Zack Pemberton-Whiteley (he/him) retweeté
Zack Pemberton-Whiteley (he/him)
7.1K posts

Zack Pemberton-Whiteley (he/him)
@ZPWHITELEY
#PatientEngagement, #PatientAdvocacy, evidence, questions, perspective, gifs, collaboration & @PGtips. Views my own, repost ≠ endorsement
United Kingdom Inscrit le Haziran 2016
1.1K Abonnements1.8K Abonnés


Thank you so much to everyone who has bought #PoliticsOnTheEdge this week - really honoured - and please tell me what you think 🙏

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Zack Pemberton-Whiteley (he/him) retweeté
Zack Pemberton-Whiteley (he/him) retweeté

Let's talk through the @LifeKitchen x @holland_barrett collection.
The WORLDS FIRST taste-enhancing food range for people living with taste loss whether that be from cancer, covid, old age or anything else!
Can we share to get it to the people who may need it?

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What a lovely surprise I had just now... instead of a ‘1:1 catch up call’, a chance to connect and say au revoir (but not goodbye) to #PatientAdvocacy colleagues. Thank you to everyone who joined or sent a Kudo message, and to @SamanthaNier for organising ❤️

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Zack Pemberton-Whiteley (he/him) retweeté

👩🔬@Torr_Bethany, Scientific Programme Manager in the ICR's Translational Genetics Team, discusses the #BRCA-DIRECT study at #ESMO23, showing how a digital service for genetic testing in #BreastCancer is as effective as traditional methods⬇️📹
@VJOncology
vjoncology.com/video/oydxupsh…
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Zack Pemberton-Whiteley (he/him) retweeté

Šarūnas Narbutas closing the last session for #CMLHZ23 talking about QOL survey - patient generated evidence!

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Zack Pemberton-Whiteley (he/him) retweeté
Zack Pemberton-Whiteley (he/him) retweeté

The 2023 Global Leukemia Experience Survey is available in various languages! It only takes few minutes to share your experience and let your voice be heard! START NOW: picker.fra1.qualtrics.com/jfe/form/SV_3l…
#BeLeukemiaAware #PatientSurvey

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I am honoured that my friend Elo from @HENZOKENYA has very kindly brought me a blanket at CML Horizons #CMLHZ23 @cmlnet all the way from Kenya 🇰🇪

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Packed room at #CMLHZ @cmlnet for @NScully_’s talk on using digital tools (including social media and AI) in #PatientAdvocacy


Germany 🇩🇪 English

A great example of policy work from @scicommchar - talking about how to balance priorities, internally and externally. And how many different ‘policy makers’ there can be to talk to. Work out who, how and why?
#CMLHZ23 @cmlnet

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Hochhaus reminds us that only 40% are eligible for TFR, and 50% relapse. So only 20% are ‘cured’ (he says we can argue the semantics of if it’s cured). And calls for work to improve. And @SharfGiora reminds us that’s only in the western world, and not the global reality #CMLHZ23
CML AdvocatesNetwork@cmlnet
🌟 To finish off day 1 at #CMLHZ23, Andreas Hochhaus, Menon Hari and Gerald Clements will be debating on What can we realistically hope for as advocates? and How much development is happening in CML in the future? Let's hear!
Berlin, Germany 🇩🇪 English
Zack Pemberton-Whiteley (he/him) retweeté

Our Network Director @SamanthaNier is leading a Chair Yoga session at #CMLHZ23 @cmlnet
Keeping everyone refreshed and concentrating for all the sessions!

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