing or donating to give April a real shot at regaining her health and independence. Every bit helps as we work toward this next step. gofund.me/8d98387b3
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April
April@AprilWW911LC·
@GreenpharmO @EdogawaPatients Me too but out of option. Husband just laid off. Can’t afford for him and our son to go. Out of options. All in. We will pave the way. Don’t give up hope. Walk beside us on this path. You are not alone.
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GreenPharm
GreenPharm@GreenpharmO·
@AprilWW911LC @EdogawaPatients I’m not sure of my dates yet, but going alone is the part that scares me the most. I’m sending you a hug ❤️
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Ken Evans
Ken Evans@EdogawaPatients·
We have some patients desperate for financial help. Last resort. PLEASE SHARE. These injuries have humbled us, brought us to our knees. It is not easy for us to do this. The government and media are absent. The patients listed here are only the patients that need help desperately now. Some bought one way tickets to Japan, sold their cars, their houses, they have children and families. These are the patients that need help now, the other patients are stepping back because these are the ones that need help now. THIS IS SURVIVAL .......not just help. Most of us have had 5 years of not working, medical bills, supplements, medications, and various expensive experimental treatments. Please share with others APRIL gofund.me/ccd3e3e7e KELLY gofundme.com/f/help-our-mom… LAUREN givesendgo.com/LKmedicalfund DAN givesendgo.com/send-a-veteran… MEL givesendgo.com/help-me-fight-… KELSEY givesendgo.com/help-former-er… If you wish to donate to the other patients please reach out and we will share those links. @MaryBowdenMD @CharlesRixey @HouseLyndseyRN @KevinMcCairnPhD @Kevin_McKernan @CoyoteSanctuary @KenCaptn20114 @
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April
April@AprilWW911LC·
@morink Thank you. Yes plz. More awareness. We have options and we need data points to make informed decisions and put pressure out there to help us.
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Kira Morin
Kira Morin@morink·
@AprilWW911LC I can only imagine the hope you feel. Really looking forward to seeing the treatment give you your life back! I hope to follow in your footsteps and make my own journey to Japan soon 🇯🇵 sending prayers and light!
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April
April@AprilWW911LC·
Heading to CO MIPS today for my iliac vein stent 6/30 for the May Thurner Syndrome Dr Jordan Vaughn found. Then I am off to Japan- Edogawa- McCairn protocol. Getting all the plumbing opened before we filter out the micro clots. T minus 19 days and counting. Thank you for all your support. If you are able and feel compelled to help please see my GFM below and feel free to share. Spike really took my life. I promise to bring any data back to the US to help progress treatments here. gofund.me/670e2b890
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April
April@AprilWW911LC·
@barrydorsey Agreed yes plz follow along. Honestly scared and humbled and am grateful for any thoughts and kindness.
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Barry Dorsey
Barry Dorsey@barrydorsey·
@AprilWW911LC Good luck, April! I’ll be praying for you. Dr. Vaughn is my doc too and he is the real deal.
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April
April@AprilWW911LC·
Dr McCairn and Dr Jordan Vaughn have reviewed my blood slides. Determined to be 3.5 of 4 and severe microclots. Despite so many treatments and protocols and every penny of my life savings, selling my van, my car and trying to sell my house. Here we go! MIPS for iliac vein stent 6/30 (open the plumbing that spike damaged) then Japan 7/17. 19 days and counting. GFM link is in my profile if you feel compelled to help. Much gratitude for the support of the Japan team, Dr Vaugh, Stephanie and my family. Let’s do this!
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April
April@AprilWW911LC·
@klmatter Yes. + bart and borelia. PICC and 9 months abx finally negative but have continued to worsen.
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Kyle
Kyle@klmatter·
@AprilWW911LC Have you done any testing for reactivated tick-borne disease/vector borne disease?
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April
April@AprilWW911LC·
@CMario90914478 We are working on it. But not yet. All the pheresis in the US has donor products
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C. Mario
C. Mario@CMario90914478·
@AprilWW911LC Is there anyone in the states who offers similar protocols ?? Or planning to?
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April
April@AprilWW911LC·
Agreed friend! Medicine has lost its curiosity. My goal is to bring back some data points. Lets collaborate! Let’s get well enough to get back to work and help the others who are suffering and harmed. He and his team are amazing! Limited to a degree by bureaucracy, but curious and truly seeking what is best for patients.
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Barry Dorsey
Barry Dorsey@barrydorsey·
@seanstidston @AprilWW911LC He’s the only doctor I’ve encountered on this journey who I can bring Internet/AI treatment theories and instead of chastising, he treats me as a partner in my treatment plan and looks at it. I can’t say enough good things about him (and his LC staff: Stephanie & Alicia)
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April
April@AprilWW911LC·
@fpscod9 Thank you so much for the kind words. Needed those today. Long Smokey drive to CO.
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April
April@AprilWW911LC·
Dr Vaughs team has helped. F*cking hate pacing but have learned the hard lessons. Visible and Oura. An amazing supportive husband @SlowIsFast100, momma and finally after 6 yrs found my care team. It’s all an experiment right!?. I know enough to know if I don’t do something I won’t be here much longer. I am all in. Let’s do this!
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Wunderlust
Wunderlust@Wunderlust_100·
@AprilWW911LC You've been so brave. I realize that I most likely need to sell everything to get medical treatment done. But, it's so stressful. And I have no energy to do it all. How on earth did you find the energy,?!
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April
April@AprilWW911LC·
@CFSCentral Thank you Mindy. Fully expect MCAS to become worse before better. A lot collateral pathways have to die for my natural plumbing to take back over. But I did my research, am confident in my teams and honestly don’t have a lot of options. So here goes.
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April
April@AprilWW911LC·
Have had 4 consults, the USs and the MRV. All the symptoms and worsening every month. The hEDS doesn’t help. I am afraid it’s pretty conclusive. Believe me I didn’t want to acknowledge it either. Even the L renal has some mild compression but the iliac is severe and my leg is changing color and temp now and can’t keep my BP up. Am testing HRV and BP daily for my own research too. Sorta in it now. See you soon!
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Kevin W. McCairn PhD
Kevin W. McCairn PhD@KevinMcCairnPhD·
@AprilWW911LC I wouldn't bother with the stent yet, have a contrast CT done at Edogawa to see if if there actually is occlusion. And do the treatment first in Japan, before having invasive surgery.
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April retweetet
Heather C
Heather C@Burning_mama47·
We have some patients desperate for financial help. Last resort. PLEASE SHARE. These injuries have humbled us, brought us to our knees. It is not easy for us to do this. The government and media are absent. The patients listed here are only the patients that need help desperately now. Some bought one way tickets to Japan, sold their cars, their houses, they have children and families. These are the patients that need help now, the other patients are stepping back because these are the ones that need help now. THIS IS SURVIVAL .......not just help. Most of us have had 5 years of not working, medical bills, supplements, medications, and various expensive experimental treatments. Please share with others APRIL gofund.me/ccd3e3e7e KELLY gofundme.com/f/help-our-mom… LAUREN givesendgo.com/LKmedicalfund DAN givesendgo.com/send-a-veteran… MEL givesendgo.com/help-me-fight-… KELSEY givesendgo.com/help-former-er… If you wish to donate to the other patients please reach out and we will share those links. @MaryBowdenMD @CharlesRixey @HouseLyndseyRN @KevinMcCairnPhD @Kevin_McKernan @CoyoteSanctuary @KenCaptn20114 @
Ken Evans@EdogawaPatients

