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Chelsea (Lowry) Anderson
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Chelsea (Lowry) Anderson
@ChelseaAlowry
Psalm 139:14. Epilepsy awareness! ๐๐ Animal lover RDA 6.3.19โค4.20.20๐10.3.20๐คต๐ฐ๐ถ๐ฑ๐ฆ๐ฆ๐ฆ๐ฆ๐ฆ๐ฆ๐ฆ๐ฆ๐๐๐๐ฆ
Bergabung Mart 2011
37 Mengikuti64 Pengikut

@BrainAblaze To me, this is the same as someone saying they have absence seizures not convulsive and someone says "oh at least it's not a bad seizure"
What? I'm sorry. Maybe I'm not bruised, but I feel mentally exactly the same after an absence as I do a tonic clonic. Same migraine.
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We're sorry but hearing that your cat/dog also has #seizures may actually make us more skeptical that you understand what we, as humans with #epilepsy, go through. #EpilepsyAwareness
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@BrainAblaze My last seizure I was having conversations with people only I could see, walked around my house, outside, locked the door and out to the road to meet my husband who was picking me up. All while blacked out and seizing.
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There are many types of #seizures that don't involve convulsions. -- If you are a person with #epilepsy, is there something you do during a #seizure that goes against the norms of seizures presented in television and movies? #EpilepsyAwareness
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@BrainAblaze My husband does a "race to end epilepsy" every year raising money for the epilepsy foundation of America. He designs a race car on iracing and races it. People get excited to donate because he puts their name on the car as well as those he knows fighting epilepsy
Last years car!



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Do you fundraise for #epilepsy awareness or research? If so, with which organization? If not, what is holding you back? #EpilepsyAwareness
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@BrainAblaze I'm a nanny currently, but have been a preschool teacher the last 4 years. (I've only had one seizure in my time of caring for children and if was off work.)
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While many people with #epilepsy cannot work, many more of us do. To help us prove our point if you have #epilepsy and work what do you do for a living? #EpilepsyAwareness
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@BrainAblaze From a doctor: "seizures are like going bald. I'm going to be bald cause I'm old. You're going to have seizures because of epilepsy. It's your life. You're just gonna have to accept it like I've accepted my baldness"
I never went back.
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What is the worst advice you have received regarding your adaptation to #seizures or #epilepsy? #EpilepsyAwareness
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@BrainAblaze 5 years and 2 months. I'm currently 2 years and 9 months!
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What is the longest you have ever gone between #seizures? #EpilepsyAwareness
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@empressatlantis @BrainAblaze @EpilepsySocal I knew a lady who had a strong smell of apple pie before her seizures. She was at a basketball game and the strongest scent of freshly baked apple pie hit her and she had a seizure. So I think its totally possible to hear music before
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Hi @BrainAblaze @EpilepsySocal is it normal for auras for seizures/ events to also include music? I tend to hear a certain artist right before my day seizures. Ty in advance ๐๐ฅฒ
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Chelsea (Lowry) Anderson me-retweet
Chelsea (Lowry) Anderson me-retweet

Lots of women suddenly being diagnosed with ADHD isn't because it's overdiagnosed or trendy, it's because they went ignored for decades because "girls don't get ADHD".
Except they do.
#adhdtwitter #adhdwomen
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Chelsea (Lowry) Anderson me-retweet
Chelsea (Lowry) Anderson me-retweet

@BrainAblaze This would only work if you don't have to take it at specific times. But I always have a water with me to bed and leave my pill container next to my bed. I take my meds right when I get to bed and when I wake up bc I have water right there I take them as soon as I wake up
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Have you ever struggled to take your anti-seizure medication on a regular schedule? If not, do you have any advice for someone who is struggling with it? #EpilepsyAwareness
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Chelsea (Lowry) Anderson me-retweet

DYK that in the USA ambulances are not considered essential services? It is one of the reasons why calling an ambulance for someone experiencing a #seizure is so expensive. #EpilepsyAwareness
youtu.be/Ezv8sdTLxKo

YouTube
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@pr_chelsie @Andy76190188 @BrainAblaze Everyone is different, but I've never heard anything good about lamictal. Not that someone hasn't had a good experience I just haven't heard it. I personally did not like Topamax, but that's just me. Hopefully you can find something that works!!
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@ChelseaAlowry @Andy76190188 @BrainAblaze Iโve been on Tegretol and topamax years ago and I donโt remember having any issues like I do with this lamictal. Thank you for sharing your experiences with the medication because I felt like it was just my body that was the issue taking the medicine.
Kentucky, USA ๐บ๐ธ English

Everyone's reaction to anti-seizure medications is a bit different, but which anti-seizure medication has helped you manage your #seizures the best while also providing the fewest side effects? #EpilepsyAwareness

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@pr_chelsie @Andy76190188 @BrainAblaze I'm actually not on Lamictal anymore but I think my total dosage for the day was 875mg. I refused to take it any longer because of increased auras and horrible side effects so I am now on Keppra
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Chelsea (Lowry) Anderson me-retweet
Chelsea (Lowry) Anderson me-retweet
Chelsea (Lowry) Anderson me-retweet
Chelsea (Lowry) Anderson me-retweet

This. ๐ Even if it is an invisible disability. ๐ #EpilepsyAwareness
Gregory Mansfield@GHMansfield
A word of advice: Please donโt come into the feed of people who identify as disabled and tell us we are not โdisabled.โ
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