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OMT Parent Voices
742 posts
OMT Parent Voices
@OneMoreThing2Do
One More Thing Parent group advocates for change in systems to minimize the One More Thing that parents of children with disabilities navigate every single day!
Ottawa, Ontario, International 가입일 Mart 2016
123 팔로잉236 팔로워
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A memorial bench in honour of @GrandmaKim has been installed at Brittania beach. She loved to walk there. Loved the water. And loved people. Please visit and sit a minute.
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It has been one full year since we lost OMT co-founder @GrandmaKim. We miss her so much. She was a mother, grandmother, sister, friend, fighter and advocate. She was simply amazing. 💗
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We are so happy to see CHEO recognize and honour our co-founder @GrandmaKim! Kim would be thrilled to know that funds have been dedicated to accessibility in her honour.
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It’s been a long time since we used this account! Can’t think of a better time to re-engage than by announcing this fundraiser. gofund.me/29b106ff
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@AlexMunter It is hard to imagine a world without either of them. 💗
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OMT Parent Voices 리트윗함
For parents of kids with complex needs, COVID-19 school disruptions mean losing a lifeline of key supports dlvr.it/Rv7lWC
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If you are a parent of a child with a physical disability and you are looking for people who ‘get it’ then please join our Facebook group
Our mission is to offer each other compassionate space to share and be heard #community #parent #Disability
Facebook.com/groups/1MoreTh…
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The Feeling are Normal responses to extraordinary circumstances. #empathy
Kim McLeod@GrandmaKim
It should be expected that the paediatric parent /#MedicalMom will be ... Frustrated Angry Crying Withdrawn. These are natural human reactions to impossible situations of which few professionals know or see the full picture. #compassion #education #empathy
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⚠️trigger warning ⚠️
Being “that parent” is a hurdle we all face.
#patient #person #communication #thatparent
Healthy Debate@HealthyDebate
The hashtag #thatparent is sometimes used by #parents who find themselves labelled "difficult" because of their #advocacy in the #healthcare system. Why do we make them feel uncomfortable for trying to be the best parents they can be? By @sblemay healthydebate.ca/opinions/thatp…
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OMT Parent Voices 리트윗함
Thank you for this. Peads moms/caregiving are hanging by a thread. Saving Heath systems up front - clearly not long term @fordnation @celliottability cite CHEO Thrive report Pg 50
@AlexMunter ⬇️ #kidscomefirst won’t work if caregivers are ill or dying
@OneMoreThing2Do
Eyal Cohen@dreyalcohen
Some new work published today on parental caregiver mortality led by Dr. Anne Fuller @SickKidsNews in collaboration with colleagues at @dceaarhus (including @toftsorensen & @ehrensteinvera) & @UnityHealthTO.
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OMT Parent Voices 리트윗함
Did anyone else know there’s a rare disease podcast!
Awesome
cc @raredisorders @MitoCanada @rarediseasefdn @sickboypodcast @NightShiftMD @williamslaura @HeatherPina44 @alungstory @StartWithHills @CareForRare @OneMoreThing2Do
NORDpod: The Voice of Rare Disease@NORDpodcast
Listen to the newest episode of #NORDpod: The #VoiceOfRareDisease to join @MatthewZachary as he speaks with @yann_eurordis to reflect on Rare Disease Day & about progress in #raredisease research: nordpod.org What did you do for #RareDiseaseDay this year? 🦓
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OMT Parent Voices 리트윗함
This is the reality of disability. It's a system that dehumanizes a person at any age. It's a system where one word, like "mild", may mean you don't get the help you need. It's a system of manufactured scarcity. It's a system that breaks you.
Wonderful piece by @Lollardfish.
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Quick Poll on Who Can I Talk To? From our parent group.
Little surprise for us was having the question added by a member ..15% replied “I really don’t have anyone to talk to” #specialneeds #families
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Any parent who advocates struggles with the emotional management pre, during and post advocacy. #parenteducation #advocacytraining
Kim McLeod@GrandmaKim
Upcoming Workshop for newer parents beginning their advocacy journeys. Building foundations of confidence for sitting at the table seeking services and supports bit.ly/3uLG4Vl
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OMT families!! We have a great friend speaking this Saturday. We encourage you to join her!
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