Project ALS

To the Project ALS Family: We are proud to announce that prosetin, a novel ALS drug candidate developed at the Project ALS Therapeutics Core at Columbia, has been acquired for commercial development by a new company, ProJenX. Read the press release here: prn.to/3JtRymM

Most importantly, the workshop laid the foundation for a new era of collaboration. Read the full workshop recap to see how Project ALS and the Packard Center are reshaping ALS research through partnership, innovation, and urgency. projectals.org/alsmodeling

For scientists working to understand how ALS begins and progresses, developing better lab-based models is essential. Over three days, participants shared new findings, pressing frustrations, and bold ideas to push science forward.

ALS affects motor neurons, the critical nerve cells in the brain and spinal cord that enable movement. But these cells can’t be biopsied to study in a lab. So how can we investigate what is happening to a motor neuron inside a person living with #ALS?

To learn more about the NIH budget and grant-making process, visit grants.nih.gov/grants-process or nih.gov/about-nih/what…. Project ALS remains committed to full transparency as this situation unfolds, and to our mission: finding a cure for ALS.

...rely on for access to potential therapies. We urge you to contact your local representatives—people living with ALS, and anyone affected by disease, deserve better. The @alsassociation has created a resource to connect you with your Members of Congress: bit.ly/4kdG75Y

The NIH is the vital ecosystem within which the United States has become a global leader in healthcare and drug development. The proposed cuts threaten critical preclinical and clinical research, and would disrupt the entire drug development pipeline that people living with ALS..

While Project ALS research currently remains on track, it will be extraordinarily difficult to keep pace with our progress if the planned cuts to NIH become reality.

Thanks to NIH funding, Project ALS has been able to take a laser-focused approach to ALS research programs and the pursuit of ambitious blue-sky initiatives.

Project ALS is concerned by proposed cuts to the National Institutes of Health (NIH). Science is our most powerful tool in the fight against disease. NIH funding— over $47 billion annually— has been vital in advancing ALS research, including at the Project ALS Therapeutics Core.

Today ONLY if you purchase any item from the website, a portion of proceeds from your order will go directly to @ProjectALSorg ! This is the second time this year we’ve had the awesome opportunity to work with them and help raise some money!

@RotoWear once again proving what's possible when we come together as a community. Thank you for all you do to fight ALS. ❤️

@RotoWear @SlangsOnSports @PitchingNinja You are so incredible! We are so grateful to be fighting alongside you!

We’re proud to have donated $167,312.32 to @ProjectALSorg so far with proceeds from our Baseball Is The Best shirt! Thank you to everyone who purchased a shirt in support of @SlangsOnSports and helped in the mission to end ALS. 🔥👕 available only at: rotowear.com/products/baseb… 👇 donate directly: projectals.org/?form=donate

Discover the critical work shaping the future of Project ALS research at our Town Hall. Join us as we discuss emerging disease models, motor neuron rejuvenation, and the development of potential therapies for ALS. Sign up for the virtual town hall today: bit.ly/497iCX8

@matthewcerrone @RotoWear @PitchingNinja @SlangsOnSports Thank you for your support. ❤️

Love the shirt, @RotoWear & @PitchingNinja! Your fight and words are inspiring, @SlangsOnSports! I’m so proud of what you’ve accomplished and knowing MetsBlog was one of the first stops on your journey! Keep fighting!! #LGM @ProjectALSorg rotowear.com/products/baseb…

Join us Nov. 14th at 11AM for The Alex and Jaci Hermstad Rare Disease Trailblazer Series. Hear from patients, families, advocates, and scientists working together toward a future free of ALS. Register: bit.ly/3Uui0Vp

@NicoleWilsonNY @AaronLazar @rannellswotd @SaraBareilles Thank you for capturing this event! ❤️

What an absolute gift to be asked to photograph "An Evening with #AaronLazar" - a Broadway Concert Benefit for @ProjectALSorg . Featuring some of the most incredible artists from the #Broadway community 📷 #sarabareilles #Brianstokesmitchell #andrewrannells #adampascal

@muniba_mazari Thank you so much for being a part of this special night. ❤️

What an absolute honour to celebrate & support my dear friend Aaron Lazar & Project ALS! 🩵 Aaron you’re an epitome of strength, resilience & compassion. Your journey of healing from ALS is a beacon of hope to so many. So thank you for all that you do & thank you for being you. Big hug for the incredible Lazars! ✨ #MunibaMazari #AspiretoInspire #DailyMotivation @ProjectALSorg

Join us on October 22nd at City Winery NYC for An Evening with Aaron Lazar—a night of music, laughter, and inspiration to benefit Project ALS Research. 🎤✨ Doors open at 6:30 PM! Join the experience today: bit.ly/3ZdmnXY

Project ALS Core's Dr. Tulsi Patel is such a great example of women kicking some serious a**. Dr. Patel was at Gordon Conference, an international research forum, in Tuscany Italy this week repping Project ALS. Get your @HerALSStory collab tee: bit.ly/46Czhk3