Louise 💛

@whentaniatalks Following!

Bendy friends - what type of walking stick do you recommend? Needs to be foldable so I can throw it into my bag. Bonus points if you've got any suggestions that would make using it on dry sand easier. #EhlersDanlosSyndrome #DisabilityTwitter

@sainsburys is your app down? I cant make any ammendments to a delivery due tomorrow

Speaking out about how I was feeling was by far the best thing I have ever done... i only wish I did it years ago! #postnataldepression #pnd #depression #anxiety #mentalhealth #MentalHealthMatters

@mypaleskinblog ive inboxed you over on Instagram about your latest insta post on histamine / wine! We both follow EDS UK and wanted to drop you a msg about something that helps me x

I didnt feel comfortable ringing the GPs and asking for an emergency appointment today, you have to give a reason and I feel like this is quite intrusive. I cant say the words PND.. so I've done a self referral online. Anyone know how this works??

Its 3am and weve been awale since 1am. Mostly crying and feeling angry. I've decided today I will make a drs appointment to get help, I cant carry on feeling like this. I so hope they have an appointment

I am angry all of the time. I hate it. I dont want to be like this.

@JoannaNoBanana Cleaning! I always feel worse when the house is messy, the clothes are piled everywhere and clean bed sheets

Hey #chronicallyill and/or #disabled crew, What’s something that abled person can do for you (or has done for you) that means a lot? 💛

Perks of having #EhlersDanlosSyndrome I can hold the bottle and feed Leo whilst changing the TV channel!

@autiegethernow I'm on it on and off for UTIs and mast cell overgrowth in my bladder x

@autiegethernow Doxycycline ( probably spelt wrong) x

@PayPal @PayPalUK @AskPayPal is this legit?

@courtzmelv Scandal, little fires everywhere, the good wife, the good fight, dead to me

Can someone recommend a good series to watch please? I need something I can binge watch!

Not usually one to post this kind of thing but... 24 years ago today I gave birth to my daughter. As a 16 year old many people thought I had ruined my life. I’ve just finished my 1st month as a Consultant Cardiologist, today I’m feeling proud. #nowrongpath

@OberloApp hi there, im looking at the manage products online but nothing seems to ship to the UK? Please could you help?

@autismfeelslike @ehlersdanlosuk I know it really sucks 😔😭. I used to use the olympic bar and assisted weight bar a lot but havent been able to in 2/3 years. Hopefully you can find some alternatives soon that you get the same benefit/enjoyment from! 🤞xxxxx

@chronic_lc @ehlersdanlosuk nd it’s so heartbreaking that I want to be able to lift weights but my body won’t let me :( or the drs wont let me. Or being in pain from something so bloody simple

Can someone please help me? I’m so upset & frustrated. I really need some exercise advice. Can’t stop crying. My doctor told me to stop lifting weights because my hands would lose the ability to grip after I do deadlift or barbell work outs. #EDS #actuallyautistic @ehlersdanlosuk

@autismfeelslike @ehlersdanlosuk Static workouts that are low impact that also burn a lot of calories as well!! Its so disappointing when your Dr shuts you down. I went through a few and physios until i found one who worked with me rather than telling me no! Xxxc

@autismfeelslike @ehlersdanlosuk Exercises your body can manage. I found a really good sports physio and PT who knew about EDS and worked with me to find what worked. I cant run either due to prolapsed discs / tears so i ride a bike or use a recumbent bike. Theres also ways to get a cardio workout in from

@nextofficial hello! I was wondering if its possible to hang the "bevel floor standing mirror" 805-145 . Does it have attachments in the back so you could hang it?