Accessia Health

Members of our leadership team are in Philadelphia to attend the 2026 Patient Assistance and Access Programs (PAP) ACCESS USA conference! This annual event brings stakeholders together to talk strategies for program optimization and provide crucial updates on evolving health policy and shifting market dynamics to transform patient outcomes, maximize medication access and prioritize the patient experience. Be sure to connect with us this week! Learn more about the conference and view the agenda here: bit.ly/3Tc8S7r #AccessiaHealth #PatientAssistance #PAP2026

When coverage changes and costs rise, the impact goes far beyond the bill. It shapes real decisions about when and how people access care. In a recent Well News commentary article, Tiara Green highlights the reality many families are facing and shares how preparation, awareness, and trusted support can make all the difference. 🔍 Read it through our website here: bit.ly/4uCrKgH #AccessiaHealth #PatientAssistance #HealthEquity

Missed our latest webinar? You can now catch the full conversation on your own time. 𝐀𝐝𝐯𝐨𝐜𝐚𝐜𝐲 𝐈𝐧 𝐀𝐜𝐭𝐢𝐨𝐧: 𝐖𝐡𝐚𝐭 𝟐𝟎𝟐𝟔 𝐏𝐨𝐥𝐢𝐜𝐲 𝐂𝐡𝐚𝐧𝐠𝐞𝐬 𝐌𝐞𝐚𝐧 𝐟𝐨𝐫 𝐇𝐞𝐚𝐥𝐭𝐡𝐜𝐚𝐫𝐞 breaks down the latest updates shaping access, affordability, and care for individuals and families navigating rare and chronic conditions. ▶️ Watch the recording today and stay informed on the policies that matter most: bit.ly/3vcBoK1 #AccessiaHealth #PatientAssistance #HealthcareAdvocacy

🩸March is Bleeding Disorders Awareness Month, a time to recognize the individuals and families navigating life with conditions such as hemophilia and other bleeding disorders. We understand that managing a bleeding disorder often comes with ongoing healthcare needs and financial challenges. Through our Inherited and Acquired Factor Deficiencies program, we help eligible individuals access financial support for critical healthcare expenses so they can stay focused on their health and well-being. Learn more about this program and how to apply by visiting our Patient Programs page: bit.ly/3HEmCSV #AccessiaHealth #PatientAssistance #BleedingDisordersAwarenessMonth

📢 𝗗𝗢𝗡'𝗧 𝗠𝗜𝗦𝗦 𝗧𝗛𝗜𝗦 𝗖𝗢𝗡𝗩𝗘𝗥𝗦𝗔𝗧𝗜𝗢𝗡! We're just one day away from our first webinar of the year, 𝐀𝐝𝐯𝐨𝐜𝐚𝐜𝐲 𝐈𝐧 𝐀𝐜𝐭𝐢𝐨𝐧: 𝐖𝐡𝐚𝐭 𝟐𝟎𝟐𝟔 𝐏𝐨𝐥𝐢𝐜𝐲 𝐂𝐡𝐚𝐧𝐠𝐞𝐬 𝐌𝐞𝐚𝐧 𝐟𝐨𝐫 𝐇𝐞𝐚𝐥𝐭𝐡𝐜𝐚𝐫𝐞, happening tomorrow at 2PM EST. And it's not too late to register! For more than 20 years, panelist Dane Christiansen has been working in government relations—specializing in advancing medical research, treatment development, and patient access related policy goals within the rare and chronic disease communities. Patients, providers, family members, and advocates are encouraged to join us as Dane outlines a high-level overview of key federal programs, current legislation, and how you can get involved in advocacy priorities shaping current healthcare. Take a moment to sign up today & we'll see you tomorrow! 𝙍𝙚𝙜𝙞𝙨𝙩𝙚𝙧 𝙊𝙣𝙡𝙞𝙣𝙚: bit.ly/46WF5pO

The Accessia Health Foundation is expanding its impact and inviting recommendations for new members of our Board of Directors. As we deepen partnerships across healthcare, philanthropy, patient advocacy, and industry, strong board leadership is essential to advancing better health outcomes for the communities we serve. If you know a leader who brings vision, integrity, and a passion for improving access to care, visit our Foundation webpage to learn more about the Board overview and submit your recommendation: bit.ly/3iAHUH7 #AccessiaHealth #PatientAssistance #HealthEquity

