Very excited to join the Insight into Parkinson's conference from @pd_warrior this year. Come and learn how we are empowering you to have Better Conversations!
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Better Conversations with Parkinson's
208 posts
Better Conversations with Parkinson's
@BCDParkinsons
Conversation training for people living with Parkinson’s and their communication partners | @steven_bloch @pclaySLT @BCAphasia @lynndangerfiel4 @solentSLTEast
University College London Katılım Eylül 2021
240 Takip Edilen394 Takipçiler
Are you a #SLT working with people living with #Parkinsons and/ or have an interest in Communication Partner Training? Share your experience & opinions in a group discussing what changes people affected by Parkinson’s could and should make from doing CPT. Message us to take part.
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Better Conversations with Parkinson's retweetledi
For someone living with Parkinson's, Ramadan can bring a few extra considerations, such as changes to routine, fasting hours, sleep and medication.
If you're Muslim and have Parkinson’s, you may have questions around Ramadan, and how it might affect you: prksn.uk/4qm4DUq
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Better Conversations with Parkinson's retweetledi
The findings from the 2025 UK Parkinson's Audit will be published in early March.
You'll be able to access your Individual Service Report and benchmark your data against the UK results for your specialty.
Keep an eye out for more updates 👀
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Better Conversations with Parkinson's retweetledi
To mark #WorldLewyBodyDay get yourself genned up these important things to know about the second most common type of dementia... lbda.org/10-things-you-…
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@ParkinsonsUK has a brilliant YouTube channel with information about health professionals' roles, exercises and personal stories. You may even spot our very own @pclaySLT there: youtube.com/watch?v=gm4vwo…
YouTube
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Better Conversations with Parkinson's retweetledi
Parkinson's is the fastest-growing neurodegenerative disease in the world and yet many of us know very little about it.
Prof @foltynie (@UCLIoN) contributes to this awareness raising article in the Telegraph.
telegraph.co.uk/health-fitness…
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10 years of impact 👏👏 ... and keep an eye out for our very own @pclaySLT
Parkinson's UK Excellence Network@ParkinsonsEN
🥳This year we're celebrating 10 years of: 🔟 bringing together health and care professionals 🔟 providing resources and education 🔟 improving services for people with Parkinson's and their families. And we're not stopping. Watch our new film at bit.ly/4l8lWXG
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Some wonderful examples of what people aim to put into practice after @pclaySLT's talk at the @ParkinsonsEN #SLT CEN yesterday
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Here's a snapshot of our steering group meeting minutes - therapy is at the ❤️of what we've been working on.
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It certainly takes a village to raise a complex intervention… a humungous thank you to our #PPI groups who have put so much time, effort and expertise into our Better Conversations with #Parkinsons research. It has been an enormous pleasure working with you all.
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Share your story and make a difference!🗣️
Are you from Pakistan?
Living in the UK?
#dysarthria
Diagnosed with dysarthria? Help us understand how your communication difficulties affect your daily life. Participate and make your voice heard!Click on bit.ly/4c3joUY
@r_a_knight @ShamalaSundaray
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"To live a healthy life, is something we all deserve, we need every type of person represented in health research”
We're proud to have partnered on this film showing why we need better representation in health research.
AMRC@AMRC
👉🏽 #INVISIBLE out now! A film exploring why we need more diverse voices involved in health research. Visit egality.health/be-visible #BeVisible
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Another piece of work from our co-production group, this time reflecting on the #PPI process including people living with #Parkinsons and #CommunicationDifficulties 👏:
doi.org/10.14324/RFA.0…
Offer time, choices about how to take part and make sure communication is clear.
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Next #BetterConversationsLab #SLT training is in Australia in June hosted by @volkmer_anna and @rtslt! If you're going to @IARC2024 why not tag it on - you know it makes sense 😉 booking link ⬇️ @BCPPAphasia @BCDParkinsons @steven_bloch @CATs_Aphasia
Dr Anna Volkmer@volkmer_anna
So excited about attending the @IARC2024 conference in Queensland, Australia- just finalised flights & we at @BCAphasia @BCPPartners will be delivering a workshop on communication partner training the day before the conference- super excited! Come along!!! onlinestore.ucl.ac.uk/conferences-an…
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A brilliant reminder of the importance of including family in #SLT therapy for people living with #Parkinsons. And that it’s complicated – “managing communication strategies” can increase burden. Tailored interventions are needed for different phases. pubs.asha.org/doi/10.1044/20…
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If you know / are someone with #Parkinsons who has real difficulty being understood, who is keen to take part in research in London - please get in touch with ucjulio@ucl.ac.uk
Xiyuan Li@jessxiyuan
📢Seeking speakers with moderate to severe speech problems due to Parkinson's for a study (@steven_bloch & @PattiAdank) aiming to improve dysarthric speech recognition. Join a 1 hr recording session in London & earn £10. Interested or know someone? DM or email ucjulio@ucl.ac.uk
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It’s #WorldParkinsonsDay - up to 90% of people living with #Parkinsons experience changes in communication, with huge impacts on them and their families. We are creating a #SLT intervention with @ParkinsonsUK to help people build lifelong skills for more successful conversations
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Today is #WorldParkinsonsDay. There isn't one journey. There isn't one 'day in the life'. We're shining a light on the daily lives of people with Parkinson's and their loved ones. Hear from 6 amazing storytellers here: parkinsons.org.uk/stories
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