DIPG Resource

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DIPG Resource

DIPG Resource

@DipgResource

An online resource (in progress) for families of children diagnosed with DIPG. Pardon the dust on our website. It’s an ongoing project 🎗

Ohio, USA Se unió Ekim 2017
153 Siguiendo182 Seguidores
DIPG Resource retuiteado
Claire McCaskill
Claire McCaskill@clairecmc·
Ironic isn’t it? Mitch McConnell stealing a Supreme Court seat cost him his last chance at being Leader McConnell.
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DIPG Resource
DIPG Resource@DipgResource·
@KFILE @timihaworth Amazing news for the childhood cancer community. It’s not well known, but Neil Armstrong lost a daughter to the same type of brain cancer as Gabriella - DIPG. If we can put a man on the moon, we can cure childhood cancer.
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Andrew Kaczynski
Andrew Kaczynski@KFILE·
I have some truly incredible news. The bipartisan Gabriella Miller 2.0 Act was just introduced into the Senate by two Republicans and two Democrats. Passage of this bill would mean hundreds of millions of more dollars for pediatric cancer research. cassidy.senate.gov/newsroom/press…
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DIPG Resource
DIPG Resource@DipgResource·
Huge thank you to Patrick Byrne from @RepMarciaFudge’s office for meeting with the DIPG Advocacy group to help us get H. Res. 114 Moonshot4Kids passed!
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DIPG Resource retuiteado
𝐌𝐢𝐭𝐜𝐡 𝐀𝐥𝐛𝐨𝐦
3 yrs ago today, we said goodbye to our most precious little girl, Chika, on a sunny April afternoon, not unlike one in her homeland of Haiti. Although she survived an earthquake when she was three days old, she ultimately lost her battle with a terrible disease, #DIPG at 7 ...
𝐌𝐢𝐭𝐜𝐡 𝐀𝐥𝐛𝐨𝐦 tweet media
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DIPG Resource retuiteado
Tiffany
Tiffany@TuffTiffResists·
Now that the CDC is recommending people wear masks, here is a neat video to show how to make one that should work as well as the N95 style ones. youtu.be/W6d3twpHwis
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DIPG Resource retuiteado
Jack's Angels
Jack's Angels@JacksAngels1·
We need you! YOU can help attach HOPE to pediatric brain cancer, the #1 cause of childhood mortality due to cancer. Please just do it it's so easy! One click! bit.ly/HOPE-HRes114
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DIPG Resource
DIPG Resource@DipgResource·
@DefeatDIPG I feel your pain. Jacob and I spent his last months snuggling on our sectional couch watching tv. He loved it so much, that's where he wanted to be when he died. I had the hardest time getting a new couch, and held out until it was literally falling apart.
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DIPG Resource retuiteado
Tiffany
Tiffany@TuffTiffResists·
@Adonna_Biel - help us get Joe to endorse our #Moonshot4Kids! DIPG is similar to what Beau had, except it’s in the brain stem and affects mostly kids. We’ve got H. Res 114 in the House, but it’s not really going anywhere. We need Joe’s support! dipgadvocacy.org
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DIPG Resource retuiteado
Tiffany
Tiffany@TuffTiffResists·
@meghan_hays9 - help us get Joe to endorse our #Moonshot4Kids! DIPG is similar to what Beau had, except it’s in the brain stem and affects mostly kids. We’ve got H. Res 114 in the House, but it’s not really going anywhere. We need Joe’s support! dipgadvocacy.org
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DIPG Resource retuiteado
Tiffany
Tiffany@TuffTiffResists·
@Emma_E_Riley - help us get Joe to endorse our #Moonshot4Kids! DIPG is similar to what Beau had, except it’s in the brain stem and affects mostly kids. We’ve got H. Res 114 in the House, but it’s not really going anywhere. We need Joe’s support! dipgadvocacy.org
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DIPG Resource
DIPG Resource@DipgResource·
Hey @JTOBrown - help us get Joe to endorse our #Moonshot4Kids! DIPG is similar to what Beau had, except it’s in the brain stem and affects mostly kids. We’ve got H. Res 114 in the House, but it’s not really going anywhere. We need Joe’s support! dipgadvocacy.org
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DIPG Resource retuiteado
Defeat DIPG®
Defeat DIPG®@DefeatDIPG·
We share Vivian Rose Weaver’s passing with deep sorrow in our hearts. Vivian surpassed some odds for DIPG, but it’s not nearly enough time for this beautiful little girl to shine in this world. But with her time — shine she did. 💗 From @vivianrosedipg: facebook.com/35129426872562…
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DIPG Resource
DIPG Resource@DipgResource·
@HappyQuailPress I met Lauren at one of her fundraisers. I’ll never forget the hug she gave me when her dad told her I lost my son to DIPG. She was one of a kind ❤️
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DIPG Resource
DIPG Resource@DipgResource·
@TDucklo - can you pass this along to VP Biden? I know he’s busy with the campaign and wouldn’t be able to attend, but we would love for him to give us a “shout out”. #Moonshot4Kids #CureDIPG
Jack's Angels@JacksAngels1

@VPBiden @NASAArmstrong please be aware of our #Moonshot4Kids, the DIPG Awareness Resolution for pediatric brain cancer, the #1 cause of cancer-related death in children. It's first introduction was the day after Vice President Biden's Cancer Moonshot Initiative was introduced.

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