Ledia Alushi Agley

39 posts

Ledia Alushi Agley

Ledia Alushi Agley

@AgleyLedia

PhD researcher @NIHRresearch @ARC_EoE | Specialist Physiotherapist | Parkinson's | Ageing | digital therapeutics | prevention | physical activity

University of Cambridge Katılım Mart 2020
203 Takip Edilen65 Takipçiler
Ledia Alushi Agley
Ledia Alushi Agley@AgleyLedia·
Thank you @MichaelOkun for this great summary of our paper. I'm so pleased to see this work published @journal_PD and look forward to further implementing this project. @ARC_EoE, @ParkinsonsUK grateful for the support
Michael Okun@MichaelOkun

We tell everyone to exercise in Parkinson's, however we all know how hard it is to stick w/ exercise even if you don't have Parkinson's? What do we need? A Knowledge, Exercise-Efficacy and Participation (KEEP) intervention. Check out this KEEP digital intervention by Agley @journal_PD. Key Points: - The authors point out we tell virtually everyone 'face-to-face to follow a generic one-size-fit-all exercise approach.' - They wanted to rise up and meet the demand for 'interventions that are easily accessible, scalable and co-designed with people living with Parkinson's. - They examined 30 folks in an assessor-blinded randomized feasibility trial. - 64% recruitment rate. - All but one participant completed the 6-month follow-up. - Accelerometer data with a daily average wear time of 23.9 hours. My take: The authors are tackling an under-appreciated and critically important challenge in Parkinson's disease. We have an intervention that works, but many people don't use it or stick with it. Knowledge, exercise-efficacy and participation to the rescue. Though this may not work for everyone, we need to galvanize the community to figure out how to scale up exercise us in Parkinson's, and we need to stop assuming that because we tell everyone to exercise that they do it. BRAVO to Agley and colleagues for persisting to aut viam inveniam aut faciam – I will either find a way or make one. content.iospress.com/articles/journ… #parkinson @ParkinsonDotOrg

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Michael Okun
Michael Okun@MichaelOkun·
We tell everyone to exercise in Parkinson's, however we all know how hard it is to stick w/ exercise even if you don't have Parkinson's? What do we need? A Knowledge, Exercise-Efficacy and Participation (KEEP) intervention. Check out this KEEP digital intervention by Agley @journal_PD. Key Points: - The authors point out we tell virtually everyone 'face-to-face to follow a generic one-size-fit-all exercise approach.' - They wanted to rise up and meet the demand for 'interventions that are easily accessible, scalable and co-designed with people living with Parkinson's. - They examined 30 folks in an assessor-blinded randomized feasibility trial. - 64% recruitment rate. - All but one participant completed the 6-month follow-up. - Accelerometer data with a daily average wear time of 23.9 hours. My take: The authors are tackling an under-appreciated and critically important challenge in Parkinson's disease. We have an intervention that works, but many people don't use it or stick with it. Knowledge, exercise-efficacy and participation to the rescue. Though this may not work for everyone, we need to galvanize the community to figure out how to scale up exercise us in Parkinson's, and we need to stop assuming that because we tell everyone to exercise that they do it. BRAVO to Agley and colleagues for persisting to aut viam inveniam aut faciam – I will either find a way or make one. content.iospress.com/articles/journ… #parkinson @ParkinsonDotOrg
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Ledia Alushi Agley
Ledia Alushi Agley@AgleyLedia·
Extremely proud of this work published @PLOS. With emerging evidence on the positive role of exercise in PD management there is a need for more interventions that appropriately promote exercise at diagnosis journals.plos.org/plosone/articl…
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Marta Camacho
Marta Camacho@Marta__Camacho·
Couldn't be happier with my PhD viva experience, a critical scientific discussion of my PhD work, followed by cake and amazing people that I am lucky enough to call friends.
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Julie Jones
Julie Jones@julie_physio·
Back to reality this week after a great few days at #MDSCongress in Madrid. Great opportunity to present Self mx SR by @AgleyLedia as well as headline results from PDConnect. Great opportunity to connect and reconnect with the Parkinsons community @ParkinsonsUKSco @Physio_RGU
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Emma Soneson
Emma Soneson@emma_soneson·
Having (finally!) submitted my dissertation yesterday, it feels like a good time to share that I've moved to Oxford & will be starting a postdoc next month with @minafazeloxford & the Brainwaves team at @OxPsychiatry! Feeling very grateful & excited for what's to come 🥰
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James Alexander
James Alexander@jamesalexphysio·
Really pleased to shout out about this systematic review that we have published in @journal_PD looking at Physical Health Education in Parkinson's. Be sure to check it out DOI: 10.3233/JPD-223259. Great work @AgleyLedia & @julie_physio 👏 #Parkinsons
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Ledia Alushi Agley
Ledia Alushi Agley@AgleyLedia·
@purposeful_pd How about the knowledge around how to exercise and choose exercises that are suited to specific needs. When in the course of PD is this info provided and is there enough research which targets barriers such as low exercise expectations and low exercise self-efficacy in PD?
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Gavin Mogan
Gavin Mogan@purposeful_pd·
Hey, Parkinson’s Research, u there? Likely futile, as u really don’t listen to us, do u? The problem isn’t we don’t know exercise is beneficial. Its that we don’t properly engage. Solve that and we’ll celebrate everything about u. Or remain bubbled for more fake peer applause.
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