⚖️ 𝗛𝗔𝗣𝗣𝗘𝗡𝗜𝗡𝗚 𝗧𝗛𝗜𝗦 𝗠𝗢𝗡𝗧𝗛: 𝗣𝗼𝗹𝗶𝗰𝘆 & 𝗔𝗱𝘃𝗼𝗰𝗮𝗰𝘆 𝗪𝗲𝗯𝗶𝗻𝗮𝗿 If you haven't yet, now's the time to register for our webinar 𝐀𝐝𝐯𝐨𝐜𝐚𝐜𝐲 𝐈𝐧 𝐀𝐜𝐭𝐢𝐨𝐧: 𝐖𝐡𝐚𝐭 𝟐𝟎𝟐𝟔 𝐏𝐨𝐥𝐢𝐜𝐲 𝐂𝐡𝐚𝐧𝐠𝐞𝐬 𝐌𝐞𝐚𝐧 𝐟𝐨𝐫 𝐇𝐞𝐚𝐥𝐭𝐡𝐜𝐚𝐫𝐞, coming up 𝗻𝗲𝘅𝘁 𝗧𝗵𝘂𝗿𝘀𝗱𝗮𝘆, 𝗠𝗮𝗿𝗰𝗵 𝟭𝟮 at 2PM EST. Whether you're a patient, provider, caregiver, or advocate, it's crucial to stay up-to-date on legislative resolutions and best advocacy practices to ensure you or your loved one are prepared for changes. Join panelist Dane Christiansen, Washington Representative from Health and Medicine Counsel, as he shares practical insight and actionable guidance to help you stay informed and get engaged in advocacy efforts that strengthen access to care and treatment. 𝙎𝙚𝙘𝙪𝙧𝙚 𝙔𝙤𝙪𝙧 𝙁𝙧𝙚𝙚 𝙎𝙥𝙤𝙩: bit.ly/46WF5pO #AccessiaHealth #PatientAssistance #HealthcareAdvocacy

When medical challenges are compounded by financial and legal barriers, the path forward can feel overwhelming. In a new patient testimony, Natalia shares how perseverance, advocacy, and the right support system helped her find stability after multiple SSDI denials. Through Accessia Health’s A.C.C.E.S.S. program, she was connected with an experienced legal team that understood the complexity of her medical history and helped her successfully navigate the disability process. ✏️ 𝗥𝗲𝗮𝗱 𝗢𝗻 𝗧𝗵𝗲 𝗕𝗹𝗼𝗴: bit.ly/4biooaW #AccessiaHealth #PatientAssistance #DisabilityLegalAid

President Tiara Green and EVP of Development and Growth, Alan Wood, attended the inaugural @cnbcevents Cures Summit, a landmark live event bringing together the most influential investors, policy makers and leaders in biotechnology to accelerate the future of medicine through breakthroughs in rare disease research. Accessia Health's attendance reflects our commitment to actively engaging in conversations shaping the future of healthcare delivery, unlocking innovative funding models, and building a future where scientific breakthroughs translate into real-world impact for individuals and families navigating rare and complex conditions. #AccessiaHealth #PatientAssistance #CNBCCuresSummit

Caregiving comes with enough responsibility, 𝗳𝗶𝗻𝗮𝗻𝗰𝗶𝗮𝗹 𝘀𝘁𝗿𝗲𝘀𝘀 𝘀𝗵𝗼𝘂𝗹𝗱𝗻’𝘁 𝗯𝗲 𝗼𝗻𝗲 𝗼𝗳 𝘁𝗵𝗲𝗺. Accessia Health provides financial assistance for eligible individuals facing rare or chronic health conditions, helping ease the burden of essential medical expenses. Explore our programs and see how support may be available for you or someone you care for: bit.ly/3ZiGOld

As we prepare to recognize Rare Disease Day, we’re grateful for the opportunity to elevate the voices of patients and families who navigate complex health challenges every day. Thank you to @CBS6 for welcoming President Green on to discuss the importance of access, affordability, and education in rare disease care. 𝗪𝗮𝘁𝗰𝗵 𝘁𝗵𝗲 𝗳𝘂𝗹𝗹 𝘀𝗲𝗴𝗺𝗲𝗻𝘁: bit.ly/4b0tRSF #AccessiaHealth #PatientAssistance #RareDiseaseDay

𝗥𝗮𝗿𝗲 𝗗𝗶𝘀𝗲𝗮𝘀𝗲 𝗗𝗮𝘆 (RDD) is coming up this Saturday, February 28th! RDD reminds us that behind every statistic is a person, a family, and a story that deserves to be seen and supported. Scroll through to see what this day represents by the numbers. 📊 Looking to learn more about RDD and how you can participate with Accessia Health? Our new blog covers the history, more statistics, and advocacy actions that make a difference. 𝗥𝗲𝗮𝗱 𝗛𝗲𝗿𝗲: bit.ly/4cLSNzt @rarediseaseday #AccessiaHealth #PatientAssistance #RareDiseaseDay

Jennifer Noonan, VP of Clinical Strategy and Patient Engagement, alongside Alan Wood, EVP of Development and Growth, will be attending the AAAAI Annual Meeting later this week and exhibiting at booth #1514. Stop by to learn more about Accessia Health and connect with us! accessiahealth.org @AAAAI_org #AccessiaHealth #PatientAssistance #AAAAIAnnualMeeting

On National Caregivers Day, Accessia Health honors the individuals who show up every day to support someone they love. We see you, we value you, and we remain committed to standing alongside you with resources designed to ease the financial pressures that can come with ongoing care. From managing medications and coordinating appointments to offering encouragement on the hardest days, caregivers are often the steady force behind a loved one’s care journey. Your advocacy, resilience, and compassion make continued treatment and stability possible. Thank you for all you do! 💙 #AccessiaHealth #PatientAssistance #NationalCaregiversDay

