Angela Brook

Eurordis categorise a rare or “orphan” disease as one which affects less than 1 in 2000 people. That certainly makes pseudomyxoma peritonei rare but how rare do you think it is? #pseudomyxomaperitonei #pmpsurvivor #appendixcancer #rarecancer pseudomyxomasurvivor.org/just-how-rare-…

Are you an appendix cancer or pseudomyxoma peritonei survivor? We'd love to read your story. If you'd like to share your story with us and other survivors, we’d love you to get in touch with us! Caregivers as well as patients. #pseudomyxomaperitonei #pmpsurvivor #appendixcancer

@rainmc @PMPSurvivor Me too!

"Late in 2020, I went to A&E with stomach pains. I had a CT scan which showed a mass in my pelvic cavity the size of a grapefruit." Little did Claire know what that would lead to. bit.ly/3YRzkmA #pseudomyxomaperitonei #pmpsurvivor #appendixcancer

The joint nation reception is taking place on Thursday 2 March and is an opportunity for people across the UK to come together to address the challenges for people with rare conditions. Register now 👉 ow.ly/shmH50MOmJF

Your next poo could save your life. Just a tiny sample detects signs of cancer before you notice anything wrong. If you’re sent a bowel cancer screening kit, put it by the loo. Don't put it off.

In Europe, there are estimated to be 22 people per million each year living with pseudomyxoma peritonei. #RareDiseaseDay #ShareYourColours #rarecancer #pseudomyxomaperitonei #appendixcancer #raredisease #twentytwoinamillion #pmpsurvivor #smallcharity

On #RareDiseaseDay, the rare disease community will #LightUpForRare! Join the ✨ Global Chain of Lights ✨ by: 🔦 Illuminating a monument 🔦 Lighting up your home 🔦 Posting your pictures with the hashtag #LightUpForRare 👉 cutt.ly/jYNFp5X 👉 cutt.ly/UYNFkKV

Last chance today!!

On average, how long does it take someone with a rare disease to get a diagnosis? #rarediseaseday #pseudomyxomaperitonei #pmpsurvivor #appendixcancers #showyourrare

Amazon Smile closes on February 20th. If you are able to help cover this loss of funding with a regular donation from just £2 per month before then, we'd be so very grateful: pseudomyxomasurvivor.org/make-monthly-d… 🧵 1/3

We're looking ahead to Rare Disease Day and how we can sum up our experiences as patients - we need your help! What three words come to mind when you think about your diagnosis? #RareDiseaseDay #pseudomyxomaperitonei #pmpsurvivor #appendixcancers

@PMPSurvivor is delighted to welcome in this New Year 2023 with a new addition to our Board of Trustees - Tim Brill! Tim brings with him a wealth of experience in corporate communications and public relations, a skill set we will definitely be tapping into.

Merry Christmas everyone; whatever you're doing this year, enjoy it. Thank you all for your support during 2022. We're having a break too to spend time with our families but we'll check in on our socials from time to time. #pseudomyxomaperitonei #pmpsurvivor #appendixcancer

We have been able to assist patients and their families with over £6000 in family assistance grants over the last year. Our family assistance grants have helped beneficiaries sleep more soundly at night. Priceless. #pmpsurvivor #appendixcancer #pseudomyxomaperitonei

Missed the last Christmas post? 😊 Receive a volume of x100 eCards that you can send anytime or schedule 📬 Send by email, WhatsApp and Messenger 🌎 Help the planet too! Send yours dontsendmeacard.com/ecards/chariti… #NotSendingCards #pmpsurvivor #pseudomyxomaperitonei #appendixcancer

Being able to pay for caregiver accommodation has been a hugely rewarding experience for us all. Relieving stress and worry for families at a really difficult time is one of the main motivators for this little charity. #pmpsurvivor #appendixcancer #psesudomyxomaperitonei

I just donated the cost of greeting cards with DontSendMeACard.com!

The @HolowatyjLab is hard at work shipping saliva collection kits daily to Genetics of Appendix Cancer (GAP) Study participants! If you were diagnosed with #appendixcancer in the US & are at least 18 years old, pls consider joining our nation-wide study ⬇️ gapcancerstudy.org

Send Christmas on 25/12 e-cards and donate the cost of cards and stamps! dontsendmeacard.com/ecard/14dAi #dontsendmeacard