The Informed Patients Project

Patients deserve tools to make informed decisions about their own care. That means real access to health information about treatments, options, and the care available to them. It means healthcare systems that put patients and their providers first, not bureaucrats or outside gatekeepers making decisions on their behalf. Informed patients are healthier patients. Learn more at InformedPatients.org

Information is power — especially for the millions of Americans living with a chronic condition who are navigating treatment decisions every day. It's how you learn there's a new option. How you know what to ask your doctor. How you take control of your care. Informed patients are healthier patients. For those living with a chronic disease, that's not a slogan — it's a lifeline.

Read the full story here: bit.ly/4nF2GlZ

For patients living with chronic illness, information matters. Policymakers should listen to patients living this reality every day @RepJasonSmith. Read Dorothy Leone-Glasser’s story about navigating lupus for more than 45 years in the @NewsTribune. Patients deserve to know their options.

Read the full blog post here: bit.ly/49ua6Tj

Disclosure, not bans. "Health halos" and buried ingredient lists aren't giving families a real choice — they're giving them the illusion of one. IPP Executive Director @CZ shares why clear, standardized food labels are what American families deserve.

Read the blog post from IPP Executive Director @CZ: bit.ly/49ua6Tj

Clear food labels aren't a consumer issue. They're a patient safety issue. Millions of Americans manage chronic conditions by following their doctor's guidance on what to eat. They can't do that when the food system is designed to hide what's inside.

Read more here: bit.ly/49ua6Tj

What's in your food shouldn't be hidden in fine print. In a new blog, IPP Executive Director @CZ makes the case for clear, honest food labels — not bans, just the truth American families need to make real choices about their health.

Every American family deserves clear answers about what's on their plate. For too long, complex ingredients and confusing labels have left parents guessing. With clear information, families can make the choices that protect their kids' health — whether at the grocery store, at the drive-thru, or at the dinner table.

Find more patient stories at InformedPatients.org/Patient-Voices/

Sure, drug ads aren't always fun to watch. But for some patients, these ads can be the first introduction to treatment options they might not otherwise know about - especially for those who can't afford frequent doctor visits. As Informed Patients Project Executive Director @CZ puts it, that ad - however cheesy or repetitive it may feel - could be what changes a patient's care trajectory. It could even save their life.

Lupus has had fewer FDA-approved treatments than almost any other condition. For 45 years, Dorothy Leone-Glasser, Executive Director of @ARxCAdvocates has navigated that reality firsthand. Drug ads aren't clutter. For patients like her, they're often the first — and only — sign that a new option exists. Take that away, and you don't protect patients. You silence them.

Patients shouldn't have to fight the system just to fight for their lives. For patients with life-threatening conditions, Right to Try means access to investigational treatments when no other options remain, offering patients a choice when it matters most. Learn more at InformedPatients.org

Read IPP Executive Director's, @CZ's full story with @WLF: bit.ly/4sUKWnH

Drug ads don't make decisions for patients. They start conversations. And those conversations can save lives. That's not a distraction. That's exactly how informed patients become healthier patients.

Read IPP Executive Director's, @CZ's full story with @WLF: bit.ly/4sUKWnH

Drug ads don't make decisions for patients. They start conversations. And those conversations can save lives. That's not a distraction. That's exactly how informed patients become healthier patients.

The rules shaping how information is shared matter more than people think. For patients, it can have a significant impact on their treatment. At @WLF, we focus on the legal frameworks behind those rules—including how the #FirstAmendment applies to commercial speech. We just published a new piece by @InformYourCare's @CZ on why transparency and free speech matter for patient outcomes. #advertising #DTCads #pharma #freespeech