The Informed Patients Project

82 posts

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The Informed Patients Project

The Informed Patients Project

@InformYourCare

Informed patients are healthier patients.

Katılım Kasım 2025
114 Takip Edilen150 Takipçiler
The Informed Patients Project
Transparency and access give patients the power to make informed decisions about their health. Learn more about what the Informed Patients Project stands for: bit.ly/4b4XKB5
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The Informed Patients Project
Drug ads empower patients in their treatment decisions. Research shows that ads bring patients into care while still leaving prescription decisions largely in physicians' hands, resulting in more patients being diagnosed and treated. @IcahnMountSinai’s Anna Chorny breaks down the studies behind why drug ads benefit patients in @ConversationUS. Read more at bit.ly/4cADGZX
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The Informed Patients Project
Drug ads play a role in this map. They can introduce patients to treatments they might not have known existed and spark conversations about what’s right for them. This information empowers patients to weigh risks and benefits, ask questions, and make informed decisions with their doctors. For many, learning about treatment options is the first step toward taking control of their health. (2/2)
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The Informed Patients Project
Health care can feel like a maze — complex, overwhelming, and full of unknown turns. Having clear, accurate information is like a map: it helps patients find the path that’s right for them. Protecting access to information supports patients’ right to understand their care options and participate in decisions about their health. (1/2)
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The Informed Patients Project
The Informed Patients Project@InformYourCare·
Right to Try laws exist for patients who have no other options and cannot participate in clinical trials. When those patients speak out about access to treatment, the FDA should listen. Thank you @SenRonJohnson for standing with patients.
Senator Ron Johnson@SenRonJohnson

I’m holding a press conference TODAY at 2 PM ET to stand with Duchenne muscular dystrophy patients who are losing access to treatment they’ve relied on for years. Tune in live on my account today at 2 PM. twitter.com/i/broadcasts/1…

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The Informed Patients Project
The Informed Patients Project@InformYourCare·
When patients don’t fully understand all of their treatment options, it can directly impact their health outcomes. For those facing serious illness, not knowing their options can mean days, weeks, or even months of uncertainty—delaying critical care. Clear, accessible information empowers patients to ask questions and make confident choices with their doctors.
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The Informed Patients Project
The Informed Patients Project@InformYourCare·
Patients deserve information — the full picture of risks, benefits, and everything in between. Informed Patients Project Executive Director CZ shares why drug ads provide information patients – not consumers – can bring to their doctors. From weighing benefits and risks, to keeping information flowing, to avoiding overly burdensome regulations, one message is clear: empowering patients with knowledge is essential for better, individualized care.
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The Informed Patients Project
The Informed Patients Project@InformYourCare·
When information about treatment options is overly regulated, patients may miss the details they need to make confident, informed decisions with their doctors. Protecting the free flow of health information ensures patients can play an active role in their care. Health care works best when patients have the facts — without unnecessary barriers.
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The Informed Patients Project
The Informed Patients Project@InformYourCare·
Proposals to ban or restrict drug ads would leave patients less informed, not better off. “Knowledge empowers patients like us to make informed decisions” – Dorothy Leone-Glasser, a lupus patient and advocate, in the @NYTimes.
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The Informed Patients Project
The Informed Patients Project@InformYourCare·
“Drug ads are not merely commercials — they are catalysts for engagement." Important read on pharmaceutical advertising and its effectiveness in keeping patients engaged in their care in @dcexaminer. Access to clear information empowers patients, strengthens conversations, and leads to better health outcomes.
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ARxC-Health Rights
ARxC-Health Rights@ARxCAdvocates·
New @NYTimes opinion piece by ARxC .Over 45+ years living with systemic lupus, I’ve learned that knowledge is power. Drug ads help patients like me start informed conversations with our doctors about new treatment options. Read my LTE in @NYTimes: bit.ly/4aO0rIz
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The Informed Patients Project
The Informed Patients Project@InformYourCare·
Restricting drug ads will not help patients. Dorothy Leone-Glasser, Executive Director of @ARxCAdvocates and a 45 year patient of lupus, makes a powerful case in @NYTimes: patients deserve access to information that helps them advocate for themselves.
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The Informed Patients Project
The Informed Patients Project@InformYourCare·
“Informed patients are healthier patients.” Current FDA oversight makes that possible. Patients can learn about therapies, ask questions, and weigh treatment options knowing the information is accurate and regulated. More enforcement won’t protect patients — it would take away the very information they rely on to make informed health decisions.
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The Informed Patients Project
The Informed Patients Project@InformYourCare·
When patients know their care options, they can ask questions, explore treatments, and take charge of their health. Information helps patients get care sooner and improve their experience with providers. Access to information empowers patients to take control of their care. Learn more at InformedPatients.org
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The Informed Patients Project
The Informed Patients Project@InformYourCare·
Oversight works — and patients benefit every day. Thanks to current FDA oversight, patients can trust the information they see in ads. This framework gives them the knowledge to explore new therapies, ask questions, and make informed decisions about their care.
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