The Bonnell Foundation

3.6K posts

The Bonnell Foundation banner
The Bonnell Foundation

The Bonnell Foundation

@RoadmapToCF

The Bonnell Foundation: Living with Cystic Fibrosis provides financial assistance, Educ. scholarships, & resources to navigate life with CF. #CFMomof2girls

Michigan Bergabung Eylül 2011
1.1K Mengikuti846 Pengikut
The Bonnell Foundation
The Bonnell Foundation@RoadmapToCF·
My flight scheduled for 7 am was delayed due to mechanical problems…so I didn’t make it to DC at 8:30. I arrived at Noon when @Delta got us a new plane. No complaints. Better safe than sorry! Made it to my last meeting of the day and have a full day of mtgs Wednesday! Advocating for CF and rare disease issues! And, the Bio industry! @michbio Thanks Dr. Stephen Rapundalo! @CuriousKocab
Laura Teicher Bonnell she/her@LauraTbonnell

Advocacy in DC! @michbio fly in! @RoadmapToCF #Advocate

English
1
0
3
85
The Bonnell Foundation
The Bonnell Foundation@RoadmapToCF·
Accessible health information is a lifeline for the millions of patients in America, especially those managing complex, chronic conditions. When patients have the information they need, including from drug ads, they can make better decisions about their care. That access must be protected. Watch patient stories here: bit.ly/4dNznuH | @InformYourCare @LauraTbonnell
English
0
1
2
289
The Bonnell Foundation
The Bonnell Foundation@RoadmapToCF·
Dr. Cohen was a wonderful guest. He's been in the CF world for decades and has much hope for the future! We're glad he's still a huge part of the CF community.
ArcturusRx@ArcturusRx

We had the pleasure of joining The Bonnell Foundation: Living with Cystic Fibrosis podcast @RoadmapToCF. Arcturus' Chief Medical Officer, Alan H. Cohen, MD, took part in the thoughtful and engaging conversation. Check out the full episode on YouTube: youtu.be/p93jQGcJ5gw?si…

English
0
1
2
77
The Bonnell Foundation
The Bonnell Foundation@RoadmapToCF·
Happy St. Patrick’s Day☘️ Are you feeling lucky??? Donate $17 in honor of St. Patrick OR donate $25+ and be entered to win a one-year membership to Planet Fitness, generously donated by Planet Fitness and Jillian’s Jaywalkers! By donating, you help provide hope, support, and progress for those living with cystic fibrosis. 10 winners will enjoy a Planet Fitness membership, but every donation helps change countless lives. This giveaway closes tonight, March 17th, and 10 winners will be notified after St. Patrick’s Day! Visit thebonnellfoundation.org/donate/ to be entered. #cysticfibrosis #CysticFibrosisAwareness #giveaway #stpatricksday #donate
The Bonnell Foundation tweet media
English
1
0
0
31
The Bonnell Foundation
The Bonnell Foundation@RoadmapToCF·
Today’s the day! Our new episode with Abby Rose is OUT NOW! Abby is a Child Life Specialist at Seattle Children’s Hospital, where she works closely with children and families during some of their most stressful medical moments. Her role focuses on helping kids feel safe, understood, and empowered while navigating hospital care. In this episode, Abby shares how even small choices—like deciding whether to watch a procedure or look away—can help children feel more in control and less afraid. She emphasizes the powerful role caregivers play in the hospital setting, reminding families that they are not “just” parents in the room—they are essential advocates and critical members of the care team. You won’t want to miss this, tune in to this incredible episode TODAY! Thank you sponsors, @ViatrisInc and @VertexPharma #BonnellFoundation #CysticFibrosis #CFResearch #advocacy #childlifespecialist
The Bonnell Foundation tweet media
English
0
1
2
305