@Atherton_HC It was - mainly, iirc, due to issues with multi stage sampling of GP practices within PCTs
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Chris Graham
3.3K posts
Chris Graham
@ChrisGrahamUK
Goodbye Twitter. We had some good times, but nothing lasts forever. Find me on Blue Sky: https://t.co/Uxm6J5Kb7O
Beigetreten Mayıs 2011
594 Folgt850 Follower
@ChrisGrahamUK No comment 😂 I am irritated at myself for not knowing this! I do now remember Karen mentioning something relating to this being tricky though!
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Very much looking forward to sharing the results!
NHS Diabetes Programme@NHSDiabetesProg
The results from the first ever National Diabetes Experience Survey will be published on 10 December 2024, helping NHS leaders to make informed decisions about how to best support people living with diabetes and to design diabetes services based on what really matters to them.
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I'm trying to join the eXodus and move to BlueSky - but it's hard to get started and build up my feed. If you're on there, please consider following me at bsky.app/profile/chrisg… so that I can follow you back.
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Chris Graham retweetet
🧵
Shortly, our Chief Executive @jacoblant will be part of a panel at @NHSProviders #NHSP24
⏲️10:25 📍Auditorium
He'll be challenging Darzi's diagnosis that "the patient voice is not loud enough" - pointing to the volumes of patient experience evidence gathered by the system
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@jacoblant I see what you mean. Undoubtedly pt experience, outcomes, etc should be vital measures of NHS quality, & there most definitely are robust data suitable for high stakes usage.
League tables create v. particular requirements though: a big challenge for many measurement areas.
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@jacoblant It's not that these things are hard to measure: it's that the measures produce estimates, not parameters, so uncertainty is a feature. You can find trusts that are better or worse than average, but you can't rank them all - too many overlapping confidence intervals.
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@JeremyTaylorNB @elonmusk It's not just you - there has been a massive drop off in engagement on here. It's a shame
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I used to enjoy tweeting. A certain number of people would notice & respond. Now it's like shouting into the void. I comfort myself by blaming that bloviating skidmark @elonmusk & his noxious algorithms but it's also possible that I have just become more tedious
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POV: someone has said something nice about you, but it's a bot account
GIF
Ella@alzmalzm009
@nailawadi @ChrisGrahamUK @CAlexanderNHS @shanedegaris @PEN_NEWS @martinworwood @AlisonG13100467 That keynote by @ChrisGrahamUK was so insightful! It's amazing to see how roles are evolving to bridge insights and patient experience. Exciting times ahead for us in this field! 🌟
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Chris Graham retweetet
#PENNA24 keynote presentation @ChrisGrahamUK Group CEO of Picker on using insights for understanding and improving person centred care. Nicely articulated why roles like mine increasingly span both insights and patient experience! @CAlexanderNHS @shanedegaris @PEN_NEWS
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Chris Graham retweetet
@ChrisGrahamUK @alf_collins It's difficult for a 'true partnership' to be achieved, when the power dynamics between #clinician and #patient are so unequal. I'm not sure the power imbalance will ever change. Whilst it remains so, 'self-determination' and 'patient involvement' will be 'gifts kindly bestowed.'
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@Lesley5856 @alf_collins @PSCommissioner @rachelpower222 Miranda Fricker's book "Epistemic Injustice" is the seminal text, and I like Havi Carel's "Illness" - but for a shorter introduction in the context of health and coproduction, this blog by @itsmyamygdala is good: coproductioncollective.co.uk/news/epistemic…
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@alf_collins @ChrisGrahamUK @PSCommissioner @rachelpower222 Can you give any examples @alf_collins ?
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I’m struck that ‘putting patients at the centre of care’ (horrible/useless phrase) often means delivering a kind of benign paternalism to grateful recipients- a long way from co-creating health. Reckon those of us who care about this need to be clearer about the difference.
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@alf_collins @PSCommissioner @rachelpower222 Agree - I particularly like Havi Carel's book Illness, which combines philosophy and lived experience in addressing this. Pity 'epistemic injustice' isn't very plain English!
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@ChrisGrahamUK I’ve been impressed by some of the ‘epistemic injustice’ (surely there is a better description- feels very academic) work that @PSCommissioner and @rachelpower222 have drawn my attention to. Feels relevant and important though again we need to simplify the language.
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Moving article in @JAMA_current from a clinician experiencing hospital care as a family member - well worth a read: jamanetwork.com/journals/jama/…
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Great piece from @acpatient @tessajlrichards @ceineken:
"Patients ... are saying it loud and clear—we want full interactive access to our medical records through well designed apps or portals that we can use to inform our decisions and manage our care."
bmj.com/content/386/bm…
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Chris Graham retweetet
"Patient feedback should be welcomed for the insights it can offer into the quality and safety of healthcare, particularly when it comes to staff blind spots or failings in institutional culture."
@jamesfm55 @careopinion on the value of patient feedback
bmj.com/content/386/bm…
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@TheKingsFund @mancunianmedic @BeccyA I would urge caution in interpreting the 'overall' question. The change in survey methods doesn't just make comparisons difficult - differences on other Qs suggest that any comparison to previous data may be completely unreliable. And the result in isolation is not great.
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There are 'glimmers of hope' in this year's GP Patient Survey, an annual survey of patients' experiences of primary care. Read @BeccyA's response in full ⬇️ kingsfund.org.uk/insight-and-an…
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Maybe this is a petty example but it's typical of the lack of thought for UX in NHS online services. Not only does it fail to respect users' time, but it prevents services from benefiting from digital platforms. A wasted opportunity.
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I would prefer to be able to book GP appointments online: it's how I interact with just about every other service I ever deal with. But If I absolutely have to call or visit in person, why can't the site just say that instead of offering four dead ends?
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Oh.
On the bright side, this site does offer me the opportunity to pay for a private virtual GP appointment. #patientchoice
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