Julie Johnson

1.3K posts

Julie Johnson

Julie Johnson

@solongsarcoma

Wife, mom of 4, sarcoma patient. Trying to keep my full & fabulous life going for as long as possible. I dream of the day we can say #solongsarcoma

St Louis, MO 가입일 Kasım 2008
556 팔로잉381 팔로워
Julie Johnson
Julie Johnson@solongsarcoma·
@DrSarcoma There are no words to adequately describe the magnitude of this loss for his family, his patients, and the broader sarcoma community. I am so saddened to hear of his passing.
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george demetri
george demetri@DrSarcoma·
Tragedy confirmed: I just learned about the untimely passing of our colleague Dr Brian van Tine yesterday from this family member’s post; The #CTOS2025 conference will be an opportunity to mourn this light in our field and to celebrate his life
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Oncology Unscripted
Oncology Unscripted@OncUnscripted·
🚨 New episode! 🚨 Katie, Julie, and Matt subject each other to an "Ask Me Anything", burning questions for clinicians, patients, and their families ❤️ How cancer changes life, future of medicine, coping with death, and... Online doc comedy 😂 We hope you enjoy!
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Oncology Unscripted
Oncology Unscripted@OncUnscripted·
Back in 2024 😎 In our first episode of the year, @solongsarcoma, @kaydaustin, and @SprakerMDPhD start to discuss: How should you pick your doctor? It turns out that it's complicated 😀 Check out our latest episode below or wherever you get your podcasts!
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Suzie Siegel
Suzie Siegel@SuzieSiegel·
🧵This study suggests women who are diagnosed with uterine #leiomyosarcoma and a few lung metastases at the same time (stage 4) benefit from surgery to remove the primary tumor & the lung mets. #sarcoma #gyncsm
@GynOncJnls@gynoncjnls

Treatment patterns and outcomes for primary uterine leiomyosarcoma with synchronous isolated 🫁🩻 metastases: A National Cancer Database study @HopkinsGynOb @HopkinsGynOnc @HopkinsMedicine @SGO_org @IGCSociety @ESGO_society @ASCO @OncoAlert sciencedirect.com/science/articl…

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Julie Johnson
Julie Johnson@solongsarcoma·
Sarcoma family, do not miss this one! It’s a must listen as we dive into some of the less discussed but more challenging aspects of immunotherapy.
Oncology Unscripted@OncUnscripted

Happy Thanksgiving! 🦃 Check out our 10th episode for your travels! We are lucky to host our first guest, @breelynwilkyMD, for a chat on immunotherapy and #sarcoma! Great conversation with a lot of immune info for all patients and oncology clinicians! Have a great holiday!

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Julie Johnson
Julie Johnson@solongsarcoma·
Cancer is unpredictable. Oncology waiting rooms are not. Is there a hidden NCCN guideline that HGTV is the one TV station allowed? 🤪 @ThanksCancer
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Julie Johnson
Julie Johnson@solongsarcoma·
@rushmorealum @UPMCHillmanCC Very interesting- doesn’t sound like these were personalized and also, not sure anyone thinks that vaccines alone will be the ticket to clearing stage IV. They may have a place, but will need to be alongside other therapies in a well crafted sequence. IMO.
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Julie Johnson
Julie Johnson@solongsarcoma·
@AlterCancerCare Agree, just wish there were real opportunities for patients to work with trained medical professionals to build a strategy that aligns with the patients risk tolerance AND to access the therapies in the strategy. Both of those are very difficult for the av patient to accomplish.
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Dr. Zhang, PhD
Dr. Zhang, PhD@CureFinder·
@solongsarcoma For many #stage4 patients, going beyond soc is the only way to survive. Current only a few can do that due to the enormous difficulties.
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Dr. Zhang, PhD
Dr. Zhang, PhD@CureFinder·
Never give up asking questions: what is the best option now? What is the next if the current one stops working? What can be added to increase chance of NED? Need plan ahead of the disease. It needs more to defeat #stage4 cancer than the treat-wait-resist-treat next line paradigm
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