CMT Research Foundation

This year, your support helped CMTRF advance seven new research projects. We have additional projects ready to move forward, and your gift today will help ensure that this vital momentum continues into 2026. Double your donation before midnight: cmtrf.org/donate

2026 holds promise for CMT patients and their families, and all donations made today are doubled. Please consider making your tax-deductible year-end donation. Together, we can carry this critical work into the new year with even greater momentum: cmtrf.org/donate

We’re excited to invite you to save the date for the 2026 Global CMT Research Convention, happening September 24th-26th in Cambridge, Massachusetts. More details will be announced in the coming months — mark your calendar now and plan to be part of the momentum.

We hope that before you ring in the New Year, you will consider supporting CMTRF with a tax-deductible donation to help fund treatments and cures for all types of CMT. Double your impact at a povital moment: cmtrf.org/donate

Shayla shares what the Greatest Gift truly means for families living with CMT. 💙 Every donation supports vital research—and all gifts are DOUBLED through Dec. 31 thanks to the Bentzin Family Foundations (up to $150K). 🎁 cmtrf.org/the-greatest-g… 🎥 youtu.be/AX-CPpW4rnA

The CMT Research Foundation recently hosted a webinar with 82VS Venture Partner, Dr. Carlos Loya, PhD., who shared early encouraging results from this CMTRF-funded project. Watch the replay: youtube.com/watch?v=w5inf3…

Live CMTRF webinar with 82VS on Thursday, December 11, at 7 p.m. ET via Zoom. There is no cost to attend. To register, visit cmtrf.org/webinars/

“CMT is part of my life, but it doesn’t define it. Your support helps make sure it never has to.” ⏳Every gift made before midnight will be TRIPLED! Give today. Triple your impact. Help protect the moments that matter most. Donate now at cmtrf.org/the-greatest-g… #GivingTuesday

TRIPLE YOUR DONATION! Today is #GivingTuesday and all donations made before midnight are matched 3x! By tripling your donation, you’re directly fueling progress in the fight against Charcot-Marie-Tooth disease. Donate: cmtrf.org/TheGreatestGift

While the world chases Black Friday bargains, families living with CMT are longing for something you can’t find in any store: the chance to hold onto their independence and reclaim movement that CMT threatens to take away. DOUBLE your impact today: cmtrf.org/the-greatest-g…

Every December, Kaileen looks for light. Not just the glittering bulbs strung across her Canadian neighborhood — but the kind of light that reminds her that hope still exists. cmtrf.org/lighting-the-f…

Help Deliver the Greatest Gift to Families Living with CMT Thanks to the Bentzin Family Foundations, your donation will be DOUBLED up to $150,000 through December 31. Learn more at cmtrf.org/the-greatest-g… youtu.be/NUajlDmIZ1c?si…

Join us for an exclusive live webinar on November 6, at 7:00 p.m. ET featuring Asha Therapeutics Co-Founder, President and Chief Scientific Officer Dr. Bradlee Heckmann, PhD, and CMTRF CEO Laura M. MacNeill, MBA. There is no cost to attend. Register: cmtrf.org/webinars

CMTRF is deeply grateful to be the beneficiary for Alan Jackson's Last Call: One More for the Road - The Finale — June 27, 2026, at Nashville’s Nissan Stadium. For every ticket sold, $1.00 will be donated to CMTRF & matched by $2.00 from a generous donor alanjackson.com/news/alan-jack…

Today is the Patient Experience at the 5th annual Global CMT Research Convention.  JOIN VIRTUALLY NOW: cmtconvention.cmtrf.org The programming begins at 9 am ET.

CMT Research Foundation announced they have funded @elpidatx to launch manufacturing of a gene therapy drug for Charcot-Marie-Tooth disease type 4J. cmtrf.org/cmt-research-f…

We are 1 week away from the Global CMT Research Convention, taking place September 25-27 at the Royal Sonesta in Cambridge, MA. Be sure to secure your in-person or virtual tickets today so you don’t miss out on the leading CMT research event of the year! cmtconvention.cmtrf.org

Vera Kiyasova, Director of Clinical Development at NMD Pharma, is heading to Cambridge, USA to present at the @CMTRF’s 2025 Global CMT Research Convention. Taking place from 25-27 September, this event is focused on connecting individuals living with Charcot-Marie-Tooth disease (#CMT) with researchers, industry partners, investors, and regulatory agencies looking to develop new therapeutic approaches and, ultimately, a cure for this rare hereditary neuropathy. Vera’s presentations will take place on 27 September during the ‘Patient Experience’ Day, which NMD Pharma is also sponsoring. The first, ‘From Discovery to Delivery – the Life Cycle of Drug Development,’ is being held from 9:30-10:00EDT and will provide key insights into the #DrugDiscovery and development processes, as well as necessary regulatory procedures that must be undertaken to bring a treatment to patients. In addition, from 13:00-13:15EDT, she will also provide key information on NMD Pharma’s ongoing Phase 2 #ClinicalTrial in patients living with CMT Type 1 and Type 2 during the ‘Current and Emerging Clinical Trials for CMT’ session. We’re looking forward to connecting with the global CMT community at this event – join us to learn more about working to enhance muscle function and endurance in individuals living with neuromuscular diseases. For the full event agenda visit: cmtconvention.cmtrf.org #CMTRF #Conference #NMDPharma #Biotech #Innovation #CharcotMarieTooth #NeuromuscularDisease #RareDisease

CMTRF is proud to welcome Dr. Meghan Drummond, PhD, as our new Vice President of Research and Drug Development! She will lead the Foundation’s research and drug development strategy, overseeing the advancement of promising therapeutic approaches for CMT. cmtrf.org/dr-meghan-drum…

CMTRF is proud to invest in the next generation of scientists leading the way in CMT research. Through our Emerging Researcher Award program, we’ve awarded funding to four bold, high-impact projects that span multiple CMT subtypes. cmtrf.org/cmt-research-f…