SclerodermaRF

Happy #WorldSclerodermaDay #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #RareDisease #Autoimmune #LifeChanging #UnknownCause #NoCure #Scleroderma #Raynauds #ConnectiveTissue #Collagen #Arthritis #InvisibleDisability #ChronicPain #DreamSnatcher #SclerodermaAwarenessMonth

Stay up to date with the latest #SSc science. Our February slide decks + Literature Highlights just went live on the #SclerodermaForum! Click here to explore: ow.ly/zQkF50YsVbS

#AutoimmuneDiseaseAwarenessMonth Eternal gratitude to Prof Denton @DameCarolBlack @RoyalFreeNHS #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch

#WorldKidneyDay blog.raynaudsscleroderma.co.uk/2018/06/denise… #SclerodermaFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging @RoyalFreeNHS

Hear from Professor Christopher Denton as part of our upcoming 'The Role of Autoantibodies in SSc'. Professor Denton will be discussing autoantibodies in the classification and stratification of SSc. He's joined by three expert speakers for this 90-minute discussion. Register for this live event here 👉 ow.ly/GW2E50YhvG7

@arthritisukorg Happy #AutoimmuneDiseaseAwarenessMonth DYK: The Scleroderma Unit @RoyalFreeNHS is celebrating it's 31st year anniversary at the annual family day, Saturday 16th May 2026, FREE to attend. #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds

💬 What is systemic sclerosis? #SystemicSclerosis is a rare autoimmune condition that can cause the skin and the connective tissue inside the body to harden and thicken. Find out more: arthritis-uk.org/information-an…

March #AutoimmuneDiseaseAwarenessMonth blog.raynaudsscleroderma.co.uk/2018/03/sclero… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch

UK physios 👋 Have 15–20 mins to help shape the future of osteoarthritis (OA) care? 🦵 ADOPT-OA is exploring how updated NICE OA guidelines are used in physiotherapy practice. 📋 Quick online survey 🎙️ Optional follow-up interview 🔗 Take part: app.onlinesurveys.jisc.ac.uk/s/salford/adop…

blog.raynaudsscleroderma.co.uk/2018/10/raynau… 50 shades of blue 🥶 #BlueMonday #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch #bluefingers

Woweeee 10 years ago!! eurordis.org/stories/living… #Grateful for Prof Denton and team 😇 @RoyalFreeNHS @RoyalFreeChty #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #SystemicSclerosis #Scleroderma #NoCure #UnknownCause #LifeChanging #RareDisease #Autoimmune @eurordis

Wishing you a very Happy 2026 💖 youtube.com/shorts/s_hGOWF… @RoyalFreeChty @NIHRtakepart #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch

blog.raynaudsscleroderma.co.uk/2018/12/celebr… 2025- Celebrating 27 years of being a patient @SclerodermaRF #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch

youtu.be/Mac9PGxsivI?si… Woweeee - 9 years ago since this Facebook live @SclerodermaNews 😱 still no cure 😭 My skin is 'cured' from scleroderma : blog.raynaudsscleroderma.co.uk/2017/04/my-ski… #SclerodermaFreeWorld #RaynaudsFreeWorld #Autoimmune #RareDisease #NoCure #BePartOfResearch #LifeChanging

100 days until #RareDiseaseDay 🥳🦓How research offers hope to those living with rare diseases rdn.nihr.ac.uk/news/rare-dise… @NIHRtakepart #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #BePartOfResearch

blog.raynaudsscleroderma.co.uk/2018/10/raynau… 50 shades of blue 🥶 Hibernation weather ❄️ #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch #Bluefingers

blog.raynaudsscleroderma.co.uk/2017/04/the-ra… Winter is my nemesis season 😱 #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch #winter #bluefingers #hibernation

October #RaynaudsAwarenessMonth raynaudsrf.blogspot.com/2019/10/the-ra… Raynaud's Awareness: raynaudsrf.blogspot.com/2020/03/raynau… #RaynaudsFreeWorld #Research #Raynauds justgiving.com/fundraising/ra… #Vasospasm #BlueFingers #BlueToes #DigitalUlcers #Gangrene #Amputation #VascularNeuropathy #BePartOfResearch

@InvDisabilities #InvisibleDisabilitiesWeek blog.raynaudsscleroderma.co.uk/2017/10/invisi… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch #invisibledisability

#WorldMentalHealthDay Every day I miss the old me blog.raynaudsscleroderma.co.uk/2017/04/my-job… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch

@Worldsclerofnd blog.raynaudsscleroderma.co.uk/2018/04/raynau… Digital ulcers are beyond painful 😭 #UnmetClinicalNeed #SclerodermaFreeWorld #BePartOfResearch

🚨 New #WSF Task Force picks: 📄 Digital ulcer treatment 📄 ILD-RISC tool 📄 Fatigue strategies 💡 Up to 50% of #VEDOSS patients progress in 5 yrs (EUSTAR).📺 Replay the webinar Academy platform: worldsclerofound.org/not-access/?me… #SystemicSclerosis #WSFAcademy

Wowee 12 years ago! Pick me up magazine 2013 blog.raynaudsscleroderma.co.uk #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch #Flashback