Alpha-1 Foundation

Understanding your liver health is an important part of living with Alpha-1. Watch this video to learn how a FibroScan provides a quick, non-invasive way to assess liver health. If you're attending an upcoming A1F Education Day, eligible attendees can also receive a free FibroScan, offering valuable insight into their liver health while connecting with Alpha-1 experts and the community.

Don't miss the opportunity to hear Dr. Hume present on Alpha-1 lung disease at the Boise A1F Education Day on Sunday, August 30th. Whether you're living with Alpha-1, caring for someone who is, or simply looking to learn more, this free event offers expert education and meaningful connections. Traveling to Boise? Reserve your hotel by July 28 to receive the special event rate. Register today: alpha1.org/event/boise-id…

Looking for an Alpha-1 specialist? The Alpha-1 Foundation’s Clinical Resource Centers (CRCs) are dedicated to providing expert care for the Alpha-1 community. Find a specialist near you and access the support you need by visiting: alpha1.org/find-an-alpha-…

At the 19th Congress of the Asociación Latinoamericana de Tórax (ALAT) in Cartagena, Colombia, A1F collaborated with healthcare professionals, researchers, and advocates to advance education, strengthen partnerships, and expand awareness of Alpha-1 throughout Latin America. Read how these efforts are helping move us toward earlier diagnosis, better care, and a brighter future for the global Alpha-1 community: alpha1.org/asociacion-lat…

Bronchiectasis and Alpha-1 often go hand in hand, underscoring the importance of understanding their connection and the latest approaches to care. At the upcoming Boise A1F Education Day on Sunday, August 30th, Dr. Sandhaus will present "Bronchiectasis, Super Bugs & Alpha-1," sharing expert insights into this important topic. Register today: alpha1.org/event/boise-id…

Featured in @EMJReviews, new findings from the Alpha-1 Research Registry highlight the overlap between liver and lung disease in people with liver-affected Alpha-1. The research reinforces the importance of screening for both conditions and coordinating care across healthcare providers. Read more about the findings and what they mean for the Alpha-1 community: alpha1.org/highlighting-p…

A1F Riding for a Reason returns this September, bringing together the Alpha-1 community to raise awareness and critical funds for Alpha-1 Antitrypsin Deficiency (Alpha-1). Whether you participate in one of our in-person rides or log your miles from wherever you are, every mile helps move us closer to a cure. Join us and be part of something bigger by registering today: secure.alpha1.org/a1fridingforar…

A personal diagnosis can become a powerful voice for change. After being diagnosed with Alpha-1, Dan Coffin turned his experience into action by advocating for the Supplemental Oxygen Access Reform (SOAR) Act and working to improve access to care for the Alpha-1 community. His story is a reminder that sharing your voice can make a lasting impact for everyone living with Alpha-1. Read Dan's story: alpha1.org/how-my-alpha-1…

This week, A1F attended the 19th Congress of the Asociación Latinoamericana de Tórax (ALAT) in Cartagena, Colombia, where we hosted the Alpha-1 ALAT Pre-Congress and connected with healthcare professionals and partners from across Latin America at the A1F exhibit booth. As the largest respiratory health meeting in Latin America, the ALAT Congress provided an important opportunity to collaborate, share knowledge, and strengthen partnerships. Throughout the meeting, one message stood out: while each country faces unique challenges, we are united in our commitment to expanding access to timely diagnosis, appropriate treatment, and the high-quality care every Alpha deserves. 💜

Research is driving the future of Alpha-1 care, and you can be part of it. Clinical trials help researchers evaluate potential new treatments while advancing our understanding of Alpha-1. Explore current clinical trial opportunities, learn if you may be eligible to participate, and help move us closer to better treatments and a cure. Learn more: alpha1.org/current-clinic…

An estimated 90% of people with Alpha-1 remain undiagnosed. Getting tested is the first step toward understanding your health, accessing appropriate care, and helping protect your family members who may also be at risk. Learn more about Alpha-1 testing and diagnosis: alpha1.org/testing-diagno…

Every breakthrough in Alpha-1 research begins with dedicated scientists asking important questions. Through A1F's Grants Program, researchers around the world are advancing our understanding of Alpha-1 and developing innovative approaches to improve care and move us closer to a cure. Meet the 2026 In-Cycle Grant Recipients whose work is helping shape the future of Alpha-1: alpha1.org/grant-recipien…

Wishing everyone in the Alpha-1 community a happy and safe Independence Day! May your holiday be filled with celebration, connection, and cherished moments with the people who matter most. 🇺🇲

The future of Alpha-1 begins with research. A1F's June 2026 PubMed Article summary showcases recently published studies that are advancing scientific knowledge and bringing us closer to improved treatments and better outcomes for the Alpha-1 community. Explore this month's research highlights: alpha1.org/june-2026-pubm…

This World Bronchiectasis Day, Diane Angell is sharing her personal journey with bronchiectasis to help raise awareness, inspire others, and shine a light on the realities of living with this condition. Her story is a powerful reminder of the importance of early diagnosis, specialized care, and continued research to improve the lives of everyone affected by bronchiectasis. 🫁 #WorldBronchiectasisDay

As research continues to advance, personalized approaches to COPD treatment are becoming increasingly important. In this article, Dr. Igor Barjaktarevic discusses a practical two-step approach to pharmacologic management that bridges foundational care with personalized medicine. Read more about the latest thinking in COPD treatment and what it could mean for patient care: ow.ly/iKwK50ZiJ7a

Support starts with connection. Find an A1F Support Group to connect with others affected by Alpha-1, share experiences, and access a community that understands your Alpha-1 journey. Find a local A1F Support Group near you: alpha1.org/find-a-support…

Every breakthrough in Alpha-1 research starts with people willing to make a difference. By joining the Alpha-1 Research Registry, you can help researchers better understand Alpha-1, support the development of new treatments, and be notified about clinical trials and research opportunities you may qualify for. Your participation today can help shape a healthier future for the entire Alpha-1 community. Learn more and join the Registry: alpha1.org/join-the-alpha…

Looking for trusted information about Alpha-1? The A1F Resource Library offers a wide range of educational materials, guides, publications, and tools designed to help individuals, families, caregivers, and healthcare professionals better understand and manage Alpha-1. Explore the resources available: alpha1.org/resource-libra…