RareEpilepsyNetwork

November is National Epilepsy Awareness Month! #DareTo Go the Distance with the Epilepsy Foundation! tinyurl.com/pc2hsgl

Check out our new REN study postcard! We now have 22 patient advocacy organizations working as part of REN!

Thank you @ajam for helping raise awareness #KCNQ2 Epilepsy @RareEpilepsyNet @RareDiseases bit.ly/1jLt6lj

@RareEpilepsyNet has 1000 enrolled! Ohtahara families keep the momentum going and register with REN. #EpilepsyAwarenessMonth

Kathryn Jensen, mother of a child with Hypothalamic Hamartoma, urges all affected families to register for REN. youtu.be/YnnrpGrZRCY

Congratulations to REN's first Amazon gift card winners: Amie Bloom, Maryalicia Verdecchia, Cathy Hoyda, Sondra Tasker, and Karin Kilpatrick

The American Epilepsy Society (AES) accepted two research posters from REN to be presented at 2015 annual AES meeting in Philadelphia, PA!

Win an Amazon gift card from REN in September 2015! ren.rti.org/Contest

Kristin Frausto, a Tuberous Sclerosis Alliance constituent, discusses the REN: youtu.be/ggPxDOGUu1Q.

Karen Groff, a Lennox-Gastaut Syndrome Foundation constituent, discusses the importance of registering for the REN: tinyurl.com/q9q5dms

Lisa Soeby, Co-Founder of Hope for Hypothalamic Hamartomas, discusses the importance of registering for the REN: tinyurl.com/qxntko4.

Register for this upcoming webinar about epilepsy, anxiety, and mood changes, hosted by the Epilepsy Foundation: tinyurl.com/pg6xj6m.

A parent of a son with a rare epilepsy explains why she participated in the Rare Epilepsy Network registry. tinyurl.com/opzzbcz

Epilepsy has been found to reduce the generation of new neurons. tinyurl.com/ktdfapu

Be sure to catch a Twitter chat about mental health sponsored by @PCORI tomorrow, May 19th from 3-4 pm Eastern. Use #MHTalk to join.

We have reached an enrollment of 600! We are almost halfway to our goal. Won't you help us reach it?

Our new REN buttons are in!

The Rare Epilepsy Network (REN) is currently recruiting for its rare epilepsy study!