CML AdvocatesNetwork

‼️Important Update: CML Horizons 2026 Postponed‼️ Following careful discussion, the CML Advocates Network Steering Committee has decided to postpone CML Horizons 2026 in Tbilisi, Georgia, due to the current situation in the Middle East and the impact this is currently having on international travel routes and airport operations across the region. While Georgia itself is not involved in the conflict, travel across neighbouring regions has been affected, which may create challenges for participants travelling from different parts of the world. For this reason, the Steering Committee felt it was most responsible to postpone the meeting so that our global community can travel with greater certainty. The conference will now take place on: Friday 13 – Sunday 15 November 2026 Tbilisi, Georgia If you have already registered for CML Horizons, please keep an eye on your inbox. An email from Lidija Pecova will be sent shortly explaining the details and next steps. Thank you for your understanding and continued support. We very much look forward to welcoming everyone to Tbilisi later this year.

On Rare Disease Day, we join the global movement to raise awareness and stand with all people living with rare diseases. As a network dedicated to chronic myeloid leukemia (CML), we understand the power of research, collaboration, and strong patient communities. We extend our solidarity beyond CML to every individual and family navigating life with a rare condition. Every rare story matters. Every voice counts. Every patient deserves access to timely diagnosis, effective treatment, and quality care — regardless of where they live. Together, we advocate for equity, inclusion, and hope for the entire rare disease community. #RareDiseaseDay #RareIsMany #CML #PatientVoices #GlobalHealth

Different cancers. Different journeys. One shared voice. This World Cancer Day, we stand united from CML to all cancers to support, advocate, and push for people-centred care. #WorldCancerDay #UnitedByUnique #CML #CMLAwareness #PatientAdvocacy

🔔 Don’t forget to register for #CMLHZ26! If you haven’t registered yet for CML Horizons 2026, now is the time. Join the global CML patient advocacy community in Tbilisi, Georgia, from 19–21 April 2026. 👉 Register here: cmladvocates.net/cml-horizons-2… ⚠️ Important reminder: If you may require a visa, please register as soon as possible so there is enough time for visa processing and invitation letters. We look forward to seeing you at #CMLHZ26! #CMLHorizons #CMLAdvocates #PatientAdvocacy

🌍World Cancer Day February 4th, 2026 | #UnitedByUnique World Cancer Day marks an important moment for the global cancer community to come together — to reflect on progress made and to highlight the work still needed in cancer care, policy, and support. Coordinated by UICC and supported by the European Cancer Organisation, this year’s theme “United By Unique” celebrates the distinct experience of every person affected by cancer and amplifies the human stories behind each diagnosis. It also calls for meaningful policy action to improve outcomes for everyone living with cancer. 📣 Explore ways you can take part in the campaign and access resources: worldcancerday.org/take-action 📅 A series of European-level events and initiatives are taking place before and during World Cancer Day — including a key session organised by the European Parliament Intergroup on Cancer & Rare Diseases on 3 February. Let’s stand together, across borders and communities, to drive change. 💛 #WorldCancerDay #UnitedByUnique #CancerPolicy #PatientVoice #HealthEquity

✨ #CMLHZ26 registration is now open! ✨ 📍 Tbilisi, Georgia 🗓️ 19–21 April 2026 CML Horizons 2026 will bring together CML patient advocates from across the globe to share knowledge, build skills, and strengthen our collective voice. 👉 Register today: cmladvocates.net/cml-horizons-2… #patientadvocacy

According to the experts, talking to children about cancer can be difficult, but the key to success is honesty. Read more on #CMLLIFE cml-life.com/articles/how-t… #cml #PatientSupport #PatientAdvocacy

Holidays can be hard when you aren't feeling well, but strategies like protecting your energy and setting boundaries can help make it easier. 👉 Read more on #cmlife: cml-life.com/articles/five-… #holidays #cml #advocacy #patientadvocacy #patientsupport

As the year comes to a close, the CML Advocates Network Steering Committee and staff would like to thank all our members, partners and friends for your dedication, collaboration and trust throughout the year. We wish you and your loved ones a peaceful holiday season, a Merry Christmas, and a healthy, hopeful New Year. Thank you for being part of our global CML community. ✨ With warm wishes, The CML Advocates Network Steering Committee & Staff

Protein is essential to building muscle, maintaining energy and overall health. Are you getting enough? 📖 Read more: cml-life.com/articles/eatin… #CMLLIFE #patientcare #patientadvocacy

