Australian Epilepsy Project

Please note the Australian Epilepsy Project is no longer active on X. Keep up to date with our news via social media platforms LinkedIn, Instagram and Meta. This account is inactive.

Along with research outcomes, the AEP portal has been a key outcome of our study and a crucial diagnostic tool for neurologists. Australian Epilepsy Project's Digital and Technology Lead, Anton de Weger, talks about its development and future outcomes. ow.ly/MyWS50SLRT0

Meet Seiko, a valued member of the #AustralianEpilepsyProject’s Clinical Trials team. We sat down with Seiko to find out a little more about her favourite foods, her proudest achievement and who she’d most like to meet. Click the link to read more: ow.ly/bGIj50SJLLo

#EpilepsyActionAustralia has provided support for over 65 years, dedicated to raising awareness and promoting understanding of epilepsy within the community. We spoke with Epilepsy Action Australia CEO, Carol Ireland, about the importance of their work. ow.ly/5pq750SHQXK

Meet Kylie, a recent participant of the #AustralianEpilepsyProject who's had epilepsy almost her entire life. Does she feel the AEP assisted her treatment outcomes in any way? "Yes, tremendously. The treatment gave us a new perspective." Read her story: ow.ly/FRqb50SGS0r

Early career researchers are a vital part of the #AustralianEpilepsyProject and to our research outputs. Find out more about their areas of study below. Suyi: ow.ly/TcPx50SETS2 Philip: ow.ly/KBBr50SETS3 Vicky: ow.ly/AlaQ50SETS5 Leila: ow.ly/Axzl50SETS4

Luke was a recent volunteer for the #AustralianEpilepsyProject’s control group. "Volunteering for the AEP is a unique opportunity to contribute to advancing epilepsy research. If I had the choice to volunteer over again, I would, without question. " ow.ly/nr0650SESct

Lauren experienced seizures for six years before getting a diagnosis. She recently joined the #AustralianEpilepsyProject, gaining access to advanced testing to aid diagnostic and treatment pathways. Read her story: ow.ly/lzwL50Sv8bs Find out more: ow.ly/t3IL50Sv8bt

Darcey experienced her first seizure two years ago. It was initially thought she’d had a stroke. She received an epilepsy diagnosis last year and recently participated in the #AustralianEpilepsyProject. She shares her story ow.ly/e4BN50Sm5Nw

#NowMoreThanEver is the theme of this year's National Reconciliation Week. So, let's all take meaningful actions towards unity and respect. Together, we can build a stronger, more equitable Australia. #NRW2024 #ReconciliationWeek #ActionsSpeakLouder

Diagnosed with late-onset epilepsy, and struggling to understand why me and why now, lead John on a mission to create a website and Facebook group (BrainEactz), providing resources and support for others facing a similar life-path. ow.ly/z8pz50RWgcV

Do you like helping others? Join like-minded people and volunteer for the Australian Epilepsy Project (AEP). Learn more: ow.ly/K63y50RHS9f #NVW2024 #SomethingForEveryone

🌍 Happy International Clinical Trials Day! Today, we honour the researchers, clinicians, and participants who drive medical advancements through clinical trials. Your work is essential for better treatments and a healthier future! #ClinicalTrialsDay #MedicalResearch @TheFlorey

Are you interested in contributing to epilepsy research and helping to improve the lives of the 1 in 25 Australians living with #epilepsy? Volunteer for the #AustralianEpilepsyProject. #SomethingForEveryone in the world of volunteering. Learn more: ow.ly/Hnyi50RHRIw

Meet young adults Rosie and James on the eight-episode 'I’ve Got This! Owning My Epilepsy' podcast series, which delves into the experiences and challenges of young adults living with epilepsy. ow.ly/Gq7l50Ry8g7

You may have met #AustralianEpilepsyProject team member, Chath, during your medical history or follow-up interviews, as a participant of the AEP. What's her ideal weekend involve? And what's her current streaming recommendation? Click the link to find out: ow.ly/GSwI50Rx1mL

Bruce experienced his first seizure later in life and was made aware of the #AustralianEpilepsyProject after a visit to hospital. Read his story ow.ly/IUNa50RlRm3 and check your eligibility to join the AEP and receive access to advanced testing: ow.ly/x6uO50RlRm2

Gary recently participated in the #AEP to receive access to advanced testing (MRI, neuropsychology and genetics) via our national network of specialist AEP Hubs. Read his story ow.ly/PZRt50RiHhw Check your eligibility to join the AEP ow.ly/nvgl50RiHhv

Fiona experienced her first seizure at 34-years-of-age and has since been diagnosed with drug-resistant epilepsy. She shares her journey with epilepsy and experience as a participant of the #AustralianEpilepsyProject. ow.ly/a0yH50RcMUw

Insights from neuroscientist and #AustralianEpilepsyProject AI Lead, A/Prof. Mangor Pedersen on the use of AI in the AEP and the implications of the recent World Health Organisation publication addressing regulatory considerations on using AI for health. epilepsyproject.org.au/post/the-ethic…