@zevratx Thank you for your support, great photos! ❤️
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Annabelles Challenge Vascular EDS Charity
13.5K posts
Annabelles Challenge Vascular EDS Charity
@AJsChallenge
We provide care & support to patients & families affected by #VascularEDS in partnership with the NHS EDS Service. Proud recipients of The Queen’s Award 2018.
Bury, Manchester UK Katılım Şubat 2013
1K Takip Edilen2.7K Takipçiler
Annabelles Challenge Vascular EDS Charity retweetledi
Zevra is wearing red for #REDS4VEDS
We’re raising awareness for vascular Ehlers-Danlos Syndrome (VEDS), a rare, life-threatening condition. Learn more about VEDS: zevra.com/vascular-ehler…
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Annabelles Challenge Vascular EDS Charity retweetledi
Annabelles Challenge Vascular EDS Charity retweetledi
Gateshead dad fundraising to support others with genetic disorder affecting him and his son
itv.com/watch/news/gat…
itv.com/watch/news/gat…
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FREE community event in Bury at The Millgate Shopping Centre.
Communities celebrating multiculturism, faith & diversity, various stalls - food, faith & volunteer organisations coming together on Wed 22nd July.
See emergency vehicles police, fire, army and ambulances.
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Annabelles Challenge Vascular EDS Charity retweetledi
Last run til the big one on Sunday. 135 miles of training put in this year on top of the 1179 miles last year. As ready as I can be for the 26.2 miles for the adidas Manchester Marathon. Wish me luck and please visit my just giving page,every penny counts (link in bio)💜🙌🏼
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Taking place this weekend raising funds & awareness for AC and #vascularEDS.
We Deserve More Tomorrows! 💜
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Representation matters, especially in #raredisease!
Our board, chaired by David Catterall DL, includes 67% trustees who are directly affected by #vascularEDS.
We lead with lived experience because our community deserves more tomorrows. 💜
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Sheffield Half Marathon done in 2:24:38 ✅ plus an incredible £1,135 raised for Annabelle’s Challenge.
Well done Jess who is one of the GC’s in the EDS Service.💜
Helping us make more tomorrows possible for people living with #vascularEDS.
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Look who turned 17 today! Happy Birthday Annabelle.
May you continue to shine brightly and provide inspiration to those in our community. We hope you have a lovely birthday. 🎉 💜
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Annabelles Challenge Vascular EDS Charity retweetledi
Thanks to all for the recent donations. £200 in £979 to go to hit last years running mileage target 🙌🏼💙❤️
justgiving.com/page/carl-smit…
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Update from our CEO on the latest results for 2025 helping to fund our VEDS Support Programme, Counselling Service & Research.
Happy Christmas and New Year from all of us at Annabelle’s Challenge. 💜
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Team AC is the backbone of Annabelle's Challenge, a team of over 40 amazing people working to support the charity and the #vascularEDS community we serve.
Meet Team AC: annabelleschallenge.org/our-team
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Today is #GeneticCounsellorAwarenessDay and the opportunity for us to say a huge THANK YOU to our amazing Genetic Counsellors and student GC's. 🧬
Increasingly, GC's (approx 300 in the UK) are working in a range of other roles including research.
Thank you from Team AC! 💜
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Annabelles Challenge Vascular EDS Charity retweetledi
Good morning! It’s Genetic Counsellor Awareness day!
#GCChat #GeneticCounsellor
@theAGNC
@BritSocGenMed
@eshgsociety
@ahcsuk
@NHSGGC
@PET_BioNews
@GeneticAll_UK
@AJsChallenge
@catherinemross
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Meet our Steering Committee! The team is made up of volunteers who are directly affected by #vascularEDS including patients, parents and carers supported by genetic counsellors from the NHS EDS National Diagnostic Service.
Learn more: annabelleschallenge.org/steering-commi…
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An exciting opportunity has arisen for a new Trustee to join us to lead this vital & passionate national charity in achieving its goals to provide effective support to patients of #vascularEDS and their families.
For info & to apply: annabelleschallenge.org/trustees
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Happy #TrusteesWeek to our board of trustees Andy, David, Meg, Clare & Christina! Thank you for your support as we continue to serve the #vascularEDS community. 💜
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Annabelles Challenge Vascular EDS Charity retweetledi
Have you discovered our latest edition—RARE and social, sponsored by @PTCBio? This edition focuses on the good and bad of social media in rare disease advocacy.
Inside this edition:
- Under the Same Sun grassroots social media campaign, changing narratives for people with albinism across Africa.
- The new campaign from @AJsChallenge, spreading nationwide awareness of vascular EDS.
- How Yamina Hsaini has been harnessing the power of social media while navigating the rare condition, gastroparesis.
Read now for free at bit.ly/RAREandSOCIAL
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