ANCA Vasculitis News

Rest isn’t optional for those living with ANCA-associated vasculitis, yet many people struggle with it. Columnist Sarah Jones explains why. buff.ly/XtNgBRf

In ANCA-associated vasculitis, a person's antibody type can be used to predict lung damage and guide treatment, per a study using CT scans. buff.ly/Dq6gSrJ

InflaRx is planning a Phase 2 trial to evaluate the safety and efficacy of experimental oral complement inhibitor izicopan to treat AAV. ancavasculitisnews.com/news/phase-2-t…

Intimacy may not always feel like a priority in life with chronic illness, but it's important for connection, says columnist Sarah Jones. buff.ly/EE0woU3

May is Vasculitis Awareness Month, and advocates are gearing up to raise awareness, foster connection within the community, and raise funds. buff.ly/fgr4Qvg

Children with ANCA-associated vasculitis often have more severe and active kidney inflammation than do adults with AAV, a new study found. ancavasculitisnews.com/news/severe-ki…

Columnist Sarah Jones explains how understanding the spoon theory can help people with chronic illness better plan and spend their energy. buff.ly/EbkyWaF

An FDA division has proposed that Tavneos, an oral therapy for ANCA-associated vasculitis, be withdrawn from the market over data concerns. ancavasculitisnews.com/news/fda-propo…

Transferrin, a protein that transports iron in the body, may serve as a biomarker for ANCA-associated vasculitis activity, and improve care. ancavasculitisnews.com/news/iron-tran…

Healing often happens in slow, subtle ways that are easy to overlook, writes columnist Sarah Jones. We should be awe-struck by that. buff.ly/kr7ADVO

Updated criteria to classify ANCA-associated vasculitis in adults is better at discriminating between disease types in children, per a study. ancavasculitisnews.com/news/current-a…

The FDA has agreed to a new protocol for NKX019 that would allow the cell therapy to be given in outpatient settings in a trial for AAV. buff.ly/HfG8ZHK

There's no easy "fix" for the fatigue that accompanies ANCA vasculitis, says columnist Sarah Jones. Still, getting enough rest is crucial. buff.ly/Gpa4OPX

AAV diagnosis timing may vary by disease type, symptoms, and specialists involved, with some patients experiencing longer delays. buff.ly/MPmWcHV

Long-term survival for EGPA patients has improved in Japan, likely due to multiple factors rather than a single disease therapy, per a study. buff.ly/f3xrsrG

ANCA vasculitis forced columnist Sarah Jones to leave work and apply for disability, altering all the plans she had for retirement. buff.ly/p66o6zj

A new model may help predict risk of blood clots in people with ANCA-associated vasculitis using clinical and immune markers. buff.ly/qYJtS3K

ANCA-associated vasculitis patients show signs of greater immune activity than healthy people, even when symptoms are absent, a study found. buff.ly/wHVOtzP

In life with a chronic illness like ANCA vasculitis, acceptance is not a finish line but a continuous practice, says columnist Sarah Jones. buff.ly/x7BDZEA

People on long-term dialysis due to ANCA-associated vasculitis have survival rates comparable to those on dialysis due to other causes. buff.ly/2WRHCBZ