Living with Autism in Bedford

I thought that Twitter would be a good idea, but my anxiety thought otherwise!!! So instead I use Twitter to watch the world as that is all I can manage most days. My main focus is on Bedfordshire and mainly for work.

Time to give feedback. How to improve things

@NessaSpratticus @DandelionAppre1 Snap I took my first one of the year. Though no way as good a photo as yours.

@DandelionAppre1 Thought of @DandelionAppre1 when snapped this sunny rosette a few days ago.

When you go for a lunctime stroll and find the most perfect #dandelion, and, bonus despite the strong wind you get a non blurry photo. Oh yes, felt like a winner 😉. #wildflowers #nature #Spring2026

@Nicolascole77 Books. Thanks

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@SGV_UK Which prayer app do you use. I envy how much your faith gives you comfort.

Bit early this evening. I have already had a shower and done my evening prayers from the daily prayer app. There was a lot of singing in that one which was nice. BBC iPlayer seems to have some older episodes of Pilgrimage on so I've got that on at the moment.

@SGV_UK I’ve used it to explain what I feel like even though as it is different from others norm.

@SGV_UK I don’t know if this would help you ambitiousaboutautism.org.uk/what-we-do/ser…

Well went to see the nurse. I waited an hour. Told by receptionist 3 times they had given her a nudge. Then when I saw her claimed she had only been told I had turned up. Not sure what's going on there. I ended up speaking to her for 40 minutes.

@RITB_ Yes all the time especially for mental health. Rather go to a private provider than be treated poorly in the NHS

Anyone have experience of paying for a test, consultation, or healthcare support (because the NHS either doesn't offer it or what is on offer is harmful ie MH) and a GP gets narked about it?

@NessaSpratticus To me that is good therapy. Therapy is useless if it doesn’t teach you new ways of being. So sorry.

Oh found another “… her therapy seems to be education based” WTF!! 😳

369 pages of DWP Bundle arrived today. For anyone that knows you’ll know 😱😰 This has to be one of the most damming and invalidating reports I’ve read about me as a human being. A few of the most surprising ones by the independent health assessor (telephone): “was hostile” “became more hostile” “has no visual disease” “lack of motivation” “no hospital admissions = independence” “driving license = insight and ability to keep safe” … it goes on and on 😭 Heaven help me! #PIPAppeal #DWP

@NessaSpratticus I’m sorry. It’s so unfair

@NessaSpratticus Seen the Instagram post. Thanks.

@NessaSpratticus Can I post it on Instagram??

@AutismNtAwkward Murray & Cosmo now best Pica Pau buddies.

@NessaSpratticus They look beautiful together. Thanks for sharing

@NessaSpratticus Yes. I started taking anti inflammatories. But a doctor wouldn’t let me continue and wanted to put me on an antidepressant instead. I refused. If taking anti inflammatory you need to take an anti acid medication otherwise they upset your stomach

@AutismNtAwkward So draining. Dreadfully isolating. Do you take pain relief and do you find that helps.

A quiet scene from our morning walk … or should I say forced stumble! Significantly bugged by random but specific pain 🤨 in my other leg (not the leg under compression bandages) and neck/shoulder area… I have read a little about somatoform dissociation - and that people with severe trauma histories can experience medically unexplained physical problems. Can’t say I have ever knowingly suffered with this type of pain before. It is a strange and very distressing phenomena. At the moment am not getting any clues as to what this may be ie via NHS 111, and therapist not unpacking this until knows it’s nothing with a medical cause …. so this is my own deduction. I can force a giggle at myself realising that there may be alters - a Ness who is a pain in the leg, and another who is a pain in the neck … and hoping I don’t have a third one waiting to grab my attention … think you may guess to the unmentionable area 🤭 #SomatoformDissociation #ChronicPain #ComplexDissociativeDisorders #DID

@NessaSpratticus I think they both look great together. So happy.

@AutismNtAwkward Cosmo is competing with Amaryllis! Thank you so much … it’s Cosmo’s 👀 that do it for me!

@EasyReadOnline Good advice. Thanks.

More and more organisations and service providers are offering their information in an Easy Read format, but are they making the impact they should? Our latest blog explores how to create an Easy Read document with real impact: easy-read-online.co.uk/post/easy-read… #EasyRead #Accessibility

@NessaSpratticus Murray is looking very chilled listening to you play.

BOL! Thought I’d try (very trying) to entertaining Sybil, Murray, Jack & Bear! Recently started tinkling on the piano again 🎹 as a child this was one of my fav, forty years on I’m still crap! Amazing how the fingers kinda remember … one day I’ll give you the whole movement (easy version) without too many mistakes 😆 @jaq421 @AutismNtAwkward @HaggisAdele @BonnieBooBT #BTPosse #BeginnerPiano #MoonlightSonata

@RoyalFreeNHS I can’t see how this would help. I have early liver disease yet there is no treatment or prevention support available on the NHS. Just left to sort things out by myself.

Study on early liver disease could have ‘profound effect’ on NHS The largest liver study in NHS history is launching this week. Around 42,000 people across the UK will be screened for early signs of liver disease in a groundbreaking trial funded by the National Institute for Health and Care Research (NIHR). Led by Professor Emmanouil Tsochatzis, consultant hepatologist at the Royal Free Hospital and professor of hepatology at University College London, the study — the DIAgnosis of liver disease in primary care (DIALS) trial — has been awarded £3.4 million by NIHR. Early diagnosis could: ✔ Save thousands of lives ✔ Reduce hospital admissions ✔ Cut costs for the NHS Those at higher risk of liver disease due to excessive alcohol intake, Type 2 diabetes or obesity, will be invited for testing by participating GPs and a combination of three non-invasive liver scans will be used to determine the most efficient way to diagnose the condition early. Learn more about the study 👉 ow.ly/aMhs50XSno9

@DrAmyPsyD @autisticinnovat Great review

Thank you @autisticinnovat for sending me a heart chew necklace! Here are my thoughts: resiliencymentalhealth.com/2026/01/06/pro…

@SGV_UK, @stephstwogirls , @jaunty_aphorism , @mimigk1492 , @MITUKteam would you like an animal friend see above post.

These animal friends of Pica Pau are looking for a new home. No charge apart for £6 postage. They are a gift. But if you run a mental health account I will send for free. No strings attached