Angela Degrassi

🧑‍⚕️ We're recruiting patients for a paid advisory board! Do you still experience gout flares? Your voice can help improve care for others. Apply here 👉 research.net/r/GOUTADVISOR #PatientVoice #Gout #ChronicIllness #GoutAwareness

We’re proud to launch the HEROES Toolkit: a free, first-of-its-kind resource created with and for salon professionals to help clients living with scalp and skin conditions like psoriasis feel seen, supported, and empowered. Click the link in bio to explore the toolkit and learn how you can be a HERO: bit.ly/HEROES_Toolkit #HEROESToolkit #PsoriasisAwareness #SkincareSupport #ChronicIllnessAwareness #GHLF #CreakyJoints #BeautyWithEmpathy

We want to hear from you. If you’re living with RA, AS, axSpA, PsA, or GCA, your feedback could help improve doctor visits for everyone. Take our short 2-minute survey (click the link to share your experience. You’ll be entered to win one of three $100 gift cards.) Don't wait! The survey closes Sunday, April 27th. research.net/r/2CRFZX3?SV_I… #CreakyJoints #RheumatoidArthritis #AnkylosingSpondylitis #PsoriaticArthritis #GiantCellArteritis #AxialSpondyloarthritis #ChronicIllness #PatientVoices #Rheumatology

Living with psoriasis? We want to hear from you! Help shape care, research, and support by sharing your experiences. 💸Paid opportunity 🗣️Your voice, your impact 👉 Take the short survey to see if you're eligible: research.net/r/52H5KKQ?SV_I…] #Psoriasis #PatientAdvocacy

What are the options for Sjögren’s? At CreakyJoints, we are committed to connecting you with opportunities to participate in clinical research that has the potential to improve treatment outcomes in the future. The DAFFODIL trial is evaluating an investigational medicine for adults with Sjögren’s disease. See if you may qualify here: SjogrensDiseaseResearch.com/GHLF

Let's come together as a community this #CCAwarenessWeek and drop your best advice in the comments! #IBDVisible #CronhnsAndColitisAwarenessWeek

This #CCAwarenessWeek, @keyla_ire highlights the misconceptions people face, the hidden struggles of living with IBD, and the individuality of every patient's journey.

“Advocating for yourself is practicing advocating for others” Rachael Eckles, lawyer and bioethicist suggests starting to advocate by using your voice to speak up for what you need. #AdvocacyInAction

“You want to expand your voice as much as possible. We like to say at @GHLForg that advocacy starts with you. You have got to be your own advocate.”
@StevenNewmark #AdvocacyInAction

Today is a great day to discover the latest research on #AxSpA #lupus #OA #PsA #RA Sjögren's and more! What are you interested in learning about? #ACR24

How fast should #psoriaticarthritis treatments work? #ACR24 study shows patients who respond in 6 months have less pain, better quality of life, and improved results. @abbvie acrabstracts.org/abstract/benef….

A Mediterranean-style whole food plant-based diet shows promise for #gout and #cardiovascular health in new #ACR24 study: ✅ Lowers serum uric acid ✅ Reduces gout severity and pain ✅ Significant weight loss ✅ Improves LDL cholesterol acrabstracts.org/abstract/effec…

Findings on rheumatoid arthritis & common infections: ✅31% of monthly reports included infection, mostly upper respiratory ✅27% led to RA medication interruptions, higher with severe infections ✅Infections impacted fatigue & work productivity, with possible flare increase #ACR24 @venkyshilpa1 @GHLF_Kelly @laurastradford @dave_curtis acrabstracts.org/abstract/impac…

#ACR24 study looked at giant cell arteritis (GCA) in Medicare fee-for-service and found that prevalence: ⬆️Rises with age (highest in 85+) ⬆️Is ~2x higher in females ⬆️Is highest in White persons ⬇️Is lowest in Asian persons @abbVie @DrPeterMerkel cdmcd.co/zE64yY

🦠 New at #ACR24! Data from rheumatoid arthritis patients & infection risks: ✅ No increased infection risk from biologics, JAK inhibitors, or low-dose steroids ✅ Higher infection rates from winter, rural areas, & past infections ✅ Comorbidities may play a bigger role than RA meds @venkyshilpa1 @GHLF_Kelly @laurastradford @dave_curtis acrabstracts.org/abstract/immun…

Are you satisfied with your rheumatoid arthritis control? 🤔 A new #ACR24 study reveals: 🩺 73% of 26,377 patients are satisfied, but 57.5% of those not 'very satisfied' want med changes. 🩺 Top concerns: fear new meds won’t work & thinking current meds are 'good enough.' @venkyshilpa1 @GHLF_Kelly acrabstracts.org/abstract/explo…

Thank you to the @GHLForg for inviting us to the Clinical Trials Talks Podcast. We’re excited to collaborate & share @JuanaMataa & @estelamata's experiences as patient & caregiver. Our goal is to inspire & empower minority communities affected by autoimmune diseases like lupus.

🎉 100 essays! @ChronicEileen has reached an incredible milestone with CreakyJoints.org, and we couldn’t be more grateful. Eileen, your words have inspired countless patients and amplified the patient voice in ways that truly matter. Thank you for tackling the tough topics, sharing your heart, and being a powerful advocate. 💜 Read her latest: creakyjoints.org/about-arthriti… #RA #CreakyJoints #ACR24

Do you have fatigue or pain from #lupus (SLE) even on your "good" days? New #ACR24 research showed that 24% of lupus patients experience moderate to severe symptoms even on their "good" days, which greatly impacts quality of life. acrabstracts.org/abstract/impac…

#ACR24 key findings on #fatigue in difficult-to-treat (D2T) #rheumatoidarthritis: 🔑About 26% of RA pts studied had D2T RA 🔑Fatigue is significantly linked to D2T RA 🔑 Different dimensions of fatigue (physical, daily living-related, cognitive, & emotional) associated w D2T RA acrabstracts.org/abstract/role-…