To those patients and families who are in the path of Hurricane Dorian, please make sure you are in contact with your OneSource case manager, and most of all stay safe.
Our prayers are with you.
#aHUSstrong #ShapingOurPathForward
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Atypical HUS
911 posts
Atypical HUS
@AtypicalHUS
Official account of the Atypical HUS Foundation- the only 501(c)3 in the USA dedicated to supporting aHUS patients and caregivers.
Katılım Mayıs 2009
228 Takip Edilen596 Takipçiler
surveymonkey.com/r/NFBP6BY
We are in the final stages of planning our 2019 aHUS Foundation Conference schedule. Before we wrap it up, we would like to get your input on where we hold them and the length of each one.... surveymonkey.com/r/NFBP6BY
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On this Rare Disease Day, we are bringing awareness that having a Rare Disease requires a collaborative effort on all levels of care; Medical, Social, and Supportive services... youtube.com/attribution_li…
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Hi,
For those of you that don’t know me, I’m the Chair of the aHUS Foundation. I’m not a Facebook poster, but do read posts and feel that the concerns voiced... enrollment.assistfund.org/Home/ApplyNow?…
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Diane Lieberman, PhD, talks about nutrition at our Walt Disney World conference. facebook.com/TheAtypicalHUS…
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For those that were unable to come to The Atypical HUS Foundation’s Lake Buena Vista Conference and listen to Dr. Kenneth Lieberman, we are reposting this from earlier this year. facebook.com/story.php?stor…
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Some helpful resources available...
National Kidney Foundation:
kidney.org kidney.org
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The Atypical HUS Foundation’s 2018 Lake Buena Vista Conference is underway! #aHUSstrong #ShapingOurPathForward #aHUS
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Bethany Lovegrove tells her aHUS story at our Disney conference. facebook.com/TheAtypicalHUS…
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While you are doing your holiday shopping, please remember that any purchases made through the below websites will benefit The atypical HUS Foundation!
Any donation goes towards helping aHUS patients!... facebook.com/201231245318/p…
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Chatchawin Assanasen, MD ( AKA "Chachi ) speaks at our Anaheim, California conference about aHUS and answers questions at the end. facebook.com/TheAtypicalHUS…
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Big thank you to Abbi Reynolds, a friend of Fran Pekor! She ran the NYC marathon and fundraised for the aHUS Foundation! 👏🏼👏🏼👏🏼 congrats abbi!!!!!!! gofundme.com/653h7i0/share/…
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Our final day at The Atypical HUS Foundation’s 2018 Iowa Conference begins with Tara Maya, PhD, MS CGC explaining The Genetics of Atypical Hemolytic Uremic Syndrome.#aHUSstrong #ShapingOurPathForward
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You can find us on Social Media!
On Instagram: @aHUSfoundation
On Facebook: The Atypical HUS Foundation
Don’t forget to hashtag #aHUSstrong #ShapingOurPathForward
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You can find The Atypical HUS Foundation on social media!
On Instagram: @aHUSfoundation
On Twitter: @AtypicalHUS
And don’t forget to hashtag #aHUSstrong #ShapingOurPathForward #aHUSsquad
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