RareDNA Foundation

Last day to order from our new merch store! A portion of each sale goes towards our campaign! You can even donate extra if you wish! 😉 Store link: bit.ly/41vjhic #standingwithclaire #genetichearts #HeartbeatforHope #RareDNA #PPA2

As AAU basketball season is underway & we once again enter the gym as a family. It hits differently. Claire survived, @PGHMinnesota did a wonderful story on why we are fighting each day to raise funds for life-saving research. #PPA2 @UMNews Support here rarednafoundation.org/fundraiser

Only one week left! ⏳ Our store is still open—but not for long! Don’t miss your chance to shop, support, and make an impact before it closes. Every purchase helps 💙 Shop now! bit.ly/4cvym9v #RareDNA #genetichearts #heartbeatforhope #standingwithclaire #PPA2

Happy Easter! He is Risen ✝️ We do not underestimate the power of our God. As Claire said in an interview this year, “God saved me for a reason…” Thank you to each of who who is part of this next chapter of her story.

13 days left to support research for #PPA2 at the UofM. Who do you donate in honor of? your athlete, who still gets to play? Someone with Heart Failure? Someone who survived #SCA? Someone with #Raredisease? Someone with #genetichearts? Donate here: paypal.com/us/fundraiser/… #Rare

A powerful moment in rare disease research 💙 Claire shares the beginning of groundbreaking stem cell work for #PPA2. Your donation fuels the next discovery & save lives! 👉 Donate today to keep the momentum going. rarednafoundation.org/fundraiser #standingwithclaire #HeartbeatForHope

Like to shop? Want to feel good about supporting our mission at the same time? Check out our NEW merch! A portion of each sale goes towards our #30dayfundraiser challenge! @Bonfire store bonfire.com/store/raredna-… #standingwithclaire #PPA2 #genetichearts #heartbeatforhope #rareDNA

Grateful to hit our first milestone of $2,500 in the RareDNA Foundation 30 Day Challenge 💙 We’re still pushing toward our $20K goal—please keep sharing and supporting to help us get there. Donate: rarednafoundation.org/fundraiser #GeneticHearts #HeartbeatForHope #StandingWithClaire #PPA2

There is still time today for this!! A BIG thank you to those who have already supported. Who knew Claire’s bday was such a big deal 😉🩵

For TODAY only! March 25th 2026 🎉 Donate $50 or more and get a free t-shirt from us! Details below 👇 Donate 🔗 : rarednafoundation.org/fundraiser #standingwithclaire #30daychallenge #PPA2 #genetichearts #heartbeatforhope #RareDNA

A little update from our President & Co-Founder (also known as mom 😉) 30 Day Challenge is going strong! Every $ counts! Donate here today: rarednafoundation.org/fundraiser #genetichearts #standingwithclaire #heartbeatforhope #30daychallenge #RareDNA #PPA2

We are doing things a bit differently today, sharing a caringbridge post. Experience our 10 month journey. Thank you to all of our supporters. Soon research can begin & answers will be found. #standingwithclaire  #HeartbeatForHope #genetichearts  #rareDNA bit.ly/3PxmRW4

Will you be the one to help us reach our first milestone? Every dollar brings us closer to advancing precision research dedicated to PPA2 deficiency. Donate today and be part of something life-changing: rarednafoundation.org/fundraiser #PPA2 #RareDNA #HeartbeatForHope #standingwithclaire

Thank you for helping to spread awareness of our 30 day challenge! Appreciate you @chadgreenway52 Proving this is bigger than basketball. Always been one of Claire’s biggest supporters when she played and standing by her in this next chapter. 🩵

Incredible launch day for our #30DayChallenge! 🩵 Help us hit $2,500—or go big and push us to $5K. Every share spreads awareness for #PPA2. Donate: rarednafoundation.org/fundraiser #HeartbeatForHope #standingwithclaire #genetichearts #mymitostory

This is our WHY. What’s yours?Answers are waiting for Claire and the others who have survived sudden cardiac events, but only if the research can be funded. We’re on a mission to raise $20K in 30 days! Donate: rarednafoundation.org/fundraiser #HeartbeatsForHope #standingwithclaire #PPA2

@ForumKamdar @UMN_DCVM So honored to partner with you @ForumKamdar and @UMN_DCVM Direct link to donate can be found here: rarednafoundation.org/fundraiser

Understanding PPA2 heart disease is critical for developing new therapies for this devastating mitochondrial disease. Proud to partner with the RareDNA Foundation Foundation to advance our understanding of PPA2 🫀! @UMN_DCVM #Raredisease

@GMacHoops @ClaireStern11 @NDSUwbb @MGGirlshoops Thank you for sharing @GMacHoops! A direct link to our fundraising page can be found here: rarednafoundation.org/fundraiser

Please support @ClaireStern11 & @rarednafound to help fund PPA2 heart research. Read the remarkable story about this @ndsuwbb sophomore & @MGGirlshoops graduate: prepgirlshoops.com/2026/01/the-da…

Donate here! rarednafoundation.org/fundraiser

The 30-Day Challenge starts now! $20,000 for PPA2 Heart Research to support life-saving research @ the University of Minnesota. Follow along, share, & help us reach this together. ❤️ #heartbeatforhope #standingwithclaire #geneticheart #suddencardiacarrest #cardio #mymitostory