Australian POTS Foundation

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Australian POTS Foundation

Australian POTS Foundation

@AustralianPots

Australian POTS Foundation│Non Profit Organisation. We strive to make a brighter future for those with postural orhtostatic tachycardia syndrome.

📍Adelaide, South Australia 가입일 Mayıs 2022
122 팔로잉346 팔로워
Australian POTS Foundation 리트윗함
PoTS UK
PoTS UK@UKPoTS·
As October is Dysautonomia Awareness Month we make sure we raise awareness of #PoTS every day throughout the month: 31-days of jam-packed ways to get involved! We will be: ✨Sharing daily facts ✨Hosting special webinars and events ✨Sharing powerful patient quotes & stories ✨Lighting up buildings across the UK in purple ✨Raising awareness and vital funds to support our work 👉Follow along, get involved, and help us spread the word. Together, we can build understanding, support those living with PoTS, and push for the recognition this condition deserves! 💜Let’s make PoTS visible this October. 📲 Keep an eye on this page for updates and ways you can take part! #PoTSAwarenessMonth #DysautonomiaAwarenessMonth #LivingWithPoTS #PoTSFacts #LightUpForPoTS
PoTS UK tweet media
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Scientific Reports
Scientific Reports@SciReports·
Novel brain SPECT imaging unravels abnormal cerebral perfusion in patients with postural orthostatic tachycardia syndrome and cognitive dysfunction go.nature.com/3ElLqQa
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Australian POTS Foundation
Australian POTS Foundation@AustralianPots·
📢 New Australian research on #POTS! 🇦🇺 Adelaide researchers have shown cerebral hypoperfusion in POTS is common. These findings have major implications for clinical care and future research. Read more: rdcu.be/d7UFW @CelineGallaghe2 @DH_Lau @ADARC_UoA @mcseeley
Marie-Claire Seeley@mcseeley

Thrilled to share our published study on cerebral hypoperfusion in #POTS! Findings highlight key implications for clinical management and future research into autonomic disorders. Read more: rdcu.be/d7UFW @sahmriAU @CelineGallaghe2 @DH_Lau @ADARC_UoA #Dysautonomia

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Australian POTS Foundation
Australian POTS Foundation@AustralianPots·
@MJLScoullar @CrabbBrendan and @GabrielaKhoury leading work in understanding the biological underpinnings of #longCOVID. Validating patient experiences of the organic nature of post viral syndromes. 🙌🙏
Marie-Claire Seeley@mcseeley

Love this from ⁦@CrabbBrendan⁩ ⁦@MJLScoullar⁩ et.al. “increased awareness of the biomedical basis of #longCOVID should prompt clinicians to take patients more seriously.” insightplus.mja.com.au/2024/48/long-c…

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Australian POTS Foundation
Australian POTS Foundation@AustralianPots·
Registries like the Australian POTS Registry are vital to understanding the impact of #POTS and driving change. Funding is needed to expand this to a national platform. Let’s make it happen! @Mark_Butler_MP @healthgovau
Marie-Claire Seeley@mcseeley

Excited to present the Australian POTS Registry data at #ACTA2024! Highlighting the burden of disability & QoL impacts for those with #POTS . 🙏 for the support of ⁦@SAHMRI_Heart⁩ ⁦@AustralianPots⁩ @ADARC_UoA @UniofAdelaide ⁦@SACVRN⁩ . Let’s drive change!

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Australian POTS Foundation
Australian POTS Foundation@AustralianPots·
Exciting new research from @TeamSRRaj shows that commercially available compression wear significantly improves symptoms and reduces heart rate in #POTS. A simple, accessible solution for better everyday management! #POTS #Dysautonomia #longCOVID
Dr. Satish Raj’s Research Team@TeamSRRaj

Exciting research led by Dr. Kate Bourne on the ability of commercially available compression garments to reduce heart rate and improve symptoms in patients with POTS in a community setting now published in JACC! doi.org/10.1016/j.jace…

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Marie-Claire Seeley
Marie-Claire Seeley@mcseeley·
1 week until our group of #POTS clinicians and friends walk 30km to raise money for @AustralianPots to support POTS research. We are SO close to our $15000 October fundraising goal. To help us get there click below👇🏻 gofund.me/669b20fd
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Marie-Claire Seeley
Marie-Claire Seeley@mcseeley·
58% of POTS pts leave their jobs due to their diagnosis yet, there has never been any funding allocated in Australia for community support, research, or specialized care. Support our POTS nurses as they walk to raise funds for POTS awareness and care. gofund.me/ac8dc21c
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Australian POTS Foundation
Australian POTS Foundation@AustralianPots·
People with #POTS and #LongCovid often report an initial misdiagnosis of Functional Neurological Disorder. This paper offers a clear explanation of the differences between the two disorders.
S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic@dysclinic

As a neurologist who sees #Dysautonomia and #LongCovid patients, but also some functional neurologic disorders #FND patients, I can make a clear distinction between the diagnoses based on history and physical exam findings. We summarized these clinical distinctions in Table 2 in our recent paper. However, it's first important to emphasize that most patients with Long Covid do not have FND; most likely, only a small minority has FND as part of Long Covid. What percentage has FND among Long Covid patients is unknown and why a non-biased study conducted by neurologists who know what is and isn't FND would be informative. mdpi.com/2075-4426/14/8…

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Marie-Claire Seeley
Marie-Claire Seeley@mcseeley·
I love to walk. So on October 26th I'm going to walk 30km from the Adelaide Hills to the city to raise funds for POTS research. Please consider giving to this great cause. DM me if you would like to walk with me!! gofund.me/a54afab6 @AustralianPots
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@ADARC_UoA @DH_Lau @sahmriAU @mcseeley @MeganGilmour @Stanford_Neuro @Dysautonomia @drprashanthrao