APFED.org

6K posts

APFED.org banner
APFED.org

APFED.org

@APFEDorg

American Partnership for Eosinophilic Disorders, APFED. 501(c)3 org dedicated to patients and their families coping with Eosinophilic Disorders.

Atlanta, Georgia Katılım Temmuz 2009
1K Takip Edilen2K Takipçiler
APFED.org
APFED.org@APFEDorg·
Join us on Tuesday, June 23, for a pre-conference webinar featuring Dr. Kathy Peterson, a gastroenterologist at Mayo Clinic in Jacksonville, Florida. Register for Eos Connection 2026 to access this webinar and the full conference: eosconnection.vfairs.com/en/registratio…
APFED.org tweet media
English
0
0
1
39
APFED.org
APFED.org@APFEDorg·
As National Eosinophil Awareness Week comes to a close, thank you to everyone who shared their stories this week. Every experience shared helps raise awareness. No two journeys are the same, and every story matters. Share your story: apfed.org/share #NEAW26 #EosAware
APFED.org tweet media
English
0
0
1
40
APFED.org
APFED.org@APFEDorg·
For World EoE Day, APFED is sharing a new podcast episode featuring Phillip Arceneaux, PhD. Phil discusses living with Eosinophilic esophagitis, balancing career and travel, and managing life after diagnosis. Listen: apfed.org/podcast #WorldEoEDay #EoE #EosAware
APFED.org tweet media
English
0
0
2
44
APFED.org
APFED.org@APFEDorg·
Today, we recognize World Eosinophilic Diseases Day! This global observance is dedicated to raising awareness of eosinophil-associated diseases and the impact these conditions have on people worldwide. Visit apfed.org/eosday to learn more. #WorldEosinophilicDiseasesDay
APFED.org tweet media
English
0
1
0
48
APFED.org retweetledi
Phathom Pharmaceuticals
Phathom Pharmaceuticals@phathompharma·
On World Eosinophilic Diseases Day, we recognize the patient community and raise even greater awareness of these conditions. @APFEDorg’s Executive Director Mary Jo Strobel shares her perspective to help bring greater visibility. #EosinophilicDiseasesDay #EosAware
Phathom Pharmaceuticals tweet media
English
0
1
2
61
APFED.org
APFED.org@APFEDorg·
We’re encouraged to see the FDA approval of Fasenra® (benralizumab) for adults and children ages 12+ living with hypereosinophilic syndrome (HES) when the condition is not caused by another underlying non-blood-related condition. Read more: astrazeneca-us.com/content/az-us/… #HES
English
0
0
0
61
APFED.org
APFED.org@APFEDorg·
🚫 Myth: Topical steroids used to treat eosinophilic esophagitis (EoE) are the same as bodybuilding steroids. ✅ Fact: These medications are corticosteroids, not anabolic (bodybuilding) steroids. When swallowed for #EoE, they act locally in the esophagus to reduce inflammation.
APFED.org tweet media
English
0
0
0
44
APFED.org
APFED.org@APFEDorg·
Join us in the Washington, D.C. area to kick off National Eosinophil Awareness Week with a in-person awareness walk. 📍 Lake Newport Walking Trail 🗓 Saturday, May 16 ⏰ 1:00 PM 🚗 Parking at Lake Newport Pool 11601 Lake Newport Rd, Reston, VA
APFED.org tweet media
English
0
0
0
40
Phathom Pharmaceuticals
Phathom Pharmaceuticals@phathompharma·
Many eosinophilic diseases are underdiagnosed or misdiagnosed, with some patients waiting years for answers. Follow along this month as we support @APFEDorg’s awareness efforts and share more about these conditions and their impact.
Phathom Pharmaceuticals tweet media
English
1
0
2
51