We have some patients desperate for financial help. Last resort. PLEASE SHARE. These injuries have humbled us, brought us to our knees. It is not easy for us to do this. The government and media are absent. The patients listed here are only the patients that need help desperately now. Some bought one way tickets to Japan, sold their cars, their houses, they have children and families. These are the patients that need help now, the other patients are stepping back because these are the ones that need help now. THIS IS SURVIVAL .......not just help. Most of us have had 5 years of not working, medical bills, supplements, medications, and various expensive experimental treatments. Please share with others APRIL gofund.me/ccd3e3e7e KELLY gofundme.com/f/help-our-mom… LAUREN givesendgo.com/LKmedicalfund DAN givesendgo.com/send-a-veteran… MEL givesendgo.com/help-me-fight-… KELSEY givesendgo.com/help-former-er… If you wish to donate to the other patients please reach out and we will share those links. @MaryBowdenMD @CharlesRixey @HouseLyndseyRN @KevinMcCairnPhD @Kevin_McKernan @CoyoteSanctuary @KenCaptn20114 @

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April retweetet
Heather C
Heather C@Burning_mama47·
I sold my car and flew to Japan because my own country wouldn't even acknowledge I existed. Five years of suffering, dismissed by every doctor, denied every treatment. And now the one person in government who at least said our names out loud may be on his way out. We were never a priority. We were a talking point. The vaccine injured will be the last ones helped and the first ones forgotten. We already know what it feels like to be abandoned. This is just more of the same. 💔
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April retweetet
Kenny Carmody
Kenny Carmody@KennyCarmody·
The most important public health finding of the last six years is not about the virus. It is not about the vaccines. It is about the simultaneous, coordinated, six-year silence of every major government on earth on the question of who was harmed and whether they matter. Full piece on Substack. Read it and share it with someone who needs to.
Kenny Carmody@KennyCarmody

x.com/i/article/2065…

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