UltraRare Bio
171 posts
@UltraRareBio
A web3 collective at the intersection of science and art. Learn about #DeSci in UltraRare The Podcast: https://t.co/afeMRvityM
📢 Our #ARPA-HDash is underway! 🏆 🏃♀️ Submit your idea TODAY through the online portal! polyplexus.com/healthdash
Today we report in @ScienceMagazine a one-time base editing treatment for Spinal Muscular Atrophy (SMA), the leading genetic cause of infant mortality worldwide, affecting ~1 in 10,000 births. science.org/doi/10.1126/sc… PDF: drive.google.com/file/d/1H1k8AA… 1/17
The journey to a rare disease diagnosis can be long and difficult but these four rare disease warriors are on a mission to change that. 💪 Watch my @sxsw @ChanZuckerberg conversation with @DavidFajgenbaum, @bsw5020, and @TaniaSimoncelli. bit.ly/3Kld1BE #ad
🤩 We are excited to announce that we've closed a $4.1m fundraising round🌱 from strategic members including: • @pfizer Ventures • @ShineCapitalNYC • @L1Digital_ • @beakerdao • @SpaceshipDAO • @balajis • @bettslacroix and many more 🧵 forbes.com/sites/johncumb…
New Episode Alert 📣 Learn from mom, scientist and rare disease advocate Dr. @MadeleineOudin! We talk about her path to academia, her research studying cancer and neuroscience and more! Link: youtu.be/MBlCAMOVhTA Also available wherever you listen to podcasts.
How beautiful to see 10 cure roadmaps on its way to modeling the disease and finding a treatment. More 1-to-N coming through. Thanks @PerlaraPBC @eperlste open.substack.com/pub/perlara/p/…
It's here! Your brand new DeSci Landscape! Updated 10/14/2022 by @danielyse_ and @JocelynnPearl + input from the community. And once again we're seeing an amazing expansion of DAOs, projects, and categories. Let's check out who's here 👀
Susannah, a nano-rare child, receives personalized medicine with the hopes to halt her neurodegenerative disorder. Her experimental medicine was created by n-Lorem to address her unique genetic mutation; the ultimate in personalized medicine. NYT exclusive linktr.ee/nlorem
It's here! Your brand new DeSci Landscape! Updated 10/14/2022 by @danielyse_ and @JocelynnPearl + input from the community. And once again we're seeing an amazing expansion of DAOs, projects, and categories. Let's check out who's here 👀
I founded @PerlaraPBC in 2014 as the first biotech PBC. 9 years + 2 pivots later the business is not only profitable but growing and the first patient in a Phase 3 pivotal study sponsored by our first joint venture and family-led biotech @epalrestat will be dosed next week. 🧵👇
Mark your calendars for November 17th at 5pm PT / 8pm ET for a @Web3WomenInSci SciArt Happy Hour with @UltraRareBio!! Join us for a night of science-inspired painting 🎨, drawing, drinks 🍸, and catching up before the holidays pick up! discord.com/invite/P7kPtqR…