Did you know? 𝗡𝗲𝗮𝗿𝗹𝘆 𝟲 𝗶𝗻 𝟭𝟬 𝗰𝗼𝗺𝗺𝗲𝗿𝗰𝗶𝗮𝗹𝗹𝘆 𝗶𝗻𝘀𝘂𝗿𝗲𝗱 𝗽𝗮𝘁𝗶𝗲𝗻𝘁𝘀 𝗮𝗿𝗲 𝗺𝗮𝗻𝗮𝗴𝗶𝗻𝗴 𝗮𝘁 𝗹𝗲𝗮𝘀𝘁 𝗼𝗻𝗲 𝗰𝗵𝗿𝗼𝗻𝗶𝗰 𝗰𝗼𝗻𝗱𝗶𝘁𝗶𝗼𝗻 — and many are balancing two or three at the same time. A recent publication from @axios estimates the average cost to treat someone with one chronic condition was 𝗮𝗹𝗺𝗼𝘀𝘁 𝗱𝗼𝘂𝗯𝗹𝗲 that of someone without one through a new FAIR Health analysis of claim records. Accessia Health knows that having insurance does not always mean care is affordable. That's why we're dedicated to helping ease the financial burden tied to insurance premiums, diagnostic testing, travel for treatment, and other essential healthcare expenses. Can we support you or someone you care about? Explore more about our financial assistance approach: bit.ly/469WmLU #AccessiaHealth #PatientAssistance #HealthEquity

Showing love doesn’t have to be big or complicated. Sometimes it’s listening without trying to fix things, offering comfort in small ways, or simply showing up when it matters most. For patients and caregivers navigating complex health journeys, those quiet acts of care can make all the difference. Explore these simple ways to support the people you love by meeting them where they are and reminding them they’re not alone. Happy Valentine's Day from Accessia Health! 🩷 #AccessiaHealth #PatientAssistance #HealthEquity

📣 𝗨𝗽𝗰𝗼𝗺𝗶𝗻𝗴 𝗪𝗲𝗯𝗶𝗻𝗮𝗿 | 𝗔𝗱𝘃𝗼𝗰𝗮𝗰𝘆 𝗜𝗻 𝗔𝗰𝘁𝗶𝗼𝗻 Accessia Health is pleased to announce that our first webinar of the year, 𝐀𝐝𝐯𝐨𝐜𝐚𝐜𝐲 𝐈𝐧 𝐀𝐜𝐭𝐢𝐨𝐧: 𝐖𝐡𝐚𝐭 𝟐𝟎𝟐𝟔 𝐏𝐨𝐥𝐢𝐜𝐲 𝐂𝐡𝐚𝐧𝐠𝐞𝐬 𝐌𝐞𝐚𝐧 𝐟𝐨𝐫 𝐇𝐞𝐚𝐥𝐭𝐡𝐜𝐚𝐫𝐞, is coming up on March 12 at 2PM EST. This free informative session designed for patients, providers, family members, and grassroots advocates will break down key policy developments and advocacy priorities emerging from Washington, D.C., with a high-level look at federal programs, legislative activity, and what’s ahead for healthcare in 2026. Join panelists Dane Christiansen, Washington Representative and Kira Flaherty, Senior Legislative Consultant from Health and Medicine Counsel to gain practical insights into how policy changes may impact patient care—plus clear guidance on how to get involved in advocacy efforts that help improve access to care and treatment. 𝙍𝙚𝙜𝙞𝙨𝙩𝙚𝙧 𝙃𝙚𝙧𝙚: bit.ly/3vcBoK1 #AccessiaHealth #PatientAssistance #HealthcarePolicy

February is recognized as American Heart Month ❤️ Take a moment to check out our newest blog that highlights 𝗳𝗶𝘃𝗲 𝗽𝗿𝗮𝗰𝘁𝗶𝗰𝗮𝗹 𝘁𝗶𝗽𝘀 𝘁𝗼 𝘀𝘂𝗽𝗽𝗼𝗿𝘁 𝘆𝗼𝘂𝗿 𝗵𝗲𝗮𝗿𝘁 𝗵𝗲𝗮𝗹𝘁𝗵, no matter where you are on your care journey. From small lifestyle shifts to staying informed about your healthcare needs, every step counts. Read here: bit.ly/3ZkhVWl #AccessiaHealth #PatientAssistance #AmericanHeartMonth

When care needs extend beyond what insurance covers, support matters. Accessia Health is currently accepting applications for our patient assistance programs serving those with HAE, Pompe, Fabry, and Gaucher’s disease. Explore you or a loved one's eligibility and apply online today: bit.ly/3ZiGOld #AccessiaHealth #PatientAssistance #HealthEquity

On World Cancer Day, Accessia Health stands with individuals and families affected by cancer, working to ease barriers to care and support every step of the journey. If you or a loved one has been diagnosed with GIST or Chronic Myeloid Leukemia (CML), take a moment to visit our Patient Programs page to check eligibility and apply for assistance related to cancer treatment and expenses. 🎗️: bit.ly/3ZiGOld #AccessiaHealth #PatientAssistance #WorldCancerDay