Alpha-1 Foundation

We are proud to recognize and thank our Platinum Sponsors for the 2026 A1F National Conference #A1FNC26. Their support helps make this event possible, bringing together patients, families, researchers, and healthcare professionals to learn and connect. We are grateful for their continued commitment to the Alpha-1 community and to advancing research and care. For more information about the conference, please visit: alpha1.org/national-confe…

Celebrate the women who shaped your life this Mother’s Day by honoring your mom, grandmother, aunt, or friend with a donation to the Alpha-1 Foundation. Your gift drives critical research and care for those impacted by Alpha-1 Antitrypsin Deficiency (Alpha-1). To include a personalized e-card with your donation, visit: alpha1.org/donate

Understanding clinical trials is key to advancing Alpha-1 research. Dr. Wilson will cover the essentials in "Research & Clinical Trials 101" at the 2026 A1F National Conference #A1FNC26. Explore how studies are designed, conducted, and what they mean for the community. Register today: alpha1.org/national-confe…

New Alpha-1 research is helping drive progress toward better treatments and improved care. The April 2026 PubMed article roundup highlights recent studies by A1F-funded researchers on topics including genetics, liver disease, and clinical trial guidance. Read the latest research updates: alpha1.org/april-2026-pub…

Hear from Victor Ortega, MD, PhD, at the 2026 A1F National Conference #A1FNC26, June 4th–7th in San Diego, CA, as he presents "Advances in Genetic Testing & Understanding the Genetic Risk for Alpha-1." Gain valuable insights into the evolving role of genetics in Alpha-1 while connecting with experts and the community. Register today: alpha1.org/national-confe…

Explore current clinical trial opportunities and be part of the progress shaping the future of Alpha-1 care. Participation from the Alpha-1 community is essential to advancing research, helping evaluate new treatments, and moving closer to better therapies and a cure. By joining the Alpha-1 Research Registry, you can learn about studies you may qualify for and take an active role in driving discovery. Learn more and get involved: alpha1.org/current-clinic…

Planning to attend the 2026 A1F National Conference this June and use supplemental oxygen? The Alpha-1 Foundation Oxygen Travel Fund is here to help make your trip possible, so you can join the Alpha-1 community without added stress. To request support, email Joy Collins at jcollins@alpha1.org. Please note that at least 30 days’ notice is required to arrange travel with supplemental oxygen through this program. To learn more, visit: alpha1.org/supplemental-o…

Learn more about liver health and Alpha-1 with Alyson Fox, MD, at the 2026 A1F National Conference #A1FNC26, where she'll present "Alpha-1 Antitrypsin Deficiency 101: Liver," offering key insights into how Alpha-1 impacts liver health. To join us June 4–7 in San Diego, CA, register today: alpha1.org/national-confe…

The 29th Gordon L. Snider Critical Issues Workshop brought together leading experts to shape the future of Alpha-1 research. Focused on building the infrastructure needed to accelerate the development of new therapies, the workshop explored critical questions, emerging technologies, and the resources required to advance research. The insights gathered will help guide future investments and bring us closer to meaningful advances for the Alpha-1 community. Read more: alpha1.org/29th-gordon-l-…

Get to know the experts shaping the future of Alpha-1 care at the 2026 A1F National Conference #A1FNC26! Dr. Kuhn will present “Alpha-1 Antitrypsin Deficiency 101: Lung,” offering valuable insights into lung disease and what it means for patients and families. Join us as we bring The Future in Focus and explore the latest in research, education, and community connection. Register today: alpha1.org/national-confe…

Getting the right care starts with seeing a doctor who truly understands Alpha-1. Use our "Find an Alpha-1 Specialist" tool to connect with an experienced Alpha-1 healthcare provider near you: alpha1.org/find-an-alpha-…

Missed the New York/New Jersey A1F Education Day or want to revisit a session? The presentations are now available in the A1F Video Library! Whether you're newly diagnosed, a caregiver, or a long-time member of the Alpha-1 community, these talks are a valuable resource you can watch anytime, anywhere. Watch now: alpha1.org/video-library/

Behind every step forward in the Alpha-1 community is a group of dedicated volunteers. Our A1F Volunteer Leadership plays a vital role in advancing awareness, supporting patients and families, and strengthening our impact. Thank you for all that you do. Learn more: alpha1.org/volunteer-lead…

April 25th marks European Alpha-1 Awareness Day, a time to raise #Alpha1Awareness, promote early detection, and support those affected by Alpha-1 across Europe and beyond! Join the global effort to educate, advocate, and raise awareness of this genetic condition. Learn more and see how you can get involved: lnkd.in/et8TTNtP

Thank you to our Alpha-1 Advocates for representing the community in Washington, DC this week and meeting with policymakers to discuss H.R. 2343, the John W. Walsh Alpha-1 Home Infusion Act, and the SOAR Act for oxygen reform. Their efforts help raise awareness and advance meaningful policy change for those affected by Alpha-1. Pictured are Florida advocates with Elijah King from Representative Frederica Wilson’s office (D-FL-24). Learn more about becoming an A1F Advocate: alpha1.org/become-an-a1f-…

Thank you to our A1F Advocates. Your commitment to raising awareness and elevating the patient's voice helps drive meaningful change and improve access to care for the Alpha-1 community. Interested in becoming an A1F Advocate? Visit: alpha1.org/become-an-a1f-…

Thank you to our Alpha-1 Physicians and A1F Clinical Resource Centers. Your dedication to specialized care and advancement in the field continues to make a meaningful difference for the Alpha-1 community. To find your local Alpha-1 specialist at an A1F CRC, please visit: alpha1.org/find-an-alpha-…

Thank you to our Alpha-1 Research Registry and Clinical Trial participants. Your involvement in research helps shape the future of care and brings us closer to new discoveries for the Alpha-1 community. To learn more about the Alpha-1 Research Registry and enroll, visit: alpha1.org/join-the-alpha…

Thank you to our Building Friends for a Cure fundraisers and donors. Your generosity and commitment continue to move the Alpha-1 Foundation’s mission forward and make a lasting impact on the Alpha-1 community. To learn more about the BFC program, visit: alpha1.org/building-frien…

Thank you to our A1F Support Group Leaders for the meaningful impact you have on the Alpha-1 community. Your leadership, dedication, and commitment continue to move our mission forward and support Alphas nationwide. To find your local A1F Support Group, visit: alpha1.org/find-a-support…