ALS Canada

📣 Interested in learning more about the ALS Community’s Federal Advocacy Day on Parliament Hill? Dive into our latest blog post to discover why #ALS community members and ALS organizations from across Canada gathered in Ottawa – from jam-packed training sessions to a meaningful reception and formal meetings. To read the blog post, visit bit.ly/3L72uwP.

Thank you for the question! Due to the scientific nature of the discussions and content, this event is designed specifically for researchers, clinicians, and professionals working in the ALS field. We recognize the importance of patient representation in shaping the future of ALS research and care. A small number of people affected by ALS will be present by invitation only, ensuring their voices are heard.

@ALSCanada #PatientsIncluded ?

💥 We’re not just taking a peek behind the curtain – we're shredding it. The inaugural ALS Disrupt takes place April 25-26, 2026, in Toronto, and is part of ALS Advance, ALS Canada’s National Meetings on ALS this April. There's only one week left to register. 🔗 Secure your spot today, visit bit.ly/47rrnLM.

💻 Join ALS Canada, the National ALS Genetics Counsellor, and community members for the ALS Canada Webinar: Genetics & ALS. On Thursday, April 9, at 1:00 p.m. ET, learn about what genetics means in the context of the disease, how genetic testing works, and what to expect when exploring genetic testing or counselling. To register today, visit bit.ly/40PtBRr.

📣 Share your experience navigating the financial realities of ALS in Canada to help us paint an accurate picture of the Cost of ALS into the current landscape. Your voice matters. Your experience matters. Join us in building the evidence needed to drive meaningful change. Take the survey today: bit.ly/4rJ9rnr.

ALS Canada is proud to be part of the global conversations shaping the future of #ALS research. In early March, Dr. David Taylor, Chief Scientific Officer, attended the invitation-only 26th Annual @packardcenter ALS Research Symposium, joining leading ALS researchers committed to advancing early-stage, foundational research that will help drive future therapies and biomarkers for people living with ALS. Learn more about the Packard Center: bit.ly/4sc57hn. We also extend our congratulations to Dr. Christine Vande Velde, Scientific Officer for the Packard Center, who also serves on ALS Canada’s Scientific and Medical Advisory Committee (SMAC).

We’re thrilled to launch ALS Disrupt, a bold new meeting designed to bring together global leaders in #ALS for open, timely, and collaborative discussions that move the field forward. Unlike traditional meetings, ALS Disrupt creates space for candid, solution‑focused conversations between key opinion leaders. Not behind closed doors, but live, on stage, in front of the research community. Join us at the inaugural ALS Disrupt, from April 25-26, 2026, in Toronto, and help drive meaningful impact. ALS Disrupt is part of ALS Advance, ALS Canada’s National Meetings on ALS, taking place this April. 🔗Registration is open now until March 27: bit.ly/47rrnLM.

Are you ready to make some more memories? 💜 Join thousands of Canadians coming together to support the ALS community at the ALS Canada #WalkToEndALS this summer! Register by April 1 to receive a special‑edition Walk to End ALS photo-frame magnet. 🔗 Visit bit.ly/3wlNB2p.

🔍 To complete a puzzle, you need every piece. Your experience with ALS is one of those essential pieces. Help build the full picture of the Cost of ALS in Canada by completing our survey. Whether you are living with ALS, a caregiver, or have recently lost a loved one, your input helps us understand the full financial and social impact of the disease. This knowledge drives change and supports ongoing advocacy efforts across Canada. The survey is anonymous and confidential, and it takes only 10–20 minutes. Can you help us put this puzzle together? To take the survey, visit bit.ly/3ORPxc7.

💻 Tune in on Thursday, March 19, for the ALS Canada Webinar: The Burden of ALS Study. Join Tammy Moore, CEO, ALS Canada, and Ilayda Ulgenalp, Senior Manager, Advocacy and Stakeholder Relations, to hear about the upcoming Burden of ALS study, which examines the direct and indirect costs of ALS for people living with the disease, their caregivers, and the healthcare system. To register today, visit bit.ly/4shZsGm.

