GlobalSkin

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GlobalSkin

GlobalSkin

@IADPO

The International Alliance of Dermatology Patient Organizations is a global voice for skin patient-centred research, advocacy & support.

Global Katılım Ekim 2015
686 Takip Edilen2.8K Takipçiler
GlobalSkin
GlobalSkin@IADPO·
Last chance to submit your written input in the #GlobalSkin #RegionalEngagement Series. Share your insights by March 22. Your input helps ensure our regional reports fully capture lived experiences of skin patients. Check your email for details. #Dermatology #Survey
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GlobalSkin
GlobalSkin@IADPO·
Members, join the April 1 Coffee Chat with our Board Directors to learn what serving on the GlobalSkin Board is really like and how it supports patient leadership. Check your email for the registration link. #GlobalSkin #CoffeeChat #BoardElection #Dermatology
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GlobalSkin
GlobalSkin@IADPO·
#GlobalSkin Members — Every perspective helps us better understand what #skinpatients are experiencing in each region. If you couldn’t attend the Regional Engagement #Workshop or haven’t shared your insights yet, submit your input by March 22, 2026. See your email for details.
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GlobalSkin
GlobalSkin@IADPO·
🌍 Join GlobalSkin at WCRSD 2026 in Versailles, France (July 1–3)! We're offering 14 Travel Bursaries for RareDERM Community members. ✈️ Apply: 9 Mar – 12 PM ET ⏳ Deadline: 20 Mar – 12 PM ET At the event: 🔹 Patient Symposium 🔹 #GlobalSkin Booth 🔹 #RareDERM Member Meeting
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GlobalSkin
GlobalSkin@IADPO·
Calling all #GlobalSkin Members — Missed the Regional Engagement #Workshops or have more to share? Submit your written input by March 22 and help ensure the realities of #skinpatients in your country are reflected in our regional reports. Details in your inbox. #Dermatology
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GlobalSkin
GlobalSkin@IADPO·
Thank you to everyone who took part in #RareDiseaseDay 2026 💜 By sharing your story, posting, or standing in solidarity, you helped break stigma and amplify the #MySkinisRare Campaign & our #RareDERM voice. More people are learning & supporting because of you!
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GlobalSkin
GlobalSkin@IADPO·
On #RareDiseaseDay, we stand with 6.8M people living with 800+ rare skin diseases. Many face delayed diagnosis & limited care. Join our #MySkinIsRare campaign to raise awareness, amplify #RareDERM voices & drive change worldwide. – Jennifer Austin, GlobalSkin CEO #GlobalSkin
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GlobalSkin
GlobalSkin@IADPO·
GlobalSkin CEO Jennifer Austin spoke at the European Parliament in Brussels on advancing the #WHA Resolution on Skin Diseases. Encouraged by engaged MEPs & grateful to EADV, @ILDSDerm & European patient advocates for ensuring the patient voice was heard. #GlobalSkin #SkinHealth
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GlobalSkin
GlobalSkin@IADPO·
February is Ectodermal Dysplasias Awareness Month - a time to amplify voices, share stories & raise awareness of these rare conditions. 💙 Join this year’s theme: “Blue Out for #EctodermalDysplasias” by wearing blue all month! Learn more & get involved: nfed.org/get-involved/r…
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GlobalSkin
GlobalSkin@IADPO·
Four of six #GlobalSkin Regional Engagement #Workshops are complete. On, Feb 19, we meet with our European Members, followed by North America on Feb 24. Your insights will help shape regional reports and strengthen patient-led advocacy worldwide. Check your inbox to register.
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