@healthprivacy

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@healthprivacy

@healthprivacy

@HealthPrivacy

Health data privacy and security devotee; HIPAA myth buster; former fed (OCR & ONC); Terp fan; dog mom; Citizen Health data governance; Personal twitter account

Alexandria, VA Bergabung Şubat 2010
968 Mengikuti5.1K Pengikut
@healthprivacy
@healthprivacy@HealthPrivacy·
Our passion for helping patients & their families has been there from the start & is deeply embedded in our company DNA. So grateful to our investors; our team; our patient advocacy group, academic & commercial research partners; and, most importantly, patients on our platform.
citizen.health@CitizenHealthX

We've secured $30M in funding from @8vc @transformcptl, Headline to use AI to transform consumer healthcare, starting in rare disease. citizen.health/citizen-health… 📊 Centralized records 🧠 Personalized AI Advocate 🔬 Research participation Build with us: citizen.health/careers

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Grace Vinton
Grace Vinton@HITeaWithGrace·
It’s very very strange to hear the word patient so little at events around JPM & to hear the word caregiver even less. Conversations are about money, research, market trends, business models. Rarely if ever bringing it all back to patient impact or experience. Odd & troubling
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Assistant Secretary for Technology Policy
Assistant Secretary for Technology Policy@HHS_TechPolicy·
Join the Office of the Assistant Secretary for Technology Policy in one of three positions: Chief Technology Officer (CTO); Chief Artificial Intelligence Officer (CAIO); Chief Data Officer (CDO). These Executive-level roles will help drive innovation and success at HHS – apply now! healthit.gov/topic/careers-…
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Jan Oldenburg ☮️
Jan Oldenburg ☮️@janoldenburg·
I recently had the experience of being asked—with @GraceCordovano—of being asked to put together a patient advisory panel. We strongly recommended that they pay them & suggested means. They went to their ethics committee—without us—& decided paying patients was unnecessary.
Susannah Fox@SusannahFox

The unpaid labor of patients, survivors, and caregivers has been invisible for too long - thanks to @agaricus @stales @BraveBosom @aijenpoo and many others for their insights

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@healthprivacy
@healthprivacy@HealthPrivacy·
@Farzad_MD @amarimow 2/ IMO, where a HIPAA CE places cookies matters. I think the opinion (after cutting thru the snark) was essentially limited to collection of data via cookies on landing pages. A cookie placed on a patient portal? to me that's PHI because it indicates someone is a patient there.
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@healthprivacy
@healthprivacy@HealthPrivacy·
@Farzad_MD @amarimow @Farzad_MD 100% agree re danger to recent challenges to agency authority, but this wasn't @ whether an IP address makes data identifiable. It was about whether a mere visit to a provider website - or even a disease specific website - reveals an individual's health data. 1/
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Farzad Mostashari
Farzad Mostashari@Farzad_MD·
1/ Govt agencies' ability to do their job is going to get hammered with this "judge-shopping" and that's assuming the Supreme Court doesn't save them the trouble and shred it nationwide in their upcoming likely reversal of Chevron Deference. news.bloomberglaw.com/health-law-and…
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@healthprivacy
@healthprivacy@HealthPrivacy·
@JoshCMandel Words got a bit crunched in the editing process... ultimately we were proposing safe harbors for disclosures in good faith notwithstanding (unknown) misrepresented purpose (HIPAA) and for declining to disclose due to suspected misrepresented purpose (info blocking).
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Josh Mandel, MD
Josh Mandel, MD@JoshCMandel·
@HealthPrivacy Great article! >... ONC should consider... minimum requirements for... the safe harbor to ensure safe harbors are not used as an excuse to deny access I thought the proposed safe harbor was to make *disclosures* OK. How could they be an excuse for *denials*? What min reqs?
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Liz Salmi
Liz Salmi@TheLizArmy·
SUNDAY, JUNE 2: Find me in “When Bad News Comes through the Portal” at #ASCO24 I’m talking about all of your favorites: ✔️open notes ✔️open test results 🔥 ➕a bit of my oncology experience It’s all kicks off at 11:30am. #opennotes @myopennotes @BIDMC_Research
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micky tripathi
micky tripathi@mickytripathi1·
Going thru old files, found this early plan that was key to creation of @IndianaHIE Excited to return it in person today on visit to @Regenstrief Feel like I'm returning the Elgin Marbles back to their home. 😀
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@healthprivacy
@healthprivacy@HealthPrivacy·
Way to go ⁦@healthapiguy⁩! Measurement of and publicly reporting on outcomes leads to improvement - just ask the health care quality improvement experts. This will help patients get seamless, reliable access to payer data, regardless of their plan. open.substack.com/pub/flexpa/p/t…
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Jo
Jo@JoJoFromJerz·
Maybe someday, women in America will have as many rights as guns do.
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@healthprivacy
@healthprivacy@HealthPrivacy·
I’m excited to participate in @AllHealthPolicy's 9th Annual Signature Series workshop tomorrow, coming together with a range of stakeholders to tackle these practical questions: What does a good AI advisory board look like? What should the AI curriculum be for policymakers?
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@healthprivacy
@healthprivacy@HealthPrivacy·
OK, I had my head in e-mail and work all day and totally missed this! HHS OCR finalizes their proposed rule bolstering HIPAA protections in light of the Supreme Court decision in Dobbs.....
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Jelajahi

@derikqueen1 @HITeaWithGrace @chrissyfarr @ShelbyJLiv @GraceCordovano @Farzad_MD @amarimow @DrFirst