🎊 Congratulations to our members Korea Blood Cancer Association (KBDCA) on celebrating 30 years of advocacy in 2025! Three decades of dedication to blood cancer patients, marked by a special anniversary event in Seoul, reflecting the power of collaboration and patient leadership. 👏 Thank you for your global impact and inspiration. #KBDCA30 #BloodCancerAdvocacy #PatientVoices

🆕 New On-Demand Course: Pediatric CML The Pediatric CML course is back — now in an on-demand format on the Blood Cancer Patient Advocates Academy platform! Learn how to better understand, support, and advocate for children and families living with CML. ✅ 3 modules | 7+ hours of e-learning ✅ English with Spanish subtitles ✅ Learn anytime, anywhere — free of charge! 📹Watch the course teaser: vimeo.com/1067249067 👉 Start now: academy.lepaf.org/course/pediatr… #BCPAA #PatientAdvocacy #BloodCancerSupport #PediatricCML #CML #Leukemia #FreeTraining #PatientSupport #LepafAcademy #BloodCancerPatientAdvocates #CronicCancer #LePAF #OnlineAcademy #HematologocialMalignancies #CMLAdvocatesNetwork

Did you know that the CML Advocates Network has a resource library that covers everything that you need to know about living well with CML? From nutrition to patient stories to interviews with experts, and so much more — in English, German, Spanish and Italian — CML Life is a growing library of information essential for every person living with CML. Check out one of the most recent stories on fatigue here: cml-life.com/articles/sleep… #CMLLife #cml #fatigue #PatientSupport

Empower yourself to support newly diagnosed blood cancer patients with confidence and compassion! 📢 The “Interaction with Newly-Diagnosed” course is now available as an on-demand, self-paced learning experience - offering more than 6 hours of e-learning across 3 comprehensive modules, plus bonus materials. What you will gain: ✅ Insights into the psychological profiles of patients with AL, CML, CLL, and MPN ✅ Practical tools for effective communication ✅ Guidance on building trust and providing reassurance at the most difficult time of diagnosis 🔗 Start learning today: academy.lepaf.org/course/interac… #BCPAA #PatientAdvocacy #BloodCancerSupport #NewlyDiagnosed #MPN #CML #CLL #Leukemia #AcuteLeukemia #FreeTraining #PatientSupport #LepafAcademy #BloodCancerPatientAdvocates #CronicCancer #LePAF #OnlineLearning #HematologocialMalignancies

Learn from world-class hematologists & communication experts! The “Building relationship with healthcare professionals-hematologists” course is now on-demand — free, flexible, and open to CML, CLL, MPN & AL advocates. 👉 On-demand: academy.lepaf.org/course/on-dema… #BCPAA #PatientAdvocacy #BloodCancerSupport #NewlyDiagnosed #MPN #CML #CLL #Leukemia #AcuteLeukemia #FreeTraining #PatientSupport #LepafAcademy#BloodCancerPatientAdvocates #CronicCancer #LePAF #OnlineLearning #HematologocialMalignancies

How Targeted Therapies Are Transforming Chronic Myeloid Leukemia Care #CML Author(s)Ryan Scott. Thanks @GCC_Cortes!!! @cmlnet @icmlf curetoday.com/view/how-targe…

At the recently held MPN/CML Patient Support Group Meeting held @marengoasia , Gurugram, on 17th October 2025, we asked the attending patients and caregivers to share their views on the meeting- here is what they had to say. @vijivenkatesh @themaxfndn @cmlnet @GMPNAN

🆕 New Report from @AcuteLeuk ! ALAN has released a landmark qualitative study exploring the experiences of informal carers supporting people with acute leukemia across 6 countries. The findings reveal a severe, multidimensional burden affecting carers’ emotional, physical, and financial wellbeing. Key insights include: 🔹 Balancing intense clinical tasks with work and family responsibilities 🔹 Reshaped relationships and shifting family roles 🔹 Carers becoming advocates and lay experts while neglecting their own needs The report also outlines practical recommendations for healthcare systems, employers, and policymakers. 👉 Read the full article & download the report here: cmladvocates.net/2025/11/21/ala… #carers #patientsupport #patientadvocacy #AcuteLeukemia

Strengthen collaboration with hematologists! Our on-demand course “Building relationship with healthcare professionals-haematologists” is open for CML, CLL, MPN & AL advocates. Learn anytime, anywhere – free & self-paced. 👉academy.lepaf.org/course/on-dema… #BCPAA #PatientAdvocacy #BloodCancerSupport #NewlyDiagnosed #MPN #CML #CLL #Leukemia #AcuteLeukemia #FreeTraining #PatientSupport #LepafAcademy #BloodCancerPatientAdvocates #CronicCancer #LePAF #OnlineLearning #HematologocialMalignancies