Diane Pickles

502 posts

Diane Pickles

@dmpickles

A Jersey girl at heart living in MA; love family, sports, beaches, and books; Program Director, Project Singular, Additional Ventures. Opinions my own.

Massachusetts 가입일 Mart 2009

534 팔로잉361 팔로워

Diane Pickles@dmpickles·17 Nis

So grateful to have been a part of this incredibly important report.

Additional Ventures@AdditionalVent

🚨New Report: Disproportionate Economic Burden of complex #CHD We’re proud to share our report examining the cost of complex #congenitalheartdisease on patients, families, and the US economy. Read more & download the full report! additionalventures.org/news/the-dispr…

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Diane Pickles 리트윗함

Additional Ventures@AdditionalVent·16 Eki

We have exciting announcements dropping this week ... any guesses? 👀

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Diane Pickles 리트윗함

Additional Ventures@AdditionalVent·11 Eyl

Hot off the press! 🚨 We’re proud to share our 2022-2023 Annual Report – and highlight the people, projects, processes, and programs working towards finding a functional cure for #singleventricle #congenitalheartdisease ow.ly/Wg8V50PKfUB

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Diane Pickles 리트윗함

Additional Ventures@AdditionalVent·8 Eyl

With $2.25M, how would YOUR team tackle single ventricle sequelae? 💭💡 #fundingopportunity #singleventricle @AHAScience Learn more and apply: ow.ly/isYm50PJ1xy 📆 Pre-Proposals (LOIs) are due December 19th!

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Diane Pickles@dmpickles·8 Eyl

As a former employee of AHA, a current employee of Additional Ventures, and mom of an adult with single ventricle heart disease, I am incredibly excited about this new initiative. Please spread the word!

Additional Ventures@AdditionalVent

📣 Today is the day! Together with @AHAScience, we are thrilled to announce the LAUNCH of the AHA/AV Collaborative Sciences Awards in Single Ventricle, dedicating over $13M to support #singleventricle focused research 🫀 Learn more and apply: ow.ly/1usC50PIYTT

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Diane Pickles@dmpickles·6 Eyl

Stay tuned!

Additional Ventures@AdditionalVent

👀 We've been cooking up an exciting collaborative opportunity for the field, and we can't wait to share! Stay tuned for something BIG - announcement coming tomorrow❗#fundingopportunity #singleventricle

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Additional Ventures@AdditionalVent·6 Eyl

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Diane Pickles@dmpickles·11 Şub

@APerronHasHeart @STMath @MrsMalsPals Congratulations Riley!!!!!!!!!

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Allyson Perron ☮️@APerronHasHeart·10 Şub

Someone was very excited to complete his ⁦@STMath⁩! Thanks ⁦@MrsMalsPals⁩ for his love of math! #littleschoolbigheart

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Diane Pickles@dmpickles·12 Kas

@FredWuMD @PerronServices @FontanOutcomes @NPCQIC @sasha_opo Great photoshop of the podium @FredWuMD !!!

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Fred Wu, MD 🫀 吳明杰@FredWuMD·11 Kas

Executive Co-Director, Dr. Sasha Opotowsky, kicking off the @FontanOutcomes Learning Session in Chicago! (I fixed up the podium a little bit in Photoshop...) @NPCQIC #FONLS #StrongerTogether

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Diane Pickles@dmpickles·8 Eki

@DianaBFulmer @AdditionalVent Thank you! We are so grateful to the patients and families who shared their photos and stories with us!

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Diana Voss@DianaBFulmer·8 Eki

Wanna take a sec to compliment @AdditionalVent for the ways they’ve connected the physicians & researchers with patients @ #SVIM2022. Everyday btw sessions they play these messages from the families about their hopes & fears. It’s emotional. It’s real. It’s motivating. Thank you.

