AE_Alliance

BREAKING NEWS: The ExTINGUISH trial will start recruitment in January 2022! Learn more: aealliance.org/breaking-news-… @StaceyLClardy @extinguishtrial @AntiNMDA_Inc

A great piece about Dana Mitchell, a fourth-year medical student, who after lots and lots of research came up with a protocol to treat her own autoimmune encephalitis! medicine.iu.edu/.../Celebratin…...

The online Westcoast support group meeting is scheduled for Wednesday, October 20th at 7 pm PST. We are excited to announce that Dr. Santoro will present and talk about AE treatments and memory issues. aealliance.org/events/west-su…

Use and Safety of Immunotherapeutic Management of N-Methyl-d-Aspartate Receptor Antibody Encephalitis: A Meta-analyses.aealliance.org/what-are-the-m…

AE Alliance is proud to partner with @EUROIMMUN again on the AEA Family Day. EUROIMMUN, whose autoantibody testing panels help patients get an accurate diagnosis, is committed to discovering new autoantibodies that drive AE. Learn more: aealliance.org/partner-focus-…

Complementary therapies can help relieve symptoms like fatigue, stress, and anxiety without adding more medications. Check out our workshops at the Virtual AEA Family Day! aealliance.org/the-importance…

We are excited to have so many people signed up for the AEA Family Day already. It promises to be a great day of sharing, learning, and doing! The workshop ‘Managing Cognitive Challenges’ has reached capacity and is no longer available.Learn more: aealliance.org/aea-family-day…

Fatigue is a prominent feature affecting the quality of life in AE, and should be evaluated as part of ongoing medical care, and may be an important outcome in treatment trials. nn.neurology.org/content/8/6/e1…

Join us for the Virtual AEA Family Day! Meet other families going through similar challenges and share stories about your AE journey. Learn about the latest research and discover strategies to manage stress and improve each day. aealliance.org/register-now-f…

Just released: International Consensus Recommendations for the Treatment of Pediatric NMDAR Antibody Encephalitis! These treatment recommendations will be of great value to children affected by AE and clinicians worldwide. aealliance.org/international-…

Refuel You is a 10-week health and wellness program to help rejuvenate you following your AE journey. Our Fall 2021 class quickly filled up and we are considering opening up a second class for our caregivers. Follow the link to learn more: aealliance.org/refuel-you/

Mark your calendar for the AEA Virtual Family day on Saturday, September 18th! A day to connect with others, learn, and do! #AEAFamilyDay2021

Recordings from “Building Bridges: A Multidisciplinary Approach for Treating Autoimmune Encephalitis” are now available for public viewing. Visit aesymposium.com or YouTube at HESA Online Info to watch!

Good News! In 2018 Lisa, Marie's mom, shared her duaghter's journey with AE on our website. Today, she is happy to share an exciting update: aealliance.org/good-news-2/

Brain dysfunction and thyroid antibodies: autoimmune diagnosis and misdiagnosis: aealliance.org/brain-dysfunct…

Mayo Clinic Laboratories offers first test to detect recently discovered autoimmune disease associated with testicular cancer. newswise.com/articles/mayo-…

We are excited to share the June edition of our AEA newsletter, featuring Q&A with Dr. Mooneyham about the use of psychiatric medications in AE, an in-depth look at our new website, an inspiring AE journey, and much more! aealliance.org/wp-content/upl…

Two more days to join the Research Network. Invest in research to get to a quicker diagnosis and more targeted treatments. Any donation you make today will be matched during the month of May! Please donate today! classy.org/campaign/aea-r…

Three more days to join the Research Network. Let’s grow the Seed Grant Program so we can improve the lives of those affected by AE. We have a match any donation you make will be doubled, during the month of May. Please donate today! classy.org/campaign/aea-r…

Only a few more days left to donate to the Research Network. Your donation today will be matched up to $15,000! classy.org/campaign/aea-r…