Adam

My #MECFS scandal explainer video has just passed 200,000 views. Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since. @abrokenbattery/me-cfs-scandal-follow-up-4bb776e9d459" target="_blank" rel="nofollow noopener">medium.com/@abrokenbatter…

Full video: Carte Blanche, a South African investigative TV programme aired in 2017 (11 mins) youtu.be/oOk8SrZ-ufU?is… CDC website: cdc.gov/me-cfs/about/i…

I hate the term Chronic Fatigue Syndrome because “fatigue doesn’t even come close to describing what it is” and it’s “a minor symptom” compared to the others. Natalie Williams explains why CFS is misleading. #MECFS

Edit: Dr Picard is a Professor of Behavioral Medicine his research focuses on how psychology and behaviour affect mitochondrial energy production. Sharing for context, not endorsement.

Full segment youtu.be/6xlmaorRY0w?t=… More info on Ear seeds (Bartlett invested on Dragons Den) me-pedia.org/wiki/Acu_Seeds ITV’s This Morning covered the backlash youtu.be/2zp9HQVgdRI?si…

Clip from Stephen Bartlett's recent interview with mitochondrial researcher Dr Martin Picard. Bartlett says the top question on Martin’s videos was about #MECFS and #LongCOVID, but he's not sure what #MECFS is. Interesting, given the earseeds controversy.

@VladVexler Congrats! 💙

I’m married! ME LC vantage point.

Alternative link archive.ph/j1HXH

Article with the full video (3 mins) thetimes.com/uk/healthcare/…

“It was horrendous, it was almost like being in a semi-coma. All my very basic bodily functions were struggling and my capacity to do anything like read or watch TV was zero.” Dr Nina Muirhead, describing how ME affected her in 2020 #MECFS

The amendment was tabled by Tessa Munt MP and moved by Helen Morgan MP. More info meassociation.org.uk/2026/07/nice-g… Transcript #g421.4" target="_blank" rel="nofollow noopener">theyworkforyou.com/pbc/2026-27/He…

Full video (16 mins): UK Parliament debate on an amendment to the Health Bill to improve implementation of the NICE guideline for #MECFS. youtu.be/nMqwjpcB7Io?is…

“5 years after the introduction of NICE guideline NG206 [for #MECFS], little has changed. Service provision according to NG206 remains patchy and poor, with many patients having traumatic experiences” Helen Morgan MP, UK Parliament

Full video: Jane Colby of the Tymes trust and Ashleigh Lovett talk about ME on ITV News Anglia in 2013 (4 mins) #MECFS youtu.be/ooQD0udeydY?si…

“You never know what the next day is going to be like. You don’t know if you’re going to be well. You don’t know if you’re going to be bed-bound.” Ashleigh Lovett talking about how ME affects her. #MECFS

Full video (3 mins) youtu.be/1ruW8U8MixY?is…

ME “is as serious as AIDS, cancer, multiple sclerosis. You feel as ill as those people do, but neglected a lot by friends and family because they don’t realise how sick you really are.” ME patient Barbara Kell, BBC Look North 2012 #MECFS

@useless_priest @zoemaddensmith 🙏

@ABrokenBattery @zoemaddensmith 👏

“It’s ridiculous that ME isn’t considered a disability by our government. It’s one of the most disabling disabilities that there is.” Elvira Edmonds, 29, has been confined to her upstairs bedroom in Wellington New Zealand for more than 4 months with severe ME. #MECFS

1) A notable trend in these positive developments is how many are taking place in 🇪🇺Europe instead of the 🇺🇸US. A major shift has taken place in just a couple of years.

Thanks to Zoe Madden-Smith, who was part of the team behind this story. Zoe made an award-winning documentary about ME/CFS in 2025. Zoe’s documentary youtu.be/DsOAq6cs564?is…

Article and video: stuff.co.nz/health/3610033…