Amy Sweet

365 posts

Amy Sweet

Amy Sweet

@AmySwee88869856

Katılım Nisan 2021
22 Takip Edilen21 Takipçiler
Amy Sweet retweetledi
Binita Kane
Binita Kane@BinitaKane·
Please help raise awareness of #panspandas Poor awareness amongst HCPs. Getting the right diagnosis and support can make a huge difference to families. Check out panspandasuk.org for more info.
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Hatty@HeatherAnneFit

@BinitaKane This is so interesting. My 5 yr old got COVID beginning of Jan. He now has ADHD, oppositional defiance, and behavioral changes that have all been progressively getting worse since then. He was a super happy kid and is so aggressive now. 🤔

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Joanne Holloway
Joanne Holloway@CharmingAngelCo·
Sadly these symptoms are all too common with #Pans #Pandas The child's world becomes so small as does that of the parent/s & can have far reaching consequences for any siblings and extended family. Not rare! Please RT💚#PansPandasHour
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Joanne Holloway
Joanne Holloway@CharmingAngelCo·
Sadly there’s been little recognition of #Pans #Pandas in UK across any services but @PandasPans & the families it supports are fighting hard 2 change this 4 those suffering now & those who may suffer in the future. Change is slowly coming🙏🏻 Media attention needed #PansPandasHour
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Joanne Holloway
Joanne Holloway@CharmingAngelCo·
No child should have 2 lose childhood 2 #Pans #Pandas No teen should have 2 lose important teenage years. Result of lack of diagnosis/treatment is horrific conditions carried 2 adulthood.Young adults then become lost in an adult MH system, misdiagnosed, mistreated #PansPandasHour
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Amy Sweet retweetledi
Hope
Hope@hopestardust20·
When your child has #Pans #Pandas your heart 💔 - the debilitating symptoms, the missed opportunities, fading dreams, the lack of awareness amongst many medics, the hurdles you’re faced with to get treatment, if you’re lucky. Your heart & your child’s heart 💔 #PansPandasHour
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Amy Sweet retweetledi
Joanne Holloway
Joanne Holloway@CharmingAngelCo·
Often when you have child with #Pans #Pandas you live life in lockdown. Horrific symptoms make leaving house seem impossible 2 child affected. They miss out on so much & lose childhood, family, friends & education. Sad fact is it really doesn't have 2 be this way! #PansPandasHour
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Joanne Holloway
Joanne Holloway@CharmingAngelCo·
Nothing RARE about #Pans #Pandas Diagnosis/treatment needs to improve significantly to put end to unnecessary, prolonged suffering. Shocking the refusal that still exists to acknowledge these conditions. Delay in diagnosis causes exacerbation & irreparable damage #PansPandasHour
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Joanne Holloway
Joanne Holloway@CharmingAngelCo·
“What looks like a behavioral issue or permissive parenting is actually a very serious medical condition.” #PansPandasHour
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Joanne Holloway
Joanne Holloway@CharmingAngelCo·
I feel so bitter & heartbroken at the thought of my child possibly irreparably damaged by medical ignorance. Even if she makes a full recovery no one can replace a lost childhood and all that encompasses💔Conditions #Pans #Pandas need correct treatment guidelines #PansPandasHour
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Joanne Holloway
Joanne Holloway@CharmingAngelCo·
UK research is still desperately needed and long overdue. The narrative of denial needs to end! The controversial tag needs removing. Not rare just rarely diagnosed #PansPandasHour
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Amy Sweet retweetledi
DrSarahJarvis
DrSarahJarvis@DrSarahJarvis·
Hugely debilitating #PANDAS is linked with #StrepA infection - we need more awareness among public and healthcare professionals of the risks and the symptoms to look out for panspandasuk.org/faq-s
John Caudwell@JohnDCaudwell

Thanks to @DrSarahJarvis and @theJeremyVine for shining a light on #PANS and #PANDAS on @BBCRadio2 last week - and to @PandasPans and all the parents who took part in this important discussion. Listen on @BBCSounds from 1:06 🎧⤵️ bbc.co.uk/sounds/play/m0… #health #panspandas #RT

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Sarah Hughes
Sarah Hughes@SHughesDr·
National uptick in scarlet fever - will there be a uptick in acute onset neuropsychiatric symptoms in the next months? #PANDAS needs talking about in national news - all parents need to know the possible complications associated with a strep infection @LaurenPelley @PandasPans
Lauren Pelley@LaurenPelley

NEW: @WHO says uptick of scarlet fever, invasive Strep A in children in multiple countries: ➡️ France, Ireland, Netherlands, Sweden ➡️ U.K. had 4622 reports of scarlet fever in recent weeks, vs. avg. of <1300 for same period in last 5 years Source: who.int/emergencies/di…

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NB
NB@np9000·
I struggle to understand how #Pans #Pandas is still thought controversial by some,how medics can ignore,misdiagnose & gaslight those suffering.There is much evidence around infections triggering neuropsych symptoms,brain inflammation,& immune dysfunction #PansPandasAwareness2022
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Amy Sweet retweetledi
Sarah Hughes
Sarah Hughes@SHughesDr·
Adam Gushansky set up a conference about #PANS #PANDAS /AE for his senior project. This is his Ted Talk where he discussed the genius project & his journey throughout the process 2022 Genius Project TED Talk Pans - Pandas - Autoimmune Encephalitis youtu.be/u4TSEq_sxWg (1/3)
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