Princess, The Tower

“Pain is soul destroying. No patient should have to endure intense pain unnecessarily." #chronicpain #spoonie

“I can walk, but I can’t walk very far, and it’s always with #pain and #fatigue. I can stand, just not for very long. Limited as my mobility is, I’m still made to feel like a faker. I don’t look sick enough. I don’t look #disabled enough. I’m too young.” buff.ly/4fz49Gj

“Rest before you think you need to. I’m still working on this! I’ll tell myself: “I can do just one more thing,” but that one more thing is often one too many… Then, when I finally lie down to rest, I’m too [pain-] wired] to benefit.” buff.ly/45GTEMi #chronicallyill #cpp

“#BeKind to yourself! Start small and listen to your mind and body, don’t push things that aren’t ready to be pushed, or if you do push and your body shouts no! then step back a little and reformulate.” The Importance of Accepting Your #ChronicIllness buff.ly/jRYOGB3

“When you’re #chronicallyill, pain becomes your constant partner. It’s always there. Our “baseline” is exhaustion, depletion and often tremendous suffering… We don’t know what it’s like to wake up #pain free, bursting with energy… We don’t know comfort.” buff.ly/2vdkdhu

“Honestly, I don’t know. I’m as strong as I can be but wish I was stronger to combat the constant #pain and #fatigue… I’m afraid to stop and think about how I ‘do it’ because if I do, I might fall apart and the pieces might not go back together the same.” buff.ly/fNFsOBf

“It is now known that incidence of addiction and overdose in pain patients treated by a doctor is too small to measure… It’s also known to CDC and DEA that doctors overprescribing to #cpp was never a significant cause of the #opioidcrisis—and is not now.” buff.ly/3WKcgIK

“I am truly sorry for letting people fade out of my life, and I’m #grateful to everyone who stuck around… A big part of #chronicillness is that a lot of times, what I want to do and what I’m able to do are at odds.” I’m Sorry I Haven’t Been a Great Friend buff.ly/3VZZFin

“For those of us living with #ChronicPain or illness, this pressure can feel even heavier. Our bodies don’t work the way we’d like…yet the expectations around us don’t disappear… Some days, simply getting through is an achievement in itself.” buff.ly/w2Lcgkd #disability

“For many with #ChronicPain, mornings can be one of the most challenging times of the day… It may take several hours of gentle stretching and waiting for medications to kick in before it’s possible to even get out of bed. It can be incredibly difficult.” buff.ly/rq1kIzW

“People say, ‘Wait until you’re my age.’ They should be saying, ‘I’m sorry you already feel like you’re my age.’ I’m 21 and my nerve endings are gone… I’m so sick of people telling me I’m too young to be ill.” buff.ly/Os5L1xz #ChronicPain #ChronicIllness #Disability

“When someone with #chronicillness says that they are tired, it means something very different than when someone without chronic illness says the same thing. There is no guarantee that our energy will be replenished after sleeping.” buff.ly/bYTXwuD #chronicpain #spoonie

“It is so exhausting keeping up the mask that hides the pain. And sometimes, it is too much… Whatever the reason or the type of ‘too much’…it is okay to cry! Sometimes you just have to call it a day and hope things are better tomorrow.” buff.ly/qbSvn5T #ChronicPain

“Living with a #chronicillness means adapting all areas of your life around it. It might mean changing how much time you spend with loved ones. This can cause conflict with the people in our lives, as they don’t fully comprehend the impact.” buff.ly/3WhapcH #chronicpain

“#ChronicPain is unending and never-ending and when we receive unsolicited health advice on how to cope, it makes it even harder… It’s exhausting to have to fight pain… I do not remember what it feels like to have a pain-free day.” buff.ly/3zSvRxn @globetrotteri #cpp

“Pushing through the #ChronicPain simply doesn’t work and can completely disable you for days, weeks, months or years… Our bodies will literally disable themselves. And us. Because they should never ever be put under this kind of strain.” buff.ly/ndwsPww #chronicillness

“My health declined as a result of pushing myself too far, for too long… I was determined to push on as if nothing had changed… Learning to say no was vital to protecting my remaining health—yet I still struggled to.” buff.ly/3Cal9jw @whatapain_blog #chronicillness #cpp

“In all my years as a doctor treating patients with #chronicillness, I never saw a patient who enjoyed feeling ill. I saw the opposite, patients who were once very active, desperately trying to find answers and treatment for their overwhelming symptoms.” buff.ly/AYoBbEi

“Driven by a group of anti-opioid zealots, led by Andrew Kolodny, PROP… The result was a guideline that was based purely on belief and devoid of science, and one that ignored even the CDC’s own data…in a form of anti-#opioidhysteria.” buff.ly/HAAoYWV #opioids #ipp #cpp

“It’s relentless. It’s constant… This is #chronicpain… Pain that never stops… I can be fine and smiling in front of everybody but inside, I’m screaming… I have constant #fatigue and can barely move some days. It hurts to do the simplest things.” buff.ly/44vqGNn #cpp

“#Fatigue is an intangible presence that suddenly jumps out of the shadows, bleeding every ounce of energy I still possess. It's a crushing, soul-sucking exhaustion that leaves me feeling as if I'm failing at life.” buff.ly/3PRF39P @serenebutterfly #chronicillness