Aniridia Europe Federation

We kicked off the European Aniridia Leadership and Collaboration Academy (EALCA) this morning in Sofia 🇧🇬 Participants are excited to connect, collaborate, and engage. Looking forward to meaningful discussions and outcomes in the days ahead. #leadership #aniridiaeurope #EALCA

The Aniridia community is in Sofia ahead of tomorrow’s conference—ready for a few inspiring days. Excited to hear the latest insights and breakthroughs from experts worldwide. See you tomorrow! #europeananiridiaconference2026

On RareDiseaseDay, we share Marie’s story of living with aniridia and countless surgeries. Restore Vision unites 7 rare eye diseases to drive targeted research. Aniridia Europe brings the patient voice to clinicians & researchers improving care. Read more: lnkd.in/eG4t9DkB

🌍💙 EALCA 2026 applications are OPEN! Build leadership skills, connect with the aniridia community & help shape future projects. 📍 Sofia | 17–19 April 2026 🧑‍🤝‍🧑 Ages 18–40 (flexible) ⏰ Apply by 15 Feb 2026 🔗 aniridiaconference.org/eac2026/europe…

📣 Applications open for EALCA 2026! Are you connected to aniridia and want to grow as a leader? Join the European Aniridia Leadership & Collaboration Academy—a 3-day programme building skills in confidence, communication, teamwork & project leadership👉 aniridiaconference.org/eac2026/call-f…

📣 Call for Posters – EAC 2026! Young ophthalmologists, scientists & scientifically engaged patients are invited to submit posters for the 8th European Aniridia Conference in Sofia. 📝 Abstract (≤300 words) + 8-slide poster 📧 Send to arbilis@arbilis.com 📅 Deadline: 31 Jan 2026

📣 Registration is OPEN for the 8th European Aniridia Conference! Join us in Sofia, Bulgaria – 17–19 April 2026 🇧🇬 Connect with clinicians, researchers, families & the aniridia community. Early registration encouraged (prices may rise after 31 Dec 2025) 👉 aniridiaconference.org/eac2026

💙 November 13 — International WAGR Spectrum Awareness Day 💙 Today, Aniridia Europe joins families worldwide and the IWSA for the #WalkForWAGR — walking together to raise awareness and hope💙 👉 wagr.org/walkforwagr2025 #AniridiaEurope #WAGR

🔬 At the “Aniridia, PAX6 & Beyond” Symposium 🇺🇸, Prof. Neil Lagali (Linköping Univ, Sweden) shared groundbreaking work on PAX6, limbal stem cells & therapies for aniridia-associated keratopathy (AAK) as part of the @RestoreVision project. #Aniridia #AAK #PAX6 #AniridiaEurope

💙 Our representative Elena Tsoneva joined the “Aniridia, PAX6, and Beyond” Symposium 🇺🇸 — an inspiring weekend of science, collaboration, and connection! 🌍Elena invited all researchers and clinicians to the next European Aniridia Conference in Bulgaria 🇧🇬 – April 17–19, 2026

👁️Are you living with a rare eye disease and do you want to help advance research into new treatments? 👥Join the Patients Working Group of the international research project @restorevis_eu! Fill out the application form here: ➡️form.jotform.com/251042021571037

✨ Big step for #Aniridia research! The Spanish Aniridia Association has awarded its 1st €12K grant to Dr. Esther Pomares’ project using CRISPR + iPSCs to correct genetic defects. 📅 Presented Sept 24 at #SEOSantiago2025. Hope is on the horizon! 💙

👁️ AE is in Alicante for the 2nd #RESTOREVISION Consortium Meeting! We’re proud to bring the patient voice into this EU-funded effort to develop treatments for #aniridia and other rare eye diseases 🔗 Follow the project: restorevision-project.eu @restorevis_eu 🇪🇺 Funded by the EU

🌞 June 21 is #InternationalAniridiaDay! We’re proud to support the #RestoreVision project – EU-funded research to develop treatments for rare eye diseases like aniridia! Together, we’re building a brighter future 🔗 youtu.be/1jPn-OjnOFA #AniridiaDay #AniridiaEurope #research

🌟 WAGR Weekend 2025 🌟 📍 Arundel, West Sussex, UK We’re excited to help spread the word about this amazing event for the WAGR community! 💙 ✨ Connect with families 🧠 Hear from UK experts 📢 Get IWSA updates 🌊 Enjoy a beautiful weekend 🔗 More info: wagr.org/WW25

Save the date ❗️8th European Aniridia Conference will take place in Sofia, Bulgaria, from April 17 to 19, 2026. Join us to exchange insights, share experiences, and foster collaborations to advance research. For more information and updates, please visit: aniridiaconference.org/eac2026/

Join ANA and Dr. John Freeman as he discusses the aniridic cornea, starting with an introduction to basic eye anatomy and how aniridia affects the cornea. 📅 Date: Wednesday, February 12 ⏰ Time: 7:30 PM EST( 1:30AM CEST) 🔗 Sign up now:zoom.us/meeting/regist…

Today it’s WAGR Awareness Day! We are supporting our colleagues from IWSA whose hard work is dedicated to improve the lives of individuals with WAGR syndrome. We all know that INFORMATION IS POWER! So we would like to share IWSA updated information on WAGR related topics. #WAGR

✅Check out some awesome tips on devices that can make studying easier for young people with low vision! 🤝Sharing your own experiences can be one of the most powerful ways to promote inclusion and make a real difference. Let us know your thoughts in the comments below👇

📢We are excited to announce you, that all the recordings of the 7th European Aniridia Conference 2024 are available on Aniridia Europe’s YouTube channel!👉▶️aniridia.eu/2024/07/31/rec…