Princess, The Tower

“Pain is soul destroying. No patient should have to endure intense pain unnecessarily." #chronicpain #spoonie

“Living with pain is not straight forward—every day is not the same. One day (or hour, even) we’re [mobile]…and the next we can hardly get out of bed. Sometimes we know exactly why it happens, and others we have no idea.” buff.ly/45V7wBq @kmitchellauthor #ChronicPain

“#ChronicIllness can make you feel worthless… Many of us lived fast-paced lives before…running around, full of life…to struggling to get out of bed… It may make you feel upset with your appearance but nobody can take your inner beauty—You are worthy.” buff.ly/3VCVWZJ

“It’s easy to start comparing yourself to others but it’s so important we try not to… and don’t feel guilty if you have to take a week off because #chronicpain is not your fault, and you are only hurting yourself when you do too much.” buff.ly/3XGBqZv @sarahlynn358 #cpp

“This tentative hold I have on my pain has gotten stronger with each year of pain…mind-numbing sharp, fierce pain that keeps me from using my hands…I have crackling electric pain that feels as if it shatters my spine.” buff.ly/vjdxm1N #ChronicPain #RareDisease

“#ChronicIllness involves setbacks… Our ordinary quests in life become extraordinary feats. We no longer have the luxury to say: “I’ll do it tomorrow.” Tomorrow may be lost to our body… It’s full-time job with unpredictable timing and consequences.” buff.ly/49zN2AX

“I don’t have a “low pain threshold”… and neither do others who suffer daily… When it’s possible physically, we do things…but we do it in such pain that if anyone else experienced it, they would demand pain relief at the closest ER.” buff.ly/45Qn6OI #ChronicPain

“People who may not understand #chronicillness and pain may see you do something and think, you should be able to do it again, everyday… Don’t let other people’s assumptions weigh you down and most importantly steal your joy.” buff.ly/ih0qskT @CRPS_Warrior #chronicpain

“You will get through this (really)… You are not being lazy. Taking care of yourself is doing something… Try to be present in this moment… thinking and worrying about the future isn’t helpful. Just get through here and now.” buff.ly/4aiaH9e #ChronicPain #ChronicIllness

“#SeverePain affects every aspect of your life… If there is one thing that I wish doctors could understand, it’s that you can’t just live with severe #pain… If you truly understood the pain I was experiencing, you wouldn’t be telling me to tough it out.” buff.ly/GxdNbmT

“If you have #chronicillness, I’m sure you relate to the feeling of intense loss… You were suddenly, traumatically, robbed of life and everything that gave your life meaning. And for many of us, we continue to be reminded of this loss every day.” buff.ly/3xaFpmm

“Healthy people will assume that the #fatigue felt by #chronicillness sufferers is like their own – tiredness... they are able to carry on when they are tired – so why cant you?” I’m not Lazy, I’m Fatigued buff.ly/3FtUfoo @me_illness #chronicpain #spoonie

“‘Hope you feel better soon!’ They have the best intentions… But I’m not going to feel better (much less “soon”). This isn’t a cold… This is my 24/7/365 reality.” 7 Challenging Daily Decisions When You Live With #ChronicIllness buff.ly/o4YTqCK #ChronicPain

“I find myself somewhat in a quandary. Because if you talk too much about it, that is all you are; an attention seeker, lazy, a burden. But, if you don't talk about it or talk about it only a little, you must be faking.” buff.ly/nSF3l9W @serenebutterfly #chronicillness

“I want so badly to be enjoying life…or even making myself toast. But today I cannot. Tomorrow I might not be able to either… It hurts to think or speak…I need you not to give up on me so I don’t give up on myself.” " buff.ly/45CD1jQ #EhlersDanlos #hEDS #ChronicPain

“When people come over, it’s special… Most of the time, I go over the limit that my body can handle… the symptoms of my illness intensify, but I ignore the signals as I’m enjoying myself so much… It helps if you have an “ally” who can prompt you.” buff.ly/reVvtJs #pwME

“Many of us with a #disability hold onto our strength so intensely, our loved ones don’t recognise when we need someone to be strong for us… Make sure that you check on those you love—because everyone is fighting a battle that you may not be able to see.” buff.ly/9va2E9S

“Healthy people feel uncomfortable with illness, so they make assumptions about what I can or can’t do, which creates all sorts of problems. If someone asks me… I have no problem answering directly.” buff.ly/3LcqCZb @chronicmom1 #ChronicPain #ChronicIllness

“I grieve for the days I could honestly and simply say, “I’m good, how are you?” Now…I struggle even knowing how I am. I have been sick for so long that it can be hard to tell if I’m getting better, or worse, or staying the same.” buff.ly/3SisS8l #invisibleillness #cpp

“There’s no shame in using whatever tools help you function… Medication is not failure. You’re not broken because you need support—you’re #resilient because you keep showing up… And if all else fails? Give yourself the grace to rest.” buff.ly/nTYQlHq #ChronicPain

“Treat yourself with love and #compassion when you accidentally go beyond your limits. We all do it… you shouldn’t blame yourself… Cast off the ignorant remarks of ignorant people. Life’s too short. Seek support in those who understand.” buff.ly/44oVbo5 #chronicillness