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Diane Pickles 리트윗함

Dr. Nadine Kasparian@NKasparian·7 Eki

“Just because the focus is narrow, I don’t think the impact is small” ~ Erin Hoffmann, President & Co-founder @AdditionalVent on the importance and broad downstream benefits of funding for research on #RareDiseases #SVIM2022

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Diane Pickles 리트윗함

Additional Ventures@AdditionalVent·1 Eyl

Join us at #Cardiology2022 TODAY at 4PM for a happy hour & information fair about #ProjectSingular & @FontanOutcomes! + Hear from leaders in #singleventricle research @dmpickles Erin Hoffmann @kk_does_science Jack Rychik @CaroleLannon @sllihn @TomGlenn_3 ow.ly/TN4450KtVkm

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Diane Pickles 리트윗함

Additional Ventures@AdditionalVent·31 Ağu

We're thrilled to catch up on all the latest advances in #pedscard & #congenitalheartdisease at #Cardiology2022! Stop by our poster today and learn about #ProjectSingular - our new direct-to-patient whole genome sequencing initiative for #singleventricle! ow.ly/OXhb50KtVcP

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Diane Pickles@dmpickles·26 Ağu

I hope to see you all there! So excited to share these two amazing initiatives where I am honored to spend my time.

Additional Ventures@AdditionalVent

Don't miss it! We're sponsoring an information fair & happy hour all about #ProjectSingular & @FontanOutcomes - two game-changing innovations in the #singleventricle space! REGISTER ow.ly/mYmk50KrnYs 📍Join us at #Cardiology2022 Sept 1st at 4PM PT twitter.com/HeartCare4Kids…

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Diane Pickles 리트윗함

Additional Ventures@AdditionalVent·5 Ağu

It's not too late to join us at #SVIM2022 on October 6-9th at the Baltimore Marriott Waterfront! 🦀 Interested in participating? Submit your late breaking abstract now through Sept 5th & register by Sept 30th! Learn more & register: cvent.me/3PD9lD

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Diane Pickles@dmpickles·16 Tem

@AdditionalVent @NKasparian @American_Heart Congratulations!!!!!!

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Additional Ventures@AdditionalVent·15 Tem

Outstanding work from @NKasparian and colleagues publishing @American_Heart's first Scientific Statement addressing psychological outcomes & interventions for individuals with #congenitalheartdisease 📝 ow.ly/L82f50JWU4C twitter.com/NKasparian/sta…

Dr. Nadine Kasparian@NKasparian

@American_Heart releases 1st Scientific Statement addressing the psychological needs of people with congenital #heartdisease & call to action: Improve access to #mentalhealth care for all with #CHD across the lifespan professional.heart.org/en/science-new…

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Diane Pickles 리트윗함

Additional Ventures@AdditionalVent·8 Tem

🚨 Hot off the press! We're thrilled to contribute to the @JCDD_MDPI Special Issue on #HLHS Etiology, Pathogenesis, Management and The Future Catalysts for Change: The Role of Nonprofits in Solving #SingleVentricle @KaitlinPhD @dmpickles @kk_does_science mdpi.com/2308-3425/9/7/…

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Diane Pickles 리트윗함

Additional Ventures@AdditionalVent·7 Tem

🚨THREE MORE MONTHS until we're hosting the biggest event in #singleventricle heart disease research!! You won't want to miss this special event -- head over to our website to REGISTER & join us at #SVIM2022 #conference October 6-9 ow.ly/oGOB50HpUF5

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Diane Pickles 리트윗함

Additional Ventures@AdditionalVent·7 Tem

Deadline Extended! 🚨 We want to hear from YOU about what you'd like to participate in at #SVIM2022 Submit your ideas now for breakout sessions that will take place during the meeting. Due 7/15! forms.gle/noHcSv1h3JFhRz…

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Diane Pickles 리트윗함

Additional Ventures@AdditionalVent·20 Haz

We're hosting an open call for research proposals relevant to #singleventricle #congenitalheartdisease - including etiology, outcomes, care, & cures. Learn more about #SVRF2022 here: ow.ly/7QCO50JjT8z 💲 Up to $600,000 over 3 years 📆 #SVRF2022 LOI due Aug 5

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탐색

@AHAScience @APerronHasHeart @STMath @MrsMalsPals @FredWuMD @PerronServices @FontanOutcomes @NPCQIC