CALL FOR APPLICATIONS | The newly redesigned ALS Canada Career Transition Award aims to support early-career researchers who have secured a faculty appointment at a Canadian institution and are poised to make significant contributions to the Canadian ALS research ecosystem. Our goal is to empower these investigators to grow, lead, and elevate ALS research excellence nationwide. Applications are accepted on a rolling basis, with no fixed deadline. Learn more about the program and apply today: bit.ly/46pfZ2L.

ALS Canada, alongside @BrainCanada, is proud to announce six Canadian research teams receiving funding through the 2025 ALS Canada–Brain Canada Discovery Grants, a $1.5 million investment supporting projects designed to deepen scientific understanding of ALS and accelerate the development of potential treatments. To read more, visit bit.ly/4l0ueRG.

ALS Canada, en collaboration avec @BrainCanada, est fier d'annoncer que six équipes de recherche canadiennes recevront un financement dans le cadre du programme de subventions à la découverte 2025 ALS Canada-Brain Canada, un investissement de 1,5 million de dollars destiné à soutenir des projets visant à approfondir la compréhension scientifique de la SLA et à accélérer le développement de traitements potentiels. Pour en savoir plus : bit.ly/47nC2qS

Today is Rare Disease Day. 💜 Share this post and help spread the word on how you can take action to support #aWorldFreeOfALS. 🔗 To explore our Advocacy Toolkit, visit bit.ly/4cb2Jm2.

Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease, is a terminal disease that progressively paralyzes people. Currently, there are limited treatments and no cure. Nearly 4,000 Canadians live with the disease. At ALS Canada, we’re not just envisioning #aWorldFreeOfALS – we're actively creating it. 🔗 Learn more about ALS and how you can take action today: als.ca.

The Ontario Provincial ALS Program is delivering measurable impact to Ontarians affected by ALS and the health system. Stronger multi-disciplinary ALS clinics. Timely access to essential equipment. Community-based supports that help families remain at home. We’re grateful for the Ontario government’s leadership and eager to build on this success. Read ALS Canada’s 2026 Ontario Pre-Budget submission to learn more about our recommendations to strengthen this proven approach to ALS care: bit.ly/4kB54sv.

Applications are now open for the 2026 ALS Canada–@BrainCanada Trainee Award Program! Supporting promising doctoral and post-doctoral trainees helps drive innovative ideas and compelling breakthroughs. Apply today and help spread the word: bit.ly/4am1IGs.

Les candidatures pour les bourses pour stagiaires 2026 de la Société canadienne de la SLA et @BrainCanada sont désormais ouvertes ! Soutenir les doctorants et postdoctorants prometteurs contribue à stimuler les idées novatrices et les percées scientifiques. Postulez dès aujourd'hui et faites passer le mot : bit.ly/40dmPVs.

Do you have questions about #ALS research? 🙋 We got you covered. Join us tomorrow, Wednesday, February 18, at 1:00 pm ET for ALS Research and Clinical Trials 101 Q&A Drop-in, a monthly session where you can have your questions addressed, chat with peers, meet the ALS Canada Research Team, and get access to research resources🔬. To register and submit your questions now, visit bit.ly/4qKL7kH.

🎉 🎉 We are thrilled to announce that our 2026 ALS Canada Walk to End ALS events are now open for registration. Your participation matters! At the #WalkToEndALS, you’re taking meaningful action in supporting people living with ALS in Canada and working toward #aWorldFree of ALS. Rally your friends, family, and colleagues and unite with the #ALS community. 💜 To register today, visit bit.ly/3wlNB2p.

Couldn’t attend the ALS Canada: Accessible Renovations webinar? We’ve got you covered! Head over to our YouTube channel to watch the recording and hear from Adaptiv Certified Designer Chris Mulholland of Amstead Design-Build about practical strategies for transforming your home into a space that is both beautiful and accessible. To watch the recording, visit bit.ly/4qBzY5w.