ECMTF European CMT Federation

@ecmtf is are glad to announce that the US association @cmtausa joined the European CMT Association as Associate Member. Together, we are stronger! #CMT #cmtawareness #raredisease #neuropathy

@ecmtf We are delighted to welcome the CMT Research Foundation as an Associate Member of the European CMT Federation community. Together, we are stronger! @CMTRF #CMT #charcotmarietooth

Advanced new therapy for #CMT. To know more read the Press Release: bit.ly/3y5JDse #cmtawareness #raredisease #neuropathy

Congratulations to Derek, Gwen and Michael! You’re the winners of the “Talk-CMT” Competition in collaboration with Talk-CMT and SockingClumsy! #CMT #charcotmarietooth @rarediseaseday

@ecmtf Congratulations to Derek, Gwen and Michael! You’re the winners of the “Talk-CMT” Competition in collaboration with Talk-CMT and @SockingClumsy! #RareDiseaseDay2023 #CMT #cmtawareness

Rare is many! Rare is strong! Rare is proud!

Today is #RareDiseaseDay2023. We’ll be announcing the winners for the “Talk-CMT” Competition in collaboration with Talk-CMT and @SockingClumsy at 16:00CET. Watch this space! #CMT #charcotmarietooth #cmtawareness

The onset of a rare disease in childhood often causes a very severe form of the disease. #CMT #RareDiseaseDay

While the judges review the entries for the “Talk-CMT” Competition, please take a few moments to learn about #CMT ahead of #RareDiseaseDay2023 by reading this infographic. #charcotmarietooth #cmtawareness

75% of rare diseases are of genetic origin

Thank you to everyone who entered our global “Talk-CMT” Competition held in collaboration with Talk-CMT and @SockingClumsy. Winners will be announced on #RareDiseaseDay, 28 February. Good luck! #CMT #charcotmarietooth #cmtawareness

Today’s the last day to submit your entry for our ‘Talk CMT’ Competition for a chance to win and raise #CMTawareness. Learn about CMT: #what-is-cmt" target="_blank" rel="nofollow noopener">cmt-awareness.com/#what-is-cmt For entry criteria: bit.ly/3XWikvB

Don’t forget to send in your entry for the ‘Talk CMT’ Competition by 17.00 CET, 20 Feb for a chance to win and to raise #CMTawareness. Learn about CMT: #what-is-cmt" target="_blank" rel="nofollow noopener">cmt-awareness.com/#what-is-cmt For more information: bit.ly/3XWikvB

@ecmtf If you are 18 or over and you have been diagnosed with #CMT, you can take part in research exploring the lived experience of adult CMTs. Information: bit.ly/3YxjNZg email: krishna2.talsania@live.uwe.ac.uk #charcotmarietooth

#rarediseases currently affect from 3.5 to 5.9% of the worldwide population. #CMT #RareDiseaseDay

There are more than 6000 rare diseases

There’s just over a week left to enter the ‘Talk CMT’ Competition to mark #RareDiseaseDay. Submit by 20 Feb for a chance to win and raise #CMT awareness. Learn about CMT: #what-is-cmt" target="_blank" rel="nofollow noopener">cmt-awareness.com/#what-is-cmt For more information: bit.ly/3XWikvB

Rare diseases currently affect 30 million people in Europe and 300 million worldwide.

Send in your entry for the ‘Talk CMT’ Competition. Watch this video to learn more about Socking Clumsy: instagram.com/p/CoMdqZ9Mnwe/ Here the contest criteria: bit.ly/3XWikvB #CMT #rarediseaseday2023 #cmtawareness

Save the date! On 28 February, #RareDiseaseDay2023 will be celebrated all over the world! The countdown begins! #CMT #cmtawareness #rarediseases