angelmanuk
2K posts
angelmanuk
@AngelmanUK
UK charity(1021882) run by and for those affected by the genetic condition Angelman Syndrome and interested professionals.Our patron is director Gareth Edwards.
Nuneaton, Warwickshire. UK 가입일 Ocak 2013
258 팔로잉1K 팔로워
If you haven’t already, don’t forget to re-register with us so you can receive all communications! We don’t want you to miss out on the exciting plans we have coming up this year 🤩
Link to register is in our bio instagram.com/p/CpKebausbf0/…
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When our families come together, wonderful things happen. Hudson & India met recently, and had a wonderful time just - as did their parents!
📸: @jump_gymnasticsclub instagram.com/p/CpCeelasCGG/…
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@michaelblackcab @bttowerlondon @silverfoxgooner @john_battles Thank you to @john_battles too! You’ve all played a part in raising awareness, we are extremely grateful 🤩
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@AngelmanUK @bttowerlondon @silverfoxgooner I’d love to take the credit but I actually put a message out on a few cabbie WhatsApp groups as I wasn’t working today & @john_battles come through for you. The man’s a ⭐️ 🙏🏼
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Thank you to @michaelblackcab who was able to get some great photos of the @bttowerlondon tonight while it’s lit blue to support International Angelman Day. Family effort from @silverfoxgooner on behalf of his nephew Louis who has #AngelmanSyndrome #IAD2023
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What a busy day! We’ve been blown away yet again by the support we’ve received for #InternationalAngelmanDay 💙 thank you to everyone who got involved, shared photos, wore blue and got their local landmarks to light up for us this evening. We’ll be sharing more photos tomorrow!
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angelmanuk 리트윗함
Happy #InternationalAngelmanDay everyone!
To mark #IAD2023 @RCSLT's delighted to be sharing the fabulous #Angelman #GVTwitterTakeover @AngelmanUK @trAACeyc & @JennyPemberton5 did for us on all things #AngelmanSyndrome 😊
wakelet.com/wake/AToMNsCRJ…
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angelmanuk 리트윗함
Today is #InternationalAngelmanDay.
"An individual with #AngelmanSyndrome (AS) will light up a room with their smile and laughter."
For more infromation, visit our charity partners, @AngelmanUK: angelmanuk.org
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angelmanuk 리트윗함
💙We're lighting it blue for International Angelman Day💙
To find out more about AS, follow @AngelmanUK or visit their website: angelmanday.info/what-is-as
#IADFEB15 #AngelmanDay2023 #AngelmanSyndrome #meadowhall #sheffield #lovemeadowhall
📸Photography by James Marshall
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angelmanuk 리트윗함
This is my nephew who has a rare genetic disorder Angleman syndrome @AngelmanUK Tonight Manchester cathedral @ManCityCouncil will be lit up in blue to raise awareness 💕 🧬💙
manchestereveningnews.co.uk/news/greater-m…
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angelmanuk 리트윗함
International Angelman's Day today. Celebrating the one in the family who never stops smiling. Hope you've had a great day bro, so proud of you. 😁 💙
@AngelmanUK
#IAD2023
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