David Curtis

Today is #GCAAwarenessDay — GCA is a rare autoimmune disease that causes inflammation in the blood vessels — often leading to headaches, scalp tenderness, jaw pain when chewing, and in some cases, vision loss. Raising awareness helps people recognize the signs early and seek treatment before serious complications occur. Awareness saves sight. #ChronicIllnessCommunity #InvisibleIllness #CreakyJoints

“When I woke up that morning, I couldn’t move. Years later, a sudden, unbearable headache led to my diagnosis: Giant Cell Arteritis.” Jenny’s story reminds us how important it is to recognize the signs of GCA early — from persistent headaches to sudden vision changes — and to speak up when something feels wrong. Watch her share her journey of strength and awareness. Learn more at ghlf.org/gca @shelley_fritz1 #GCAAwarenessDay #GiantCellArteritis #AutoimmuneDisease

🌟Thinking About a Clinical Trial? Here’s What You Need to Know! 🌟 Clinical trials are the bridge between lab research & real-world impact, studying the safety & effectiveness of new investigational treatments! Wondering what’s involved? We've got the details on types, phases, risks, & questions to consider. 🔗 Dive in! creakyjoints.org/about-arthriti… #Lupus #ClinicalTrials #LupusAwareness #CreakyJoints #LupusChat

🌍 Check out @migrainesallday & @authorjpsummers #ACR24 poster on ChronicHue, a community for BIPOC individuals with rheumatic diseases! ChronicHue fosters connection, reduces isolation, and addresses unique healthcare challenges. Read more about their journey here: creakyjoints.org/acr-2024/bipoc… #BIPOCHealth

At #ACR24, @chroniceileen shares how sauna sessions became a powerful tool in managing her rheumatoid arthritis, improving mobility, reducing fatigue, and enhancing mental health. Sauna therapy supports exercise, eases winter joint pain, and boosts overall well-being. #RA acrabstracts.org/abstract/sweat…

If you see Laura Stradford, Associate Director Patient Centered Research and Epidemiology, be sure to say hello! "My favorite part about ACR is meeting so many wonderful researchers and patients in person." @laurastradford #ACR24

Patient voices are at #ACR24! @shelley_fritz1 shares how conducting a systematic literature review transformed how she researches her chronic illness. Her approach now includes structured searches, leading to more informed decisions & discussions with her care team. #RA acrabstracts.org/abstract/how-c…

We had the privilege of speaking with Dr. Claudia Iannone from the University of Milan at #ACR24. She shared insights on bridging American and European perspectives to enhance care for diverse, multiethnic communities. 🌍 #GlobalHealth #Rheumatology

News from #ACR24: @GHLForg presents data showing polymyalgia rheumatica #PMR with giant cell arteritis #GCA predominantly affects those over 70 and is more common in women. The researchers also found an underutilization of medications that could reduce steroid use. @laurastradford @GHLF_Kelly @venkyshilpa1 @AngelaDegrassi acrabstracts.org/abstract/basel…

Tien eased her knee pain from osteoarthritis (#OA) with "My Knee Notes," tracking symptoms, meds, nature-based care, and questions for her doctor. This led to more personalized care and improved communication. Now @bodymindconsult is presenting it at #ACR24!

🦵 Excited for #ACR24! Tien Sydnor-Campbell will share “My Knee Notes,” a tool she created to track her knee #OA journey. By recording daily pain, treatment responses, & key questions, Tien has transformed her care—making each doctor visit count! Her ideas shaped MY OA COMPASS: ghlf.org/compass-koa-pa…

Also don't forget to wish him a happy Movember! @CreakyJoints #ACR24

#ACR24 selfies! 📸 Grateful for Dr. Oscar Soto, a champion for Spanish-speaking patients in PR and beyond through CreakyJoints Español, and Dr. Hillary Norton, one of GHLF's longest-serving medical advisors and a true patient-centered hero. 🙌💙 @SethSaidSo

Psoriasis can affect more than just your skin. Take these four steps to get the help you deserve: make an appointment, explore treatment options, focus on whole-body health, and seek out support. Each step can make a big difference in your quality of life. #VeteranPsO #PsoriasisAwareness #VeteransDay LINK: plaquepsoriasistreatment.com This post was made possible with support from @Amgen

We caught up with Dr. Irene Blanco, Director of Lupus Clinical Services at Northwestern University, at #ACR24! With 15+ years treating lupus, she’s excited about new drugs, CAR T, & cell therapy transforming care for lupus patients: "We finally have really good medications and treatment plans to offer our very, very sick patients." 💡💊 #Lupus.

Vagal nerve stimulation (VNS) shows promise for reducing pain and inflammation in #osteoarthritis (OA). In mouse models in #ACR24 study, VNS improved pain responses and reduced joint damage & inflammatory markers. Study authors suggest human clinical studies as next step. painspot.com

Behind the scenes at #ACR24! 🎥 The #GHLF team is capturing the brilliant minds of clinicians and the inspiring voices of patients. Stay tuned for amazing moments and insights over the next few days! 💡🙌.

If you see Angela Degrassi, Senior Research Manager, be sure to say hello! "My favorite part about ACR is walking through the poster hall and seeing all the incredible progress and innovation in rheumatology!" @AngelaDegrassi #ACR24

"The reason why I became a rheumatologist... It makes me feel great to help people feeling better and it’s also really nice to make connections with patients and to see them grow and heal and getting better and follow them throughout their lives." — Dr. Milena Bond 💙 #ACR24

This #WorldKindnessDay mention the kindest person you know and remind them to be as kind to themselves as they are to others. 🌸 #CreakyJoints #KindnessMatters #SelfCare