Biomedical Ethics Research Group

175 posts

Biomedical Ethics Research Group

@BERG_MCRI

Official account of the Biomedical Ethics Research Group, Murdoch Children's Research Institute. Views expressed are our own and do not represent those of MCRI.

Melbourne, Australia Katılım Ekim 2018

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Biomedical Ethics Research Group@BERG_MCRI·3 Ağu

Check out our new paper where we analysed submissions sent to the Senate Committee that informed drafting of the Mitochondrial Donation Law Reform (Maeve’s Law) Bill 2021 @JemimaAllen_ @DanyaVears @MCRI_for_kids @UniMelbMDHS link.springer.com/article/10.100…

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Biomedical Ethics Research Group@BERG_MCRI·20 Tem

Check out the new position statement by the Human Genetic Society of Australasia on Genetic Carrier Testing for Recessive Conditions led by @DanyaVears with @biomedethics @Amcinerneyleo @jacobs_chrisj and Jackie Boyle doi.org/10.1017/thg.20…

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Biomedical Ethics Research Group retweetledi

Dr Fiona Lynch, PhD MGenCouns@genetic_Fi·18 Tem

Shared just a snippet of our recent work yesterday at #ICG2023 Reanalysis of genomic data is so beneficial, but there are practical and ethical issues to consider #genechat

Dr Fiona Lynch, PhD MGenCouns tweet media

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Biomedical Ethics Research Group@BERG_MCRI·26 Haz

New research analysing the first porcine cardiac xenotransplantation, with BERG’s Chris Gyngell, @konstantinov_ie, @juliansavulescu, Prof Megan Munsie, Prof Misao Fujita, and Dr. Carrie Thiessen. jme.bmj.com/content/early/…

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Biomedical Ethics Research Group retweetledi

Dave Coghill@dave_coghill·10 Haz

Looking at some of the issues around overdiagnosis/misdiagnosis of ADHD through the lens of an ethicist. Great to work with @CPAGyngell and Jonathan Payne on this. Hope it stimulates conversation @UniMelbMDHS #ADHD sciencedirect.com/science/articl…

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A/Prof Danya Vears@DanyaVears·13 Haz

Huge thanks to the #ESHG2023 organisers for letting @CelineLewis23 and I on the decks at the conference party and to the attendees for bringing their best moves to the D-floor! We had the best time 😁

European Society of Human Genetics (ESHG)@eshgsociety

The #chromatones completely rocked the house at #eshg2023 congress party. #einekleinehousemusick #spcmembers @CelineLewis23 @DanyaVears

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Biomedical Ethics Research Group@BERG_MCRI·31 May

Thanks to co-authors Sachini Poogoda @genetic_Fi @ZornitzaS @NeonatalEthics @juliansavulescu @DanyaVears & Chris Gyngell

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Biomedical Ethics Research Group@BERG_MCRI·31 May

Rapid genomic testing poses many ethical challenges – we surveyed intensivists from around the world to see what they think. Read about their attitudes in our new paper out now! mdpi.com/2227-9067/10/6… @MDPIOpenAccess @MCRI_for_kids @UniMelb

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Biomedical Ethics Research Group@BERG_MCRI·30 May

New Position Statement issued by @HGSAAustralasia providing guidance on genetic carrier testing for recessive conditions in adults and children cambridge.org/core/journals/…

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Biomedical Ethics Research Group@BERG_MCRI·29 May

New paper out by @KatieArkell10 @DanyaVears @ZornitzaS and Chris Gyngell on ethical issues relating to use of rapid genomic sequencing in critically ill children mdpi.com/2227-9067/10/5… @MCRI_for_kids @UniMelb

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Biomedical Ethics Research Group@BERG_MCRI·11 May

@MCRI_for_kids @UniMelb @PeterMacCC @VCCCAlliance @AusGenomics @CBMER_KULeuven

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Biomedical Ethics Research Group@BERG_MCRI·11 May

📣 More data from our study exploring Australian public perspectives on #genomic data storage and sharing - OUT NOW in @ejhg_journal Read it here: rdcu.be/dbNj2 @genetic_Fi @YanMeng27 @drstephbest @IliasGoranitis @juliansavulescu Chris Gyngell & @DanyaVears

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Biomedical Ethics Research Group@BERG_MCRI·23 Mar

Just out! Our postdoc @DanyaVears along with Isabelle Budin Ljosne and Nina Hallowell, led the development of a practical checklist for return of results from genomic research in the European context @UniMelb @MCRI_for_kids @CBMER_KULeuven rdcu.be/c8bY9

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Biomedical Ethics Research Group@BERG_MCRI·16 Şub

Should we offer secondary findings from #genomics in children? What do parents want to know? Read our latest blog post outlining some of our recent research on this!

Australian Genomics@AusGenomics

📚 “Offering secondary findings from genomic testing in paediatric settings” – part 3 of the #AQuestionofEthics blog is out now! 🧬 @DanyaVears @drdavidamor @drlildownie @BERG_MCRI @MelbGenomics #genomics #blog #genomictesting #secondaryfindings australiangenomics.org.au/offering-secon…

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Biomedical Ethics Research Group@BERG_MCRI·16 Şub

Featuring BERG fellow Chris Gyngell!

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Biomedical Ethics Research Group@BERG_MCRI·9 Şub

Data sharing is so important for #genomics - check out the next blog in our series on this topic! In this piece, we explore the pros and cons of #bigdata sharing, and what the Australian public thinks about it!

Australian Genomics@AusGenomics

📚 Part 2 of #AQuestionofEthics #blog explores #bigdata in #genomics: to share or not to share? 🧬 @ZornitzaS @genetic_Fi Chris Gyngell @DanyaVears @MCRI_for_kids @MelbGenomics australiangenomics.org.au/big-data-in-ge…

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Biomedical Ethics Research Group@BERG_MCRI·3 Şub

Read our latest blog post exploring the #ethics issues of #consent for #genomictesting Courtesy of @AusGenomics by co-authors @genetic_Fi @DanyaVears @ZornitzaS and Chris Gyngell

Australian Genomics@AusGenomics

#AQuestionofEthics - new blog explores #ethical issues facing families when considering #genomictesting for their child. 🧬🧬 📚 Part 1/4 – Should parents be allowed to decline genomic testing for their children? Out now! #genomics #blog #ethics #consent australiangenomics.org.au/should-parents…

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Biomedical Ethics Research Group@BERG_MCRI·24 Oca

Interested in clinician perspectives on decision-making in paediatric home mechanical ventilation? Check out this paper by Juliette Jeffreys, Mayukh Rahman, @DanyaVears @BigjohnMassie onlinelibrary.wiley.com/doi/10.1111/jp…

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Biomedical Ethics Research Group@BERG_MCRI·5 Oca

Should children with hearing loss undergoing exome sequencing also be offered secondary findings? Lauren Notini @DanyaVears @ClaraGaff and @juliansavulescu asked health professionals offering this testing what they thought @MCRI_for_kids @UniMelb tandfonline.com/doi/full/10.10…

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Biomedical Ethics Research Group@BERG_MCRI·8 Ara

@MCRI_for_kids @UniMelb @PeterMacCC @VCCCAlliance @AusGenomics @CBMER_KULeuven

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Biomedical Ethics Research Group@BERG_MCRI·8 Ara

What do the Australian public think about #genomic data storage and sharing? Check out our recent paper answering this question from co-authors @genetic_Fi @YanMeng27 @drstephbest @IliasGoranitis @juliansavulescu Chris Gyngell & @DanyaVears

Dr Fiona Lynch, PhD MGenCouns@genetic_Fi

Data sharing is essential for #genomics - the Australian public are mostly supportive, but concerned about how the data might be misused. Read more in our recent study: authors.elsevier.com/a/1gDCI6IOrKoV…

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Keşfet

@JemimaAllen_ @DanyaVears @MCRI_for_kids @biomedethics @Amcinerneyleo @konstantinov_ie @juliansavulescu @CPAGyngell