FON

In case you missed it, FON & NPC-QIC are now the Single Ventricle Outcomes NEtwork (SV-ONE)! Catch up with us on LinkedIn (linkedin.com/company/sv-one/), Facebook (facebook.com/singleventricl… ), or Instagram (instagram.com/singleventricl…) for the latest updates!

Apply to join the SV-ONE Quality Improvement Workgroup by June 30! The Workgroup is seeking new volunteers to join beginning this summer. We welcome multi-disciplinary perspectives, individuals with SVHD, & family members to this team. Details: buff.ly/7EWGLok

On July 1, we will officially transition to SV-ONE! We are excited to enter this next phase of our journey and continue striving to transform outcomes for all individuals with single ventricle heart disease. Connect with us on LinkedIn to follow along: linkedin.com/company/sv-one/

Last call to join the Single Ventricle Patient Day (SVPD) Planning Committee! Committee members help plan and coordinate SVPD for our Fall Learning Session! All individuals with single ventricle aged 14+ are encourage to apply ASAP at buff.ly/Wh9rhHm !

Exciting news: We recently expanded our Active Living with Fontan Circulation Toolkit to include resources for adolescents and adults! Visit fontanoutcomesnetwork.org/resources to learn more! #Fontan #fontancirculation #heartwarrior

Today is your last chance to register for our Spring 2025 Virtual Learning Session, taking place tomorrow! This year's theme is Transitions, focusing on our transition to SV-ONE and our evolving lifespan approach as a network! Visit buff.ly/o6FHTPY to register for free!

We have some exciting Breakout Sessions planned during our Spring 2025 Virtual Learning Session! Clinicians, individuals with single ventricle heart disease, and their family members are welcome to attend on May 21! Register for free: fontanoutcomesnetwork.org/.../spring-2025

Our Spring 2025 Virtual Learning Session is less than a month away on May 21! This year's theme is Transitions. Will you be joining us? Visit npcqic.org/events/spring-… for additional details and to register!

Join Sisters by Heart for a special webinar on Wed. 4/30, featuring a presentation from Jesse Hansen, MD about the FON Physical Activity & Exercise QI Project and how physical activity is being redefined for those living with SVHD. Visit docs.google.com/forms/d/e/1FAI… to register!

Registration is open for our Spring 2025 Virtual Learning Session, taking place on May 21! This year's theme is Transitions. Visit fontanoutcomesnetwork.org/events/spring-… for additional details and to register!

We have a new FON #HeartHero to celebrate! Say hello to Kate! Kate is actively involved in cheer, dance and student organizations like Student Council and National Honor Society! Learn more about Kate's story fontanoutcomesnetwork.org/news/fon-heart…

The deadline to submit a Research Letter of Intent has been extended to April 15, 2025! Please visit fontanoutcomesnetwork.org/research-overv… for more information!

The NPC-QIC Journey Map is now available! This comprehensive guide showcases our evolution over the last 15 years, highlighting our continuous commitment to improving survival and optimizing the quality of life for infants with HLHS. Learn more: buff.ly/4gCvmap

#CHDAwarenessWeek Did you know? Individuals affected by congenital heart defects often need ongoing medical care throughout their lives.#HeartMonth #CHDAwareness

Care centers: Today is the last day to submit your commitment to join the FON Physical Activity & Exercise Improvement Project! Check your email for your invitation packet and commitment form!

#CHDAwarenessWeek Did you know? Having a CHD can increase an individual's risk of developing certain medical conditions. #HeartMonth

#CHDAwarenessWeek Did you know? Thanks to advancements in CHD research and care, there's more than 2 million #HeartWarriors currently living in the United States! #HeartMonth