65MilesIn65Hours4CF

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65MilesIn65Hours4CF

65MilesIn65Hours4CF

@65HoursForCF

Raising $1 million for the @cf_foundation ➡️ running 6.5 miles x 6.5 hours for 65 hours. AUG 25-27, 2023 @cff_centralOH #CureCF

参加日 Mart 2023
176 フォロー中17 フォロワー
Margarete Cassalina
Margarete Cassalina@MargCassalina·
What's your sign? Who had a great holiday weekend? Raise your hand. My hand is waving high, and my heart is full of love and gratitude, and my stomach is filled with too many burgers and dogs. But hey, it wouldn't be a holiday weekend without a bit of overindulgence, right? However, some of us were deeply missing our loved ones who have 'moved up’ to heaven, myself included. On holidays our hearts weigh a little heavier. Yesterday, I was missing my Jena. She moved up on 12/4/2006 at the age of 13. For 17 years she usually sends a quick 'hello' with a penny, a song, or the number 13 or 313. Yesterday, I had stopped at a store and she was weighing heavily on my mind. I opened my car door, and there was a blue letter J. Her favorite color was blue. Her nickname was "J" Coincidence? No, I do not believe in them. It was my Jena stopping by to say hello to her mom. I'm sure some of you were missing a loved one during the holiday weekend, too. Would you mind sharing below who your departed loved one is and what their sign to you is? It would help others who are hurting to know they are not alone and that love never ends. Bless you, all my fabulous friends!
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65MilesIn65Hours4CF
65MilesIn65Hours4CF@65HoursForCF·
Let the training begin. Long run Monday! In August, I hit the streets for my 6.5 x 6.5 x 65 passion fundraiser for the @CF_Foundation. ✅️6.5 Miles. ✅️Every 6.5 hours. ✅️For 65 hours. ✅️For CF. Follow me for more updates on how to support and participate. 🙏
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Cystic Fibrosis Foundation
Cystic Fibrosis Foundation@CF_Foundation·
Cystic fibrosis is a progressive, genetic disease. People with CF have inherited two copies of the defective CF gene — one copy from each parent. Both parents must have at least one copy of the defective gene. #CFAwarenessMonth
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65MilesIn65Hours4CF
65MilesIn65Hours4CF@65HoursForCF·
Saturday long run. I don't run for distance. I run for clarity. Some days, it just takes longer. @higdonmarathon
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Vertex Pharmaceuticals
Vertex Pharmaceuticals@VertexPharma·
As we recognize Cystic Fibrosis (CF) Awareness Month, we celebrate the progress made to advance the care for people living with CF but also acknowledge the work that lies ahead in our path forward. Learn more: vrtx.com #CFAwarenessMonth #GoingtheDistanceinCF
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Cystic Fibrosis Foundation
Cystic Fibrosis Foundation@CF_Foundation·
We recently agreed to provide up to $15.5M to Anagram Therapeutics to conduct clinical trials of a novel enzyme replacement therapy that would help improve the digestion of people with #cysticfibrosis. Anagram expects to start a Phase 1 trial this summer. on.cff.org/3U7H4A0
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Camille Herron 🦸‍♀️
Camille Herron 🦸‍♀️@runcamille·
We did it friends 🤗🚀🌖! Thank you to everyone who believed in me and all the encouragement along the way 🙏💕🎉. I could feel the world cheering me on to go further and farther than I ever have- farther than any woman ever has for 48Hrs 🏃‍♀️✨✨! More: instagram.com/p/CqTuscUSxbi/
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Cystic Fibrosis Foundation
Cystic Fibrosis Foundation@CF_Foundation·
We are investing up to $2M in Nanite Inc. to explore a new way to deliver genetic therapies into the lungs of people with #cysticfibrosis. Polymer nanoparticles could potentially be safer and may be more versatile and stable than other delivery methods. on.cff.org/3yYhV1b
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