ISG UK

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ISG UK

ISG UK

@ISG_Charity

The Ichthyosis Support Group (ISG) was formed in 1997 by a group of individuals affected by ichthyosis to create a network of parents, sufferers and medics.

UK 가입일 Haziran 2013
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ISG UK 리트윗함
GlobalSkin
GlobalSkin@IADPO·
#WHO has opened a public consultation on its draft Global Action Plan for Skin Diseases. Your input can help shape how countries act and ensure accountability for the 2B+ people affected. 🗣️ Make your voice heard 📅 Deadline: May 10, 2026 👉 who.int/news-room/arti…
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ISG UK
ISG UK@ISG_Charity·
Living with a rare skin disease can mean daily treatments, visible differences, and constant questions - but it also means resilience, strength, and a community. Rare is not alone. Rare is powerful. Rare is human. #RareDiseaseDay #RareDERM #ichthyosis
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ISG UK
ISG UK@ISG_Charity·
My Skin is RARE. Behind every diagnosis is a person. A family. A story. Rare forms of ichthyosis affect around 1 in every 100,000–300,000 births depending on the type. That means many people go through life never meeting someone else with the same condition.
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ISG UK
ISG UK@ISG_Charity·
Some people say, “It’s not a disease, it's not contagious", but it is classified as a disease because it is a genetic disorder that affects the skin’s ability to function normally. It requires lifelong management and can impact physical health, mental wellbeing, and daily life.
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ISG UK
ISG UK@ISG_Charity·
Skin conditions affect around 60% of UK population (@BSFcharity), including many constituents. @wesstreeting @michaelgove @Keir_Starmer @karinsmyth Support the need for addressing the @WHO global public health priority of skin diseases! Get behind the #SkinDiseasesResolution
GlobalSkin@IADPO

🌎 The #SkinDiseasesResolution calls for an integrated approach to address all skin conditions. It will help improve access to care, support earlier diagnosis and lead to more accessible treatments benefiting billions of people globally. Learn more: skinhealthcoalition.org/resolution

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ISG UK 리트윗함
GlobalSkin
GlobalSkin@IADPO·
Day 3 of #GSChampion2025 kicked off with Jeremy Foreman of Pfizer, who shared how AI can boost skin health by listening to more voices, speeding up treatments, and improving access—highlighting Pfizer’s Accord and the themes of Listen, Learn & Lift. #GlobalSkin #Dermatology
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ISG UK
ISG UK@ISG_Charity·
A fabulous 1st full day at #GSChampion2025
GlobalSkin@IADPO

#GlobalSkin Conference 2025 has opened in Prague! 250 delegates are uniting to champion the global dermatology patient voice. Over the next 3 days, we’ll elevate advocacy, spark collaboration, and build momentum with our dermatology patient leaders! #GSChampion2025

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ISG UK
ISG UK@ISG_Charity·
This is Dr Theocharopoulos, training to become a Dermatologist)! Here he's wearing his ISG tshirt on a 20km hike yesterday in Patagonia! Not only is he raising awareness but he and 3 friends are running the Battersea Half Marathon next Month for us. See ichthyosis.org.uk/fundraisers/mi…
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ISG UK
ISG UK@ISG_Charity·
🏃‍♀️Join a Fun Run for a Great Cause! 🏃‍♀️ Sign up for a junior or family run event near you and raise awareness for #ichthyosis! From Thorpe Park to Alton Towers, and local festivals, there’s an event for the whole family. Find events and sign up at ichthyosis.org.uk/fundraising-ev… 👟
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@BSFcharity @wesstreeting @michaelgove @Keir_Starmer @karinsmyth @WHO @GSTTnhs